I'm also a type 11 diabetic and have been having some issue with my feet legs and hands and Crawley feelings ,on gabapentin. Keeps me up at nights just trying to understand. Have a Dr's appt at the end of the month.
I have idiopathic PN in the lower extremities - feet and legs below the knee. I also have spine issues and had a fusion and laminectomy 9 years ago. Recent MRI still shows issues but nothing that indicates the reason for PN. Recently I started experiencing a burning/tingling feeling in my outer thighs especially if I have been standing or walking for a period of time. I will discuss this with my neurologist at the next appointment, but I was wondering if anyone else had experienced this symptom.
I'm also a type 11 diabetic and have been having some issue with my feet legs and hands and Crawley feelings ,on gabapentin. Keeps me up at nights just trying to understand. Have a Dr's appt at the end of the month.
Welcome @karina1954, Sorry to hear you joined our neuropathy club but I'm glad you found us so that you know you are not alone. I think each of us have had similar thoughts when the symptoms started showing up. It's good to hear you have a doctors appointment at the end of the month. Since you mentioned you have type 1 diabetes, you might want to read through the following discussion to learn what other members have shared.
Today my doc suggested trying pre-gabapentin in the morning as gabapentin makes me drowsy and woozy. Anybody else on pre-gabapentin and do you notice a difference? bcool123
Welcome @karina1954, Sorry to hear you joined our neuropathy club but I'm glad you found us so that you know you are not alone. I think each of us have had similar thoughts when the symptoms started showing up. It's good to hear you have a doctors appointment at the end of the month. Since you mentioned you have type 1 diabetes, you might want to read through the following discussion to learn what other members have shared.
Hi John,
Thanks for you reply. I am a type 11 diabetic. Haven't officially been diagnosed as yet, but the symptoms are very similar to all the the comments I read.
I'm also recovering from Colon cancer surgery 8 wks..no chemo would love to connect with that group as well..I also have gastroparesis.
Hi John,
Thanks for you reply. I am a type 11 diabetic. Haven't officially been diagnosed as yet, but the symptoms are very similar to all the the comments I read.
I'm also recovering from Colon cancer surgery 8 wks..no chemo would love to connect with that group as well..I also have gastroparesis.
Connect
Connect
Like
Helpful
Hug
I'm also a type 11 diabetic and have been having some issue with my feet legs and hands and Crawley feelings ,on gabapentin. Keeps me up at nights just trying to understand. Have a Dr's appt at the end of the month.
-
Like -
Helpful -
Hug
2 ReactionsHello @drs22. I am sorry you are going through this.
Since there is an existing discussion on PN, you will notice I have moved your post here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/
Here are some resources for burning that may be of help:
— Burning feet and legs: https://connect.mayoclinic.org/discussion/burning-feet-and-legs/
— neuropathy and burning feet: https://connect.mayoclinic.org/discussion/neuropathy-4/
— Burning Feet syndrome: https://connect.mayoclinic.org/discussion/burning-feet-syndrome/
You may have seen some of the home remedies but they may be helpful if you haven't already tried them.
— 9 home remedies for burning feet: https://www.medicalnewstoday.com/articles/home-remedies-for-burning-feet
Have you tried any of these?
-
Like -
Helpful -
Hug
3 ReactionsWelcome @karina1954, Sorry to hear you joined our neuropathy club but I'm glad you found us so that you know you are not alone. I think each of us have had similar thoughts when the symptoms started showing up. It's good to hear you have a doctors appointment at the end of the month. Since you mentioned you have type 1 diabetes, you might want to read through the following discussion to learn what other members have shared.
-- Has anyone tried treatment for diabetic neuropathy ?: https://connect.mayoclinic.org/discussion/has-anyone-tried-treatment-for-diabetic-neuropathy/
Have you been diagnosed with neuropathy or do you just have the symptoms?
-
Like -
Helpful -
Hug
1 ReactionYes. It’s very painful.
Has anyone tried Nortriptyline?
Hello @pamelaz, Welcome to Connect. I have no experience with Nortriptyline but @melody12 @patriciao @artscaping @sharonbrenna and @rwinney have posted about it in other discussions and may have some experience to share with you.
Have you been diagnosed with neuropathy? Do you mind sharing a little more about your diagnosis and symptoms?
-
Like -
Helpful -
Hug
1 ReactionAre you confusing gabapentin with pre-Pregabalin (Lyrica). 2 different meds. Both have been used for nerve pain.
Hi John,
Thanks for you reply. I am a type 11 diabetic. Haven't officially been diagnosed as yet, but the symptoms are very similar to all the the comments I read.
I'm also recovering from Colon cancer surgery 8 wks..no chemo would love to connect with that group as well..I also have gastroparesis.
Thank you
Karina
-
Like -
Helpful -
Hug
1 ReactionI am and I wish I had answers. It is awful. I am looking into Nerve replacement surgery.
Hi Karina @karina1954, Here are a few more discussions on the conditions you mentioned that might be helpful:
-- Controlling type 2 diabetes with diet alone: https://connect.mayoclinic.org/discussion/another-confused-starter/
-- What is a good diet after colon surgery? Are probiotics good?: https://connect.mayoclinic.org/discussion/diet-after-total-colectomy/
-- What can I do when in a gastroparesis flare?: https://connect.mayoclinic.org/discussion/gastroparesis-9/
-
Like -
Helpful -
Hug
2 Reactions