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Burning Feet syndrome

Neuropathy | Last Active: Sep 3, 2023 | Replies (160)

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@lturn9

re: burning feet. My pain started as burning feet and progressed to stabbing pain and other pain I can find no words to describe the pain. I have a med pump embedded under the skin on the side of my belly which has Dilaudid (strong pain med) and Bupivicaine (like novacaine) for the Neuropathy I have which specifically is Chronic Ideopathic Demylinating Polyneuropathy. Which basically means Ideopathic - of unknown origin, Demylinating - the Mylin covering on the nerve bundles are dissolving for some reason and Poly - means both sides. My Neurologist I saw said he could do biopsies of the nerve but I have 1 of 4 types of Neurpathies and each are treated the same way - he thought it is most likely to be CIDP mentioned above. I have tried every possible medication the doctors could find and nothing helped except Lyrica. Also, for years Tylenol had no effect on my pain but now it seems to help with my burning pain SO just because you tried something in the past, after a few years try it again - our bodies are always changing and what didn't work, now helps. Good luck to all -

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Replies to "re: burning feet. My pain started as burning feet and progressed to stabbing pain and other..."

Hello and happy to have you join us. Thank you for sharing your story. The more we learn, the less we feel alone. Be well today.
Rachel

May I ask how you were diagnosed with CIDP?