Hi @marymcadams , welcome to Mayo Clinic Connect! I'm one of the community moderators here. I'd like to try to connect you with a few users who may have had a similar experience to you, but I'm hoping you can tell us a little more first. Were you experiencing an arrhythmia? Did you try other treatment options before cardiac ablation?
Hi @marymcadams , welcome to Mayo Clinic Connect! I'm one of the community moderators here. I'd like to try to connect you with a few users who may have had a similar experience to you, but I'm hoping you can tell us a little more first. Were you experiencing an arrhythmia? Did you try other treatment options before cardiac ablation?
I was having many pvc's . I have had two ablation in the last6 months. I am still having pvc's about 2500 a day. I didn't think my life could get much worse but it has. I am unable to work are even go to a store most days. My last ablation was from around my mitral valve. Both ablation was like 10 hours. I am deseprate for my life back. I am not dizzy. It a loopy feeling. I have got low blood pressure. But taking some medicine for that. I really don't think it is my blood pressure. I am willing to travel to any hospital to help me. <br />
<br />
Should you wish to request an appointment at the Mayo Clinic, here is contact info for all 3 locations, Minnesota, Florida and Phoenix and an online request form http://mayocl.in/1mtmR63 I'll also tag @cynaburst, @lynnkay1956@PatMattos@Sensation@ronaldpetrovich who can share their experiences with the Mayo Clinic Cardiovascular department and @lepadelford who got treatment at Stanford.
I can relate my experience with an ablation, but it sounds like yours is a quite different experience. I would encourage you to follow up with the suggestions Rebecca and Colleen have put forward and get to a heart clinic where there are specialists in your particular field.
That said, my experience is from having a single ablation attempt (unsuccessful) about a year and a half ago. The duration was about half of what you had to endure or about 5 hours. The docs then changed my BP med to Cartia and I have only had three episodes since then. Two were very mild but a somewhat more serious episode occurred when I was weak from pneumonia and was hooked up to an EKG in the hospital ER. Fortunate that. I already had an IV going so they quickly pumped in some adenosine to bring things under control.
Because of the frequency of your events, you really should get yourself a referral to the best heart clinic with top notch electrophysiology specialists that you can reasonably get to as soon as you can. I'm sure Colleen and Rebecca could help you find such a clinic that is close to wherever you are located.
I can relate my experience with an ablation, but it sounds like yours is a quite different experience. I would encourage you to follow up with the suggestions Rebecca and Colleen have put forward and get to a heart clinic where there are specialists in your particular field.
That said, my experience is from having a single ablation attempt (unsuccessful) about a year and a half ago. The duration was about half of what you had to endure or about 5 hours. The docs then changed my BP med to Cartia and I have only had three episodes since then. Two were very mild but a somewhat more serious episode occurred when I was weak from pneumonia and was hooked up to an EKG in the hospital ER. Fortunate that. I already had an IV going so they quickly pumped in some adenosine to bring things under control.
Because of the frequency of your events, you really should get yourself a referral to the best heart clinic with top notch electrophysiology specialists that you can reasonably get to as soon as you can. I'm sure Colleen and Rebecca could help you find such a clinic that is close to wherever you are located.
