Unfortunately the stabbing is a part of the disease. It has ups and downs. Sometimes you get them a lot then you will go weeks without them. The only thing good about them is the pain subsides almost instantly. It’s painful ( unimaginable pain) like being stabbed but it’s like when the knife comes out the pain goes away and there is no residual pain after. But I would be so worried when the next one would come I would tense up. That tensing up made my neuropathy worse.
I hope you can find some comfort. It’s a cruddy disease.
Yes, of course, I went to the doctors and specialists. I was surprised Mayo Clinic would suggest trying ALA and even more suprised that is actually worked. This is a quote from the Mayo website under alternative treatments: "Alpha-lipoic acid. This has been used as a treatment for peripheral neuropathy in Europe for years. Discuss using alpha-lipoic acid with your doctor because it can affect blood sugar levels. Other side effects can include stomach upset and skin rash." I personally never had any side effects at all, and it has been nothing but helpful for several years now. I noticed a difference after a few days and it just got better with time.
Good evening @pamelaz, your report on side effects from Nortriptyline is quite concerning. I have reviewed several lists of side effects and don't see the "stabbing" that you mention even in the occasional list. Overdoses can increase the level of the side effects. So, I am unable to answer your question....." will it go away?".
Sometimes, your pharmacist is the best one to contact about side effects. I have had the same pharmacists, Mike, Rick, and Stacy and they check everything for me. They also may have information about ways to make it go away like the time of day that it is taken and other medications interacting with the Nortriptyline.
How is Tylenol impacting your neuropathy? I will be using Tylenol next week after my bladder surgery so I am wondering. I haven't taken it in years and yet I don't want opioids.
Just a question.....have you used any topicals on your legs, feet, and thighs? There are compounding pharmacies that can use a unique lidocaine-based recipe that your neurologist or other clinician recommends. I used that for quite a while until I found I could replace it with a medical cannabis topical that, for me, relieves me of tingling, numbness, and pain. It is available in two different dosages....one for acute pain and one for chronic pain.
Would you be interested in trying medical cannabis? It has been controlling my neuropathy pain and tingle tangles now for several years.
May you be free of suffering and the causes of suffering.
Chris
Tylenol made it worse for my neuropathy. I have taken Tylenol all my life. I thought my legs burned before but Tylenol set it off. I have some CBD HEMP CREAM but it doesn’t work either.
Good evening @pamelaz, your report on side effects from Nortriptyline is quite concerning. I have reviewed several lists of side effects and don't see the "stabbing" that you mention even in the occasional list. Overdoses can increase the level of the side effects. So, I am unable to answer your question....." will it go away?".
Sometimes, your pharmacist is the best one to contact about side effects. I have had the same pharmacists, Mike, Rick, and Stacy and they check everything for me. They also may have information about ways to make it go away like the time of day that it is taken and other medications interacting with the Nortriptyline.
How is Tylenol impacting your neuropathy? I will be using Tylenol next week after my bladder surgery so I am wondering. I haven't taken it in years and yet I don't want opioids.
Just a question.....have you used any topicals on your legs, feet, and thighs? There are compounding pharmacies that can use a unique lidocaine-based recipe that your neurologist or other clinician recommends. I used that for quite a while until I found I could replace it with a medical cannabis topical that, for me, relieves me of tingling, numbness, and pain. It is available in two different dosages....one for acute pain and one for chronic pain.
Would you be interested in trying medical cannabis? It has been controlling my neuropathy pain and tingle tangles now for several years.
May you be free of suffering and the causes of suffering.
Chris
Yes. I take 40mg. of Nortriptyline at bedtime along with 100mg. of pregabalin, otherwise known as Lyrica, and it works for me. Without it, I would be in pain.
Sativa cannabis will not interfere with depression medication. Indica cannabis may, but I doubt it. I’m on two anti depression meds and it doesn’t to anything to interfere. But it help tremendously for pain and attitude issues.
What’s funny to me (sarcasm) the doctors treating us rarely have a clue what we go through. My neurologist is a specialist in Neuropathy, both Autonomic and Small fiber. She said I will do what I can to help you in any way, but since I’ve never experienced what you’re dealing with I will need you to pain a picture of what you feel and what you are dealing with. Then she said I can help you.
It’s like someone treating you for headaches and they never had one. They are going to recommend the text book treatment, never deviating from the accepted normal practice they learn in school. But go to a Dr who deals with migraines and they will go off the written page to get you the relief you need.
I’m not pushing marijuana, I know the gummy’s help me tremendously. My Neurologist said give it a try, if it helps let me know so I can help my other patients. I do understand the apprehension using any forms of marijuana because I was a police officer. But it help me.
Again I’m not pushing my treatment in anybody. This is a blog to give us different ideas on what May or may not help.
