Burning Feet syndrome

How long ago did your SFN start?

My feet are no longer in the bad state they were last year. They get irritated in snug shoes or socks and occasionally have sharp pains. My legs are the main cause of not walking. Today feet vibrated all day. Ohhhh this crazy neuropathy life!

Changes in my body began in 2016 but were misdiagnosed until February of 2019. Mine was a slow steady progression until fall of 2018, then it really kicked in.

I go barefoot all day at home. I am wheelchair bound so I don’t have to worry about injuring my feet. When I do out, I wear fabric style shoes because they fit more loosely than leather.

So sorry. It takes a while to get used to the pain. It’s always there, sometimes very intense but other times bearable. Late mornings are the best time for me. Don’t know why.🤷‍♀️

Hi @skullborous, welcome to Connect. I'm bringing in other members of Connect into this discussion who have talked about burning feet related to a variety of causes. Please meet @jimhd @oldkarl@robertlclark @allegro @bookworm and @johnbishop

Skullborous, how do you relieve the burning feet, if only temporary? What specialists have you seen?

re: burning feet. My pain started as burning feet and progressed to stabbing pain and other pain I can find no words to describe the pain. I have a med pump embedded under the skin on the side of my belly which has Dilaudid (strong pain med) and Bupivicaine (like novacaine) for the Neuropathy I have which specifically is Chronic Ideopathic Demylinating Polyneuropathy. Which basically means Ideopathic - of unknown origin, Demylinating - the Mylin covering on the nerve bundles are dissolving for some reason and Poly - means both sides. My Neurologist I saw said he could do biopsies of the nerve but I have 1 of 4 types of Neurpathies and each are treated the same way - he thought it is most likely to be CIDP mentioned above. I have tried every possible medication the doctors could find and nothing helped except Lyrica. Also, for years Tylenol had no effect on my pain but now it seems to help with my burning pain SO just because you tried something in the past, after a few years try it again - our bodies are always changing and what didn't work, now helps. Good luck to all -

re: burning feet. My pain started as burning feet and progressed to stabbing pain and other pain I can find no words to describe the pain. I have a med pump embedded under the skin on the side of my belly which has Dilaudid (strong pain med) and Bupivicaine (like novacaine) for the Neuropathy I have which specifically is Chronic Ideopathic Demylinating Polyneuropathy. Which basically means Ideopathic - of unknown origin, Demylinating - the Mylin covering on the nerve bundles are dissolving for some reason and Poly - means both sides. My Neurologist I saw said he could do biopsies of the nerve but I have 1 of 4 types of Neurpathies and each are treated the same way - he thought it is most likely to be CIDP mentioned above. I have tried every possible medication the doctors could find and nothing helped except Lyrica. Also, for years Tylenol had no effect on my pain but now it seems to help with my burning pain SO just because you tried something in the past, after a few years try it again - our bodies are always changing and what didn't work, now helps. Good luck to all -

You are a strong woman! I sense that thru your posts. Sharing our stories here really can help others that are new to the torment inside their bodies.