Hi @@marymcadams,
As I've mentioned before I've had 5 ablations- the last one was successful (pulmonary vein ablation). I've never heard of a "valve ablation", so perhaps this is an altogether different procedure. I am familiar with PVC's- I've had lots of those, and have been told that they are benign and nothing to worry about. As far as a "loopy" feeling in your head- at one time I was given digoxin for my heart rhythm problems and I responded very poorly to the med. I felt strange, was very nervous, felt strange in my head as you described and was almost having a panic attack. I was taken off that med and felt fine again , So maybe your symptom is related to a med you are taking. Sounds like you need to discuss this with your electrophysiologist who performed your ablation. All the best, martishka
Hi @@marymcadams,
As I've mentioned before I've had 5 ablations- the last one was successful (pulmonary vein ablation). I've never heard of a "valve ablation", so perhaps this is an altogether different procedure. I am familiar with PVC's- I've had lots of those, and have been told that they are benign and nothing to worry about. As far as a "loopy" feeling in your head- at one time I was given digoxin for my heart rhythm problems and I responded very poorly to the med. I felt strange, was very nervous, felt strange in my head as you described and was almost having a panic attack. I was taken off that med and felt fine again , So maybe your symptom is related to a med you are taking. Sounds like you need to discuss this with your electrophysiologist who performed your ablation. All the best, martishka
I have talk to my doctor and he has no clue. I am not on any medicine. I could not take beta blockers due to my low blood pressure. Are there any hospital that you could suggest. Thanks for taking time to talk to me. I have been home bound for almost two years. <br />
<br />
Hi @@marymcadams,
As I've mentioned before I've had 5 ablations- the last one was successful (pulmonary vein ablation). I've never heard of a "valve ablation", so perhaps this is an altogether different procedure. I am familiar with PVC's- I've had lots of those, and have been told that they are benign and nothing to worry about. As far as a "loopy" feeling in your head- at one time I was given digoxin for my heart rhythm problems and I responded very poorly to the med. I felt strange, was very nervous, felt strange in my head as you described and was almost having a panic attack. I was taken off that med and felt fine again , So maybe your symptom is related to a med you are taking. Sounds like you need to discuss this with your electrophysiologist who performed your ablation. All the best, martishka
Hello, <br />
It sounds like you need to see a dr who can help you. If your dr doesn't have a clue what the problem is then you need to go to another doctor. Hopefully there is a cardiologist near you or , if this is a rhythm problem, an electrophysiologist. I saw that the Mayo Clinic has been recommended to you. I think that would be terrific. The process is different where I live (Canada). I was referred to the electrophysiologist since my family doctor knew that I had a rhythm problem. The EP doctor saw me for an ablation at the hospital. You can't go to the hospital here on your own and expect to see a specialist, that takes place in the office through a referral. I am assuming that in the states you can go directly to the hospital since the Mayo Clinic was recommended to you. <br />
Good luck, <br />
martishka
Does anyone have experience of multi focal pvcs. I have had two unsuccessful ablations due to the multiple points of where the pvcs originate. Unfortunately having trouble getting drugs which continue to help. I have an ICD for 5 years due to third degree heart block and one off experience of SVT. I have had other episodes of NSVT. I struggle with managing the pvcs and would be interested in any thoughts from the group please.
Does anyone have experience of multi focal pvcs. I have had two unsuccessful ablations due to the multiple points of where the pvcs originate. Unfortunately having trouble getting drugs which continue to help. I have an ICD for 5 years due to third degree heart block and one off experience of SVT. I have had other episodes of NSVT. I struggle with managing the pvcs and would be interested in any thoughts from the group please.
Hi Jean welcome to Connect, yes I can relate that PVCs can feel very uncomfortable and I had them but was always told they were not a problem in my case but it was only occasionally. But I do remember a drug I was on that I thought was better as a compliment to the main goto drug of Amiodroine and it I felt helped overall it's called Mexiltine but of course everyone is different and maybe talk to your Doctor about other medications.
Blessings
Connect
Connect
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Hi @marymcadams , welcome to Mayo Clinic Connect! I'm one of the community moderators here. I'd like to try to connect you with a few users who may have had a similar experience to you, but I'm hoping you can tell us a little more first. Were you experiencing an arrhythmia? Did you try other treatment options before cardiac ablation?
I was having many pvc's . I have had two ablation in the last6 months. I am still having pvc's about 2500 a day. I didn't think my life could get much worse but it has. I am unable to work are even go to a store most days. My last ablation was from around my mitral valve. Both ablation was like 10 hours. I am deseprate for my life back. I am not dizzy. It a loopy feeling. I have got low blood pressure. But taking some medicine for that. I really don't think it is my blood pressure. I am willing to travel to any hospital to help me. <br />
<br />
Hi Mary,
You may be interested in connecting with @martishka, @jennybell1, @topaz and @gonefishinmt on this thread where there are talking about their experiences with ablation https://connect.mayoclinic.org/discussion/i-was-just-diagnosed-with-svt-and-cant-seem-to-find-any/
Should you wish to request an appointment at the Mayo Clinic, here is contact info for all 3 locations, Minnesota, Florida and Phoenix and an online request form http://mayocl.in/1mtmR63 I'll also tag @cynaburst, @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich who can share their experiences with the Mayo Clinic Cardiovascular department and @lepadelford who got treatment at Stanford.
