Trigeminal neuralgia: What helps stop the pain?

Posted by denny2788 @denny2788, Aug 29, 2021

What is good for triameglia neuralgia type 2 bilateral to stop the pain

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@ekelks

i have it right now, for the last 11 days. It's another symptom of multiple sclerosis and you should see a neurologist if you haven't yet.

I take gabentin (Neurontin). It usually helps, it isn't helping much now, though the pain has localized for a change, not spreading up my face and around my chin as it usually does. it's in my mouth. Very hard to eat drink take my meds stay awake keep my balance can't go out too scared to shower...

so maybe shouldn't recommend but the pain does seem mediated. is better with it than without it. 300 mg + 300 mg, 400 mg at bed. rubbish regimen, never enough. 600+600+1200, and sometimee i've built up to 2400.

good luck with this nasty hateful synptom.

best.

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Thanks for your kind thoughts. I took gabapenton for a while, but it did not work for me. I went through 4 more meds. which were not helpful for one reason or another and then we tried Pregabapenton 375 mg three times a say, and it worked. My pain is in my left lower jaw, and occasionally in the left upper jaw. Feels like a bad toothache. I have seen a dentist twice and now have a neurologist. When the jaw becomes sensitive I put some ambisole (baby teething medication on the gums). It really helps. I am now down to 250 mg twice a day. I had to reduce the amount. I was sleeping all day and all night. Hope maybe this may be of some help to you.
Gina 5009

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@ekelks

i have it right now, for the last 11 days. It's another symptom of multiple sclerosis and you should see a neurologist if you haven't yet.

I take gabentin (Neurontin). It usually helps, it isn't helping much now, though the pain has localized for a change, not spreading up my face and around my chin as it usually does. it's in my mouth. Very hard to eat drink take my meds stay awake keep my balance can't go out too scared to shower...

so maybe shouldn't recommend but the pain does seem mediated. is better with it than without it. 300 mg + 300 mg, 400 mg at bed. rubbish regimen, never enough. 600+600+1200, and sometimee i've built up to 2400.

good luck with this nasty hateful synptom.

best.

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Am I the only one that Lyrica and Gaikeeps awake and in pain?

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@pamelaz

Am I the only one that Lyrica and Gaikeeps awake and in pain?

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Gabapentin keeps awake?

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@gina5009

Thanks for your kind thoughts. I took gabapenton for a while, but it did not work for me. I went through 4 more meds. which were not helpful for one reason or another and then we tried Pregabapenton 375 mg three times a say, and it worked. My pain is in my left lower jaw, and occasionally in the left upper jaw. Feels like a bad toothache. I have seen a dentist twice and now have a neurologist. When the jaw becomes sensitive I put some ambisole (baby teething medication on the gums). It really helps. I am now down to 250 mg twice a day. I had to reduce the amount. I was sleeping all day and all night. Hope maybe this may be of some help to you.
Gina 5009

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Thank you! i will copy down what you wrote and give it to my neurologist. i'm afraid to see a dentist now. i can barely talk or drink water.

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@pamelaz

Gabapentin keeps awake?

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gabapentin puts me to sleep, i've never tried Lyrica.

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@nursejudith

Treatment possibilities available for Trigiminal Neuralgia? I haven’t done well at all on any of the anti-epileptic medications. It all seems so hopeless! Which specialist is best to see?

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@nursejudith
For my trigeminal neuralgia I am on Baclofen. My breakthrough was seeing a cranial sacral PT. I could experience life again. I have triggers and go to great lengths to avoid them, I do get triggered more than I would like, but my trigeminal neuralgia calms down so much faster now. I was on stronger meds and stopped due to brain fog.

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@ekelks

Thank you! i will copy down what you wrote and give it to my neurologist. i'm afraid to see a dentist now. i can barely talk or drink water.

