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Relief from nausea

Posted by clutch @clutch, Dec 4, 2019

I have been tapering klonopin,switched to valium, for a year now. Have come a ways but still have a way to go. Nausea was one of the biggest issues, with resultant appetite and weight loss.
Tried the usual Rx (zofran, phenegran, compazine), and also ginger and CBS tincture. None worked over time. So I was lucky to get myself referred to a Symptom Specialist at Duke. He prescribed 15 remeron and 2.5 mg zyprexa. This was too sedating, so I cut these back to a tolerable dose, taken at night. The combination works better than anything I've tried.
If I have episodes during the day, I take .625 mg. zyprexa. Appetite and weight have improved.
Hope this will help someone else who is in "nausea hell".
Would like any feedback. Thanks!

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catmomma | @catmomma | Aug 14, 2022
In reply to @mikejjb123 "I have had daily nausea for nearly 4 years. Have GERD and colitis for which I..." + (show)
Profile picture for mikejjb123 @mikejjb123

I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

Jump to this post

Hi,

I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa and have gone to Mayo/Rochester and for my regular follow-up, I use Mercy GI in Cedar Rapids. I have an inflammatory component, so I'm currently managing with Prilosec and Linzess. No easy answers for this one and no real good ones. Having been on nutrition support, I prefer to manage with diet.

I cannot stress enough how much a probiotic has helped my gastroparesis. I take it with food and apart from medications if possible, about an hour apart.

I wish you the best.

REPLY
3 replies
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mikejjb123 | @mikejjb123 | Aug 14, 2022
In reply to @catmomma "Hi, I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa..." + (show)
Profile picture for catmomma @catmomma

Hi,

I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa and have gone to Mayo/Rochester and for my regular follow-up, I use Mercy GI in Cedar Rapids. I have an inflammatory component, so I'm currently managing with Prilosec and Linzess. No easy answers for this one and no real good ones. Having been on nutrition support, I prefer to manage with diet.

I cannot stress enough how much a probiotic has helped my gastroparesis. I take it with food and apart from medications if possible, about an hour apart.

I wish you the best.

Jump to this post

Thanks so much!

REPLY
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deern9 | @deern9 | Aug 14, 2022
In reply to @catmomma "Hi, I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa..." + (show)
Profile picture for catmomma @catmomma

Hi,

I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa and have gone to Mayo/Rochester and for my regular follow-up, I use Mercy GI in Cedar Rapids. I have an inflammatory component, so I'm currently managing with Prilosec and Linzess. No easy answers for this one and no real good ones. Having been on nutrition support, I prefer to manage with diet.

I cannot stress enough how much a probiotic has helped my gastroparesis. I take it with food and apart from medications if possible, about an hour apart.

I wish you the best.

Jump to this post

Sorry for your issues. I have a lot of problems myself. I'm wondering which Probiotic's you take?
Thank you,
Dee

REPLY
1 reply
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catmomma | @catmomma | Aug 15, 2022
In reply to @deern9 "Sorry for your issues. I have a lot of problems myself. I'm wondering which Probiotic's you..." + (show)
Profile picture for deern9 @deern9

Sorry for your issues. I have a lot of problems myself. I'm wondering which Probiotic's you take?
Thank you,
Dee

Jump to this post

Hi,

I try to rotate my probiotics, I have a degree in nutrition. This is a good guideline:

"A general recommendation is to choose probiotic products with at least 1 billion colony forming units and containing the genus Lactobacillus, Bifidobacterium or Saccharomyces boulardii, some of the most researched probiotics"

Cleveland Clinic (2018). How to Pick the Best Probiotic for You.

I take one that has at least 20 billion.

Best to you!

REPLY
1 reply
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peggyjean | @peggyjean | Aug 15, 2022
In reply to @catmomma "Hi, I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa..." + (show)
Profile picture for catmomma @catmomma

Hi,

I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa and have gone to Mayo/Rochester and for my regular follow-up, I use Mercy GI in Cedar Rapids. I have an inflammatory component, so I'm currently managing with Prilosec and Linzess. No easy answers for this one and no real good ones. Having been on nutrition support, I prefer to manage with diet.

I cannot stress enough how much a probiotic has helped my gastroparesis. I take it with food and apart from medications if possible, about an hour apart.

I wish you the best.

Jump to this post

I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also helps.

REPLY
2 replies
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catmomma | @catmomma | Aug 15, 2022
In reply to @peggyjean "I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also..." + (show)
Profile picture for peggyjean @peggyjean

I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also helps.

Jump to this post

Peggyjean,

While these things have been game changers for me, there is still no cure for gastroparesis. Exercise also definitely helps!

Take Care!

REPLY
1 reply
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mikejjb123 | @mikejjb123 | Aug 16, 2022
In reply to @catmomma "Peggyjean, While these things have been game changers for me, there is still no cure for..." + (show)
Profile picture for catmomma @catmomma

Peggyjean,

While these things have been game changers for me, there is still no cure for gastroparesis. Exercise also definitely helps!

Take Care!

Jump to this post

exercise helps for sure. thanks

REPLY
Profile picture for mikejjb123
mikejjb123 | @mikejjb123 | Aug 16, 2022
In reply to @peggyjean "I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also..." + (show)
Profile picture for peggyjean @peggyjean

I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also helps.

Jump to this post

gotta try gasx thanks!

REPLY
Profile picture for deern9
deern9 | @deern9 | Aug 20, 2022
In reply to @catmomma "Hi, I try to rotate my probiotics, I have a degree in nutrition. This is a..." + (show)
Profile picture for catmomma @catmomma

Hi,

I try to rotate my probiotics, I have a degree in nutrition. This is a good guideline:

"A general recommendation is to choose probiotic products with at least 1 billion colony forming units and containing the genus Lactobacillus, Bifidobacterium or Saccharomyces boulardii, some of the most researched probiotics"

Cleveland Clinic (2018). How to Pick the Best Probiotic for You.

I take one that has at least 20 billion.

Best to you!

Jump to this post

Thank you for the info. Best to you too.

REPLY
Profile picture for marycb
marycb | @marycb | Aug 21, 2022
In reply to @mikejjb123 "I have had daily nausea for nearly 4 years. Have GERD and colitis for which I..." + (show)
Profile picture for mikejjb123 @mikejjb123

I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

Jump to this post

I’ve had GERD, Esophageal Motility, Hiatal Hernia that gets fixed and returns, and Gastroparesis for years. Local Virginia hospital, Hopkins, Temple Gastro Diseases Unit. Still working on each part but I have had great success with a surgeon in Lurton, Virginia who has helped me thru the Esophageal Dismotility in the first few years and taught me how to deal with the GERD and HH issues. Unfortunately, a surgeon can’t be your daily GI doctor but I found a good one in Fair Oaks Virginia and he has me on 2 Dexilant a day, (and I use GasX for my silent nightly flare-ups); Florastor as a Probiotic, and I keep bowel prep stuff around for the constipation that can go with the Gastroparesis (when I’m not having IBS flares). Seem that what I’m taking is a hybrid mix of what everyone else is.

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