Has anyone else been diagnosed with COPD after COVID?

Posted by bentleyoakguy @bentleyoakguy, Jun 13, 2022

Howdy,

I'm a 52 year old guy that was diagnosed with COVID on May 6th. I also tested positive for antibodies in Fall 2020. I'm not / nor have I ever been a smoker. I have no history of Asthma, but my mom has COPD (stage 2). After 2 weeks of rather mild covid (no breathing issues / fever) I developed what the urgent care dr told me was acute bronchitis. We started me on prednisone, Mucinex, and promethazine DM for cough. After a week, I had to go back and got another round of prednisone and Albuterol. I followed up with primary care and she prescribed Trelegy and said that this is likely Post Covid / COPD.

I'm having shortness of breath, wheezing, and cough with a little mucus. I'm being told to stay on meds and wait 3 months. I'm extremely down after fighting this for 6 weeks and now getting COPD on the table. I have asked for a pulmonary function test but beyond that, I'm lost on how to proceed. My pulse O2 is always above 95% and in the last 2 days, I forced myself to the gym (indoor track) for a brisk 2 miles, which I can do without exhaustion.

Does this scenario resonate with anyone? Is anyone else diagnosed with COPD after COVID? I'm staying on the primary Dr for a pulmonary function test to see what is going on with my lungs and get a baseline (sorry I'm an engineer and must have data).

Thanks for reading.

Jay

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@otter2154

I would not assume that you have COPD. It can only be diagnosed through vigorous lung function testing, scans (usually CT) in some cases, and blood testing as rarely COPD can be genetic. I am 57 and developed horrible breathing issues post Covid. I’ve had every imaginable test and we are treating it as asthma and I’ve improved greatly, but very slowly over time. Exercise has helped immensely and you may need to be more patient.

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How long did it take you ? @otter2154 ?
Yes, very slow and symptoms up and down. I am also very impatient and was always on the go, hard to relax, rest and recover.

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@lenchiksf

How long did it take you ? @otter2154 ?
Yes, very slow and symptoms up and down. I am also very impatient and was always on the go, hard to relax, rest and recover.

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Yeah the good / bad day inconsistency is enough to drive you nuts. My plan is to get my allergy scratch test and see what my triggers might be, take my trelegy and albuterol and start walking at my rec centers indoor track. Those are all things I can control. Everything else is out of my hands. 🙁

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@jwilson69002

Why wait 3 months? If you go to a pulmonary doctor and you don't have COPD, hurrah! But if you do, sooner treatment is better and will give you some relief.

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I think has to do with acute vs chronic phase. I am also waiting for high resolution ct to be done which needs deep breathing to be done during thr test. I am just starting to feel that i can breathe and was like someone said breathing through cheesecloth.

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@otter2154

I would not assume that you have COPD. It can only be diagnosed through vigorous lung function testing, scans (usually CT) in some cases, and blood testing as rarely COPD can be genetic. I am 57 and developed horrible breathing issues post Covid. I’ve had every imaginable test and we are treating it as asthma and I’ve improved greatly, but very slowly over time. Exercise has helped immensely and you may need to be more patient.

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@otter2154
- which exercises have you been doing ? I purchased "the breather" from amazon and started using it. My pulm md said to go slow, dont overdo it. I have asthma at baseline and it flared up, plus patchy ground glass opacity both lower lobes per ct

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@mpeters

My story is much the same. I had weird chest pains so I went to my local hospital ER. They put me in the hospital for observation due to my age and cardiac risk factors. Everyone was tested in the hospital and though I had no symptoms I had Covid. I was shocked because I’m so careful. An X-ray indicated I had hyper inflated lungs consistent with COPD. When I went home I started walking in my house and finally got out and walked my usual two miles each day, then I had an asthma flare and when I walked it felt like I was breathing through cheese cloth. My oxygen was 98. So I got an appointment with Mayo. I had the pulmonary function test with my FRC below normal but all other numbers were good compared to last year’s test. A couple of weeks later I had a ct scan and was seen by a pulmonologist. I had a normal ct scan. It took me four months from having Covid but walking my two miles is now more enjoyable.

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I love hearing stories like this. It shows that you are working with what your body can do and pushing ahead. I know that not everyone will have results like this but the fact of pushing ahead is the star!

Thank you for sharing this. It feels great, doesn't it?

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Yes I feel great. It took four months but I’m back to normal.

