Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020

In reply to @darlingtondoll "How long ago did your SFN start?" + (show)

Changes in my body began in 2016 but were misdiagnosed until February of 2019. Mine was a slow steady progression until fall of 2018, then it really kicked in.

Jane | @darlingtondoll | Feb 6, 2020

In reply to @rwinney "My feet are no longer in the bad state they were last year. They get irritated..." + (show)

I go barefoot all day at home. I am wheelchair bound so I don’t have to worry about injuring my feet. When I do out, I wear fabric style shoes because they fit more loosely than leather.

Jane | @darlingtondoll | Feb 6, 2020

In reply to @rwinney "Changes in my body began in 2016 but were misdiagnosed until February of 2019. Mine was..." + (show)

So sorry. It takes a while to get used to the pain. It’s always there, sometimes very intense but other times bearable. Late mornings are the best time for me. Don’t know why.🤷‍♀️

Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020

In reply to @darlingtondoll "I go barefoot all day at home. I am wheelchair bound so I don’t have to..." + (show)

You are a strong woman! I sense that thru your posts. Sharing our stories here really can help others that are new to the torment inside their bodies.

Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020

In reply to @darlingtondoll "So sorry. It takes a while to get used to the pain. It’s always there, sometimes..." + (show)

Who knows, right?! Mine is between 2-4!

lturn9 | @lturn9 | Feb 6, 2020

In reply to @colleenyoung "Hi @skullborous, welcome to Connect. I'm bringing in other members of Connect into this discussion who..." + (show)

re: burning feet. My pain started as burning feet and progressed to stabbing pain and other pain I can find no words to describe the pain. I have a med pump embedded under the skin on the side of my belly which has Dilaudid (strong pain med) and Bupivicaine (like novacaine) for the Neuropathy I have which specifically is Chronic Ideopathic Demylinating Polyneuropathy. Which basically means Ideopathic - of unknown origin, Demylinating - the Mylin covering on the nerve bundles are dissolving for some reason and Poly - means both sides. My Neurologist I saw said he could do biopsies of the nerve but I have 1 of 4 types of Neurpathies and each are treated the same way - he thought it is most likely to be CIDP mentioned above. I have tried every possible medication the doctors could find and nothing helped except Lyrica. Also, for years Tylenol had no effect on my pain but now it seems to help with my burning pain SO just because you tried something in the past, after a few years try it again - our bodies are always changing and what didn't work, now helps. Good luck to all -

Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020

In reply to @lturn9 "re: burning feet. My pain started as burning feet and progressed to stabbing pain and other..." + (show)

Hello and happy to have you join us. Thank you for sharing your story. The more we learn, the less we feel alone. Be well today.
Rachel

Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020

In reply to @lturn9 "re: burning feet. My pain started as burning feet and progressed to stabbing pain and other..." + (show)

May I ask how you were diagnosed with CIDP?

lioness | @lioness | Feb 6, 2020

@darlingtondoll My thighs are like this Im on gabapentin but my lips are swollen I don't know if this is a side effect of not going to Dr. tomorrow will ask her but if it is what else is there? The ice bag I use on both thighs during day but night is the worse for the burning stabbing pain it wakes me up sheet goes flying off then cold put it back on for awhile . Nights are the worst for this condition for me also .