Anyone had a problem with neuropathy after receiving the vaccine?

I have gotten all 4 shots. Neuropathy still occurring after getting each shot. But I cannot determine any pattern on when the flare ups occur. Fortunately my neuropathy is not debilitating. Possibly due to my age (56) or the fact I exercise regularly. I felt like the neuropathy side effects are better than getting Covid.

Thank you very much for reporting your experience. It gives me input to consider for my difficult decision. From what I have read on the forum, I can get neuropathy again from the vaccine and also from a case of Covid itself. It’s a matter now of which might be to a lesser degree.

I have chemo induced neuropathy. I've now had 4 Pfizer shots with no ill effects. My neuropathy was worsened, however, when I went on Anastrozole and when I tried red yeast rice in place of statins for cholesterol.

I'm so sorry that you developed vaccine-induced neuropathy at such a young age. It has been a major life challenge for me, but would have been much more difficult to cope when I was younger. I'm slowly improving and I hope you are, too.

Peer Mentors,
Please indicate whether Mayo neurologists are aware there are 141 "pages" of comments here from patients suffering neuropathy as an adverse event of the Covid vaccines. The silence from the medical community is deafening and a violation of the Hippocratic Oath. I understand this forum is for patients, but Mayo Neurology should be made aware of the number of reports here in just one forum.

@pacer3702, the medical community is aware of patient reported outcomes of vaccines. That is why it is important that patients report their adverse events through VAERS.
- Vaccine Adverse Event Reporting System (VAERS): https://vaers.hhs.gov/

It is through the official reporting system that you can make the most difference.
I hope you did.

Ms. Young, I understand your point and it is valid, but there is a problem when the standard approach of entrusting one’s own physician with your illness isn’t working. By and large, most of the people on this thread are being ignored or placated by their physicians, or their physician just doesn’t know how to help them. You begin to lose trust in the only system of care you have, and VAERS is part of the same system. Additionally, VAERS is only one source of data. Other evidence needs to be considered as well. What I wish is that the few who do seem to have docs who believe them and really are trying to figure this out would ask those physicians to take this problem forward and increase awareness of it through their professional channels. I have personally asked my own neurologist, who practices at an academic medical center, to gather some of his colleagues to research these vaccine reactions. Unfortunately, he does not fall into the group who is motivated to help.

I am partial to Neuropathy getting the most attention for any type of research for understanding what this ailment is about since a lot of us in the forum already fell into the idiopathic no-clue category of PN before Covid came along, and it’s been a major life changer. My doctor wouldn’t even explore my theories on what might have caused my PN, as there isn’t much of a collection system to see or resources to research.
So I agree with @colleenyoung that we are so fortunate to at least have the VAERS to at organize snd centralize the affects being reported by people; it’s only as good as people report, but is a tool that researchers dedicated to the system can methodically sort through and analyze, to hone in on the most common themes and prioritize further research and testing accordingly. I do not participate in other Mayo forums of different ailments, or any other medical websites, but I have different friends who believe the vaccine has left them with migraines headaches, heart palpitations, blurred vision, or tinnitus . Unless a system like VAERS is used to get the reported effects by patients, they’re unable to determine what symptoms are most common with enough data to help them focus on getting help and improvements to the most people.
Like I said, I’m biased toward finding relief for Neuropathy caused by the vaccine or anything else, so am hoping everyone is using the VAERS to help them determine Neuropathy effects are priority for further vaccine research. I know double counting skews data, but pray doctors are encouraging patients to use the system or providing them help to get it done on their behalf.

Have u taken Evusheld injection as an alternative? I had reaction similar to yours from Covid vaccine but haven’t noticed any people with neurological reactions to COVID vaccine that have taken Evusheld.

I have not taken Evusheld but just discussed the possibility with my neurologist. At her suggestion, I have an appointment with an allergist/immunologist in November to discuss what happened and what options may be safe for me. I’m sure the subject of Evusheld will be discussed. My neurologist said that her other similar patients have all stayed away from any further vaccines. The most concerning thing she told me was that there is a possibility of an even worse case of neuropathy possible from either another vaccine or a case of Covid. I would be interested, as you inquired, if anyone has successfully received Evusheld as an option and whether they had any negative consequences. From what I’ve read, if you had an allergic reaction to the mRNA vaccines, you would likely have the same with Evusheld. I don’t know if that would pertain to developing neuropathy. It also has some stated cardiac risks, but generally for patients who have existing cardiac issues. It seems that nothing is totally risk free.