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Good morning Jay! Have been silently reading all of these stories for the past few days. I’m in shock about how your story resemble mine. I'm 51. First, I quit smoking in March of 2012 after approximately 25 years of 3/4 packs per day. For the past 10 years I’ve experienced intermittent chest pains. I’ve had every non invasive cardiac test done and all came back normal. The diagnosis ended up being Costochondritis (chest wall inflammation). In February of 2021, I tested positive for COVID. Symptoms were pretty mild only lasting 1-2 days. But I began experiencing intermittent SOB. They type of SOB where I can’t catch a satisfying deep breath that I starve for. Eventually I achieve the deep breath and it’s satisfied but only for a short period of time. At first, the SOB was sporadic. Every few days lasting for a day or two and then resolving and staying away for a week or longer but it always returned. In the summer of 2021, I was diagnosed with hypertension. All cardiac tests (CT w/contrast of the chest, ECHO, stress, Holter etc. etc.) were repeated and all tests were found to be normal. No plaques or blockages by CT. The SOB continues and became more frequent. In November of 2021, I saw a Pulmonologist. Pulmonary Function Tests were performed and I was cleared for COPD and any lung disease, FEV/FVC .82. SOB improved slightly for a period of time. In February of 2022, I tested positive for COVID AGAIN. This time the virus seemed to get into my lungs as I had a respiratory infection for about a week or so. It took a couple weeks for it to totally clear but the SOB returned much more frequently. In May of 2022, I saw a different Pulmonologist. He ordered PFT and sleep apnea study. As of the morning of June 22,2022 I was emphatically cleared of COPD and any interstitial lung disease by two different pulmonologist groups in two different cities with a FEV/FVC .82 again. Further, my yearly ECHO done in early June was normal. Where do I stand?!?!? I have pretty consistent SOB (breathlessness, starving for air, excessive yawning). No cough of note unless I force it (rare), little to no sputum or phlegm, inflamed nasal passages and under control BP and heart rate. When I have the time, I usually run 3-4 miles a night w/o any additive issues. I've begun strength training again. Of note, it seems when I climb stairs my legs get very tired quickly. The NOT KNOWING is really bothering me. Anxiety?!? I’m taking Buspirone. GERD?!? I take Protonix! I’m at a loss. I’m 5’9 and weigh 210 lbs. I’m a pretty muscular guy with some extra weight. Could it be I need to lose a few pounds?!? Diaphragm issue?!? I might be going a little crazy but I feel like it's getting worse. I keep reminding myself that the CT of chest w/ contrast in May and July of '21 and CXR of chest in February of '22 were all completely clear. BTW, I check my O2 sat first thing every morning, it's consistently 97-98. I've noticed it drops under 90 when I'm running but returns just as quickly in the cool down phase within 5-10 minutes. I am not taking any steroids or bronchodilators as of yet. I guess my pulmonologist didn't deem it necessary. Ive just started using the POWERBREATHE apparatus in an effort to strengthen core muscles. Anyone have any other ideas???

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Hi Jay . Was your mom a smoker ? were you around any second hand smoke . What caused her COPD If this was already addressed pardon/ excuse it . All my best to you and your mom .

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@otter2154

I would not assume that you have COPD. It can only be diagnosed through vigorous lung function testing, scans (usually CT) in some cases, and blood testing as rarely COPD can be genetic. I am 57 and developed horrible breathing issues post Covid. I’ve had every imaginable test and we are treating it as asthma and I’ve improved greatly, but very slowly over time. Exercise has helped immensely and you may need to be more patient.

Jump to this post

I also had COVID in early may of this year.
I had a very light case of the virus, but developed breathing problems. After back and forth to urgent care, ER visits and primary, was dx with asthma. Also being treated for panic attacks. The inhaler Albuterol, doesn't seem to help with SOB... Follow up soon with primary and hope to be referred to pulmonologist..

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@debbieg55

I also had COVID in early may of this year.
I had a very light case of the virus, but developed breathing problems. After back and forth to urgent care, ER visits and primary, was dx with asthma. Also being treated for panic attacks. The inhaler Albuterol, doesn't seem to help with SOB... Follow up soon with primary and hope to be referred to pulmonologist..

Jump to this post

You are not alone. I too was diagnosed with asthma after a mild covid case in Nov. 2021. I also have spasms of the diaphragm. Albuterol does help when breathing becomes difficult but, thankfully my need has diminished. I have been in pulmonary rehabilitation, which has been extremely helpful, and am finding that my symptoms have improved over time. I hope you do see a pulmonologist and want you to know that there is hope of improvement.

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