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1 ReactionHi @marymcadams:
I can relate my experience with an ablation, but it sounds like yours is a quite different experience. I would encourage you to follow up with the suggestions Rebecca and Colleen have put forward and get to a heart clinic where there are specialists in your particular field.
That said, my experience is from having a single ablation attempt (unsuccessful) about a year and a half ago. The duration was about half of what you had to endure or about 5 hours. The docs then changed my BP med to Cartia and I have only had three episodes since then. Two were very mild but a somewhat more serious episode occurred when I was weak from pneumonia and was hooked up to an EKG in the hospital ER. Fortunate that. I already had an IV going so they quickly pumped in some adenosine to bring things under control.
Because of the frequency of your events, you really should get yourself a referral to the best heart clinic with top notch electrophysiology specialists that you can reasonably get to as soon as you can. I'm sure Colleen and Rebecca could help you find such a clinic that is close to wherever you are located.
Good luck.
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Helpful -
Hug
1 ReactionI would love that! I ram willing to travel anywhere!<br />
<br />
Hi @@marymcadams,
As I've mentioned before I've had 5 ablations- the last one was successful (pulmonary vein ablation). I've never heard of a "valve ablation", so perhaps this is an altogether different procedure. I am familiar with PVC's- I've had lots of those, and have been told that they are benign and nothing to worry about. As far as a "loopy" feeling in your head- at one time I was given digoxin for my heart rhythm problems and I responded very poorly to the med. I felt strange, was very nervous, felt strange in my head as you described and was almost having a panic attack. I was taken off that med and felt fine again , So maybe your symptom is related to a med you are taking. Sounds like you need to discuss this with your electrophysiologist who performed your ablation. All the best, martishka
-
Like -
Helpful -
Hug
1 ReactionI have talk to my doctor and he has no clue. I am not on any medicine. I could not take beta blockers due to my low blood pressure. Are there any hospital that you could suggest. Thanks for taking time to talk to me. I have been home bound for almost two years. <br />
<br />
Hello, <br />
It sounds like you need to see a dr who can help you. If your dr doesn't have a clue what the problem is then you need to go to another doctor. Hopefully there is a cardiologist near you or , if this is a rhythm problem, an electrophysiologist. I saw that the Mayo Clinic has been recommended to you. I think that would be terrific. The process is different where I live (Canada). I was referred to the electrophysiologist since my family doctor knew that I had a rhythm problem. The EP doctor saw me for an ablation at the hospital. You can't go to the hospital here on your own and expect to see a specialist, that takes place in the office through a referral. I am assuming that in the states you can go directly to the hospital since the Mayo Clinic was recommended to you. <br />
Good luck, <br />
martishka
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Like -
Helpful -
Hug
1 ReactionHi
Does anyone have experience of multi focal pvcs. I have had two unsuccessful ablations due to the multiple points of where the pvcs originate. Unfortunately having trouble getting drugs which continue to help. I have an ICD for 5 years due to third degree heart block and one off experience of SVT. I have had other episodes of NSVT. I struggle with managing the pvcs and would be interested in any thoughts from the group please.
-
Like -
Helpful -
Hug
3 ReactionsHi Jean welcome to Connect, yes I can relate that PVCs can feel very uncomfortable and I had them but was always told they were not a problem in my case but it was only occasionally. But I do remember a drug I was on that I thought was better as a compliment to the main goto drug of Amiodroine and it I felt helped overall it's called Mexiltine but of course everyone is different and maybe talk to your Doctor about other medications.
Blessings
-
Like -
Helpful -
Hug
5 Reactions