I hope you get some relief!❤️
Sativa cannabis will not interfere with depression medication. Indica cannabis may, but I doubt it. I’m on two anti depression meds and it doesn’t to anything to interfere. But it help tremendously for pain and attitude issues.
What’s funny to me (sarcasm) the doctors treating us rarely have a clue what we go through. My neurologist is a specialist in Neuropathy, both Autonomic and Small fiber. She said I will do what I can to help you in any way, but since I’ve never experienced what you’re dealing with I will need you to pain a picture of what you feel and what you are dealing with. Then she said I can help you.
It’s like someone treating you for headaches and they never had one. They are going to recommend the text book treatment, never deviating from the accepted normal practice they learn in school. But go to a Dr who deals with migraines and they will go off the written page to get you the relief you need.
I’m not pushing marijuana, I know the gummy’s help me tremendously. My Neurologist said give it a try, if it helps let me know so I can help my other patients. I do understand the apprehension using any forms of marijuana because I was a police officer. But it help me.
Again I’m not pushing my treatment in anybody. This is a blog to give us different ideas on what May or may not help.
I hope you get some relief!❤️
Sativa cannabis will not interfere with depression medication. Indica cannabis may, but I doubt it. I’m on two anti depression meds and it doesn’t to anything to interfere. But it help tremendously for pain and attitude issues.
What’s funny to me (sarcasm) the doctors treating us rarely have a clue what we go through. My neurologist is a specialist in Neuropathy, both Autonomic and Small fiber. She said I will do what I can to help you in any way, but since I’ve never experienced what you’re dealing with I will need you to pain a picture of what you feel and what you are dealing with. Then she said I can help you.
It’s like someone treating you for headaches and they never had one. They are going to recommend the text book treatment, never deviating from the accepted normal practice they learn in school. But go to a Dr who deals with migraines and they will go off the written page to get you the relief you need.
I’m not pushing marijuana, I know the gummy’s help me tremendously. My Neurologist said give it a try, if it helps let me know so I can help my other patients. I do understand the apprehension using any forms of marijuana because I was a police officer. But it help me.
Again I’m not pushing my treatment in anybody. This is a blog to give us different ideas on what May or may not help.
I hope you get some relief!❤️
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I think I passed out from the pain. I’m not taking it again.
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1 ReactionThere is a lot of research information available out there that supporta R-ALA for nerve health along with Omega 3, 6, 9 and other supplements. Google Scholar is a good place to learn - https://scholar.google.com/. The Foundation for Peripheral Neuropathy also has a list of supplements as a starting place - https://www.foundationforpn.org/wp-content/uploads/2016/10/Supplements-Not-highlighted.pdf
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1 ReactionTylenol made it worse for my neuropathy. I have taken Tylenol all my life. I thought my legs burned before but Tylenol set it off. I have some CBD HEMP CREAM but it doesn’t work either.
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1 ReactionI’m not to use cannibis with my depression medicine. But I would love it if it would give me relief.
Someone else replied and said they got the stabbing feelings too.
From the Nortriptyline but it comes and goes. I know I passed out from the pain. I have GERD too. Maybe that is why it was so intense.
Has anyone recover from neuropathy that smoked?
Please forward as I am new to this page. I would love comments.
Sativa cannabis will not interfere with depression medication. Indica cannabis may, but I doubt it. I’m on two anti depression meds and it doesn’t to anything to interfere. But it help tremendously for pain and attitude issues.
What’s funny to me (sarcasm) the doctors treating us rarely have a clue what we go through. My neurologist is a specialist in Neuropathy, both Autonomic and Small fiber. She said I will do what I can to help you in any way, but since I’ve never experienced what you’re dealing with I will need you to pain a picture of what you feel and what you are dealing with. Then she said I can help you.
It’s like someone treating you for headaches and they never had one. They are going to recommend the text book treatment, never deviating from the accepted normal practice they learn in school. But go to a Dr who deals with migraines and they will go off the written page to get you the relief you need.
I’m not pushing marijuana, I know the gummy’s help me tremendously. My Neurologist said give it a try, if it helps let me know so I can help my other patients. I do understand the apprehension using any forms of marijuana because I was a police officer. But it help me.
Again I’m not pushing my treatment in anybody. This is a blog to give us different ideas on what May or may not help.
I hope you get some relief!❤️
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Helpful -
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1 ReactionDo you have really bad neuropathy? My feet, legs and thighs burns in cold and heat. I, also , have GERD.
Do you know if you quit smoking if the neuropathy will get better? I’m trying to get an answer for that question, too.
I look forward to your reply.
Does anyone know anything about L-Theanine? I have epilepsy and my counselor want me to take it.
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