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i looked up your drug and sorry to say i don't think i should take it, there are some possible psych side effects that i've experienced before, a bad reaction to IV ciproflaxin, and I can't risk that again. Other than that it sounds wonderful. Thank you anyway. ❤️

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Gabapentin is a dangerous drug. A class action against Pfizer last year resulted in them being heavily fined. I was on it for 2 years. It was the worse time of my life. I had brain fog, memory problems, dizzy, unsteady, headaches, couldn’t bathe myself, cook, clean, drive, was dependent on my daughter. I crawled to the toilet when she was at work. It took 2 weeks to withdraw.
I have fibromyalgia, bilateral trigenimal neuralgia, 2 full tears in my right rotator cuff, tear in my right bicep with fluid, partial tear in left rotator cuff (old softball injury) osteoarthritis throughout body, hyperthyroidism, IBS, TMJ, GERD, Left hip bursitis, chronic fatigue,
Right knee extreme pain seizes at night
Severe pain in both thighs
Neuropathic pain on left foot
Fluid retention
L4-5/S1 disc bulge
T2-C1 disc deterioration
Tinnitus left ear
Lack circulation in feet and hands
Sciatica
Extreme Hair Loss
High Prolactin

Please take care and try use alternative like medicinal cannabis it’s natures medicine. I have been making oil, balm, edibles for 5yrs.
Long-term use of gabapentin can permanently damage your organs including your brain, kidneys, and liver. Long-term gabapentin use has also been linked with muscle weakness, respiratory failure, and loss of memory.
Think about other alternatives before poisons from pharma drugs.

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@pamelaz

Am I the only one that Lyrica and Gaikeeps awake and in pain?

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I have been blessed not to have the pain at night, but when I do have pain and it is difficult to eat I put oral anesthetic liquid (ambesole, baby teething medication) directly on my gums and teeth. I have also been fortunate that the Pregabalin has given me considerable relief from the pain.
Gina5009

REPLY
@tarm56

Gabapentin is a dangerous drug. A class action against Pfizer last year resulted in them being heavily fined. I was on it for 2 years. It was the worse time of my life. I had brain fog, memory problems, dizzy, unsteady, headaches, couldn’t bathe myself, cook, clean, drive, was dependent on my daughter. I crawled to the toilet when she was at work. It took 2 weeks to withdraw.
I have fibromyalgia, bilateral trigenimal neuralgia, 2 full tears in my right rotator cuff, tear in my right bicep with fluid, partial tear in left rotator cuff (old softball injury) osteoarthritis throughout body, hyperthyroidism, IBS, TMJ, GERD, Left hip bursitis, chronic fatigue,
Right knee extreme pain seizes at night
Severe pain in both thighs
Neuropathic pain on left foot
Fluid retention
L4-5/S1 disc bulge
T2-C1 disc deterioration
Tinnitus left ear
Lack circulation in feet and hands
Sciatica
Extreme Hair Loss
High Prolactin

Please take care and try use alternative like medicinal cannabis it’s natures medicine. I have been making oil, balm, edibles for 5yrs.
Long-term use of gabapentin can permanently damage your organs including your brain, kidneys, and liver. Long-term gabapentin use has also been linked with muscle weakness, respiratory failure, and loss of memory.
Think about other alternatives before poisons from pharma drugs.

Jump to this post

Thank you for your interest and help. I am not taking Gabapenton, I am on Pregabapentin a very low dose 50 mg twice a day. I also had a very hard time on a higher dose, 75 mg three times a day, but at that time I really needed the higher dose. I slept 18 hours a day. I am so sorry to hear about all your medical problems. The lack of circulation in your hands may be Raynaud's Disease. It is important that you keep your hands warm. I wear the gloves with the open ends during the day. Raynaud's can also cause the circulation problems in your feet. Have you thought about Knee joint replacement. I have both of my knees replaced and it is wonderful. No more pain, I also have my hips replaced and the same answer. May God Bless you and bring you relief from your pain.
Gina5009

REPLY
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