Hello,
I too am sensitive to meds so I was anxious about it when prescribed. When I had the first bout of trigeminal neuralgia I think I would have tried anything-it was so painful. It stopped the pain! After the first dose. I did take it for a few weeks. I have it just for that. I’ve had to use it only twice. I take it with me everywhere I go and on trips just In case. It may have made me a little sleepy but don’t remember any other side effects from it. Good luck!
I’m so glad you found such relief and success with this medication. My condition is different; I have small fiber neuropathy and autonomic neuropathy, which has also caused fibromyalgia. But it sounds like you got much needed relief from nerve pain, so I am very hopeful with this one! Thank you so much for the insight.
I’m so glad you found such relief and success with this medication. My condition is different; I have small fiber neuropathy and autonomic neuropathy, which has also caused fibromyalgia. But it sounds like you got much needed relief from nerve pain, so I am very hopeful with this one! Thank you so much for the insight.
I had really bad attacks starting in February 2022. I started taking various dosages of Gabapentin and finally settled on taking 100M at 5AM, 100mg at noon and 200mg at 900PM. I have not had an attack since late March. I have my fingers crossed.
I am an 81 year old male.
John
Hello. It’s been a longtime. I went a neurologist and he prescribed gabapentin and was taking me off the oxcarbazepine. That didn’t work. Now I’m seeing a neurosurgeon in Peoria Illinois and he is doing a procedure called a radio frequency ablation. I hope that will do something. Does anyone know how to get on social security disability? I haven’t worked in a year.
Hello. It’s been a longtime. I went a neurologist and he prescribed gabapentin and was taking me off the oxcarbazepine. That didn’t work. Now I’m seeing a neurosurgeon in Peoria Illinois and he is doing a procedure called a radio frequency ablation. I hope that will do something. Does anyone know how to get on social security disability? I haven’t worked in a year.
Hello @sdgoddard10, I'm hoping the radio frequency ablation provides some relief and normalcy for you. There is a discussion that has a few links that you might find helpful for getting Social Security disability for neuropathy -- Disability: https://connect.mayoclinic.org/discussion/disability-2/.
I thought this would fit into the general TGN forum, for the TGN pain relief.
My Trigeminal Neuralgia started with a trip to the dentist and crown that was too big. It took several years and many organ killing medications to find a dentist willing to work with me. That helped, but not enough as the nerve was quite unhappy. I went to a cranial sacral therapist and the pain was gone! We worked for 6 months on making the nerves happy. It would be triggered by sound, smell and light; however it would relatively quickly calm down. I then went through more dental hell. And it was so much worse. Nothing helped, with the help of a fantastic neurologist and the cranial sacral therapist, I can exist using Baclofen. It is now triggered easily, like walking in a doctor's office, perfume, my cooking on occasion, and fluorescent lights. My new neurologist does not like the use of Zipsor or Fiorcet for the resulting migraines, so frustrating. Dealing with TGN is a work in progress. Just for giggles, I now have Lyme disease and both the TGN and neuropathy are having a field day!
I thought this would fit into the general TGN forum, for the TGN pain relief.
My Trigeminal Neuralgia started with a trip to the dentist and crown that was too big. It took several years and many organ killing medications to find a dentist willing to work with me. That helped, but not enough as the nerve was quite unhappy. I went to a cranial sacral therapist and the pain was gone! We worked for 6 months on making the nerves happy. It would be triggered by sound, smell and light; however it would relatively quickly calm down. I then went through more dental hell. And it was so much worse. Nothing helped, with the help of a fantastic neurologist and the cranial sacral therapist, I can exist using Baclofen. It is now triggered easily, like walking in a doctor's office, perfume, my cooking on occasion, and fluorescent lights. My new neurologist does not like the use of Zipsor or Fiorcet for the resulting migraines, so frustrating. Dealing with TGN is a work in progress. Just for giggles, I now have Lyme disease and both the TGN and neuropathy are having a field day!
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I’m so glad you found such relief and success with this medication. My condition is different; I have small fiber neuropathy and autonomic neuropathy, which has also caused fibromyalgia. But it sounds like you got much needed relief from nerve pain, so I am very hopeful with this one! Thank you so much for the insight.
I have the same things as you! I hope this med works for you!
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1 ReactionI had a horrible attack this morning
Hi @sdgoddard10, I'm sorry to hear about today's horrible attack of pain that you experienced. I moved your post to this existing discussion about trigeminal neuralgia
- Trigeminal neuralgia: What helps stop the pain?: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-5/
I did this so you can connect with other members living with TN like @philipmdale @denny2788 @cathen48 @57r @lbo615 @jmb73 @boltz7555 and see what helps them.
You may wish to see these related discussions about trigeminal neuralgia:
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
- Trigeminal Neuralgia (TN): Sinus problem trigger https://connect.mayoclinic.org/discussion/tn/
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5 ReactionsI had really bad attacks starting in February 2022. I started taking various dosages of Gabapentin and finally settled on taking 100M at 5AM, 100mg at noon and 200mg at 900PM. I have not had an attack since late March. I have my fingers crossed.
I am an 81 year old male.
John
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Hug
1 ReactionHello. It’s been a longtime. I went a neurologist and he prescribed gabapentin and was taking me off the oxcarbazepine. That didn’t work. Now I’m seeing a neurosurgeon in Peoria Illinois and he is doing a procedure called a radio frequency ablation. I hope that will do something. Does anyone know how to get on social security disability? I haven’t worked in a year.
Hello @sdgoddard10, I'm hoping the radio frequency ablation provides some relief and normalcy for you. There is a discussion that has a few links that you might find helpful for getting Social Security disability for neuropathy -- Disability: https://connect.mayoclinic.org/discussion/disability-2/.
Also, there is a discussion on radio frequency ablation that you might find helpful:
-- Experience with Radio Frequency Ablation procedures?:
https://connect.mayoclinic.org/discussion/experience-with-radio-frequency-ablation-procedures/
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2 Reactions@johnbishop
I thought this would fit into the general TGN forum, for the TGN pain relief.
My Trigeminal Neuralgia started with a trip to the dentist and crown that was too big. It took several years and many organ killing medications to find a dentist willing to work with me. That helped, but not enough as the nerve was quite unhappy. I went to a cranial sacral therapist and the pain was gone! We worked for 6 months on making the nerves happy. It would be triggered by sound, smell and light; however it would relatively quickly calm down. I then went through more dental hell. And it was so much worse. Nothing helped, with the help of a fantastic neurologist and the cranial sacral therapist, I can exist using Baclofen. It is now triggered easily, like walking in a doctor's office, perfume, my cooking on occasion, and fluorescent lights. My new neurologist does not like the use of Zipsor or Fiorcet for the resulting migraines, so frustrating. Dealing with TGN is a work in progress. Just for giggles, I now have Lyme disease and both the TGN and neuropathy are having a field day!
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Helpful -
Hug
4 ReactionsUsed Botox for post herpes neuralgia around and in eye. It helped. Hoping to get another injection next month.
Hello. I’m having a radio frequency ablation on September 20. Has any had one and does it work? Been diagnose with Type 2 trigeminal neuralgia.