Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa – Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I’ve not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I’m generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

Liked by hotfooted

@rwinney

Ahhh yes, I too have gone through this. Is yours because of sunburn feelings or just overall irritation? I'm sorry you have to endure it. One of the many examples the disease is so bizarre and unpredictable. My odd feelings and sensations have settled a bit since last year but now jeans are off the table. I wear mostly athletic pants for loosness and comfort. I went through the shorts period too but luckily that has subsided and hopefully it will for you as welI. I have changed out my shoes, socks and clothing to adjust to my needs.More reasons why I refer to SFN as being layered.

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I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years now. They are very cute, so if I have to answer the door, no one would suspect that they are pajamas. From the waist up I look normal. I have a cute top and I wear jewelry and makeup. My hair is always combed and curled. I need to feel as nice as I can for a woman of my age.

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@rwinney

May I ask how you were diagnosed with CIDP?

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This happened back in the late 90's and about all I recall is the Spinal Tap to make sure it wasn't Multiple Sclerosis, and there were lots of blood tests but I think my Neurologist was very good at diagnosing. We also spent lots of time trying different meds and he referred me to an Anesthesiologist to manage my pain. I was also told CIDP is related to Guillain-Barre syndrome. I was told CIDP is mostly pain while G-B Syndrome can also cause muscle loss in the legs. Sorry I can't recall more…

Liked by rwinney

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@lturn9

This happened back in the late 90's and about all I recall is the Spinal Tap to make sure it wasn't Multiple Sclerosis, and there were lots of blood tests but I think my Neurologist was very good at diagnosing. We also spent lots of time trying different meds and he referred me to an Anesthesiologist to manage my pain. I was also told CIDP is related to Guillain-Barre syndrome. I was told CIDP is mostly pain while G-B Syndrome can also cause muscle loss in the legs. Sorry I can't recall more…

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No, this is great information. I was interested if the spinal tap showed positive for immune deficiency or other deciding factors confirmed diagnosis. Im glad no MS was found. Have you ever received plasmapherisis (exchange) or IVIG?

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@darlingtondoll

I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years now. They are very cute, so if I have to answer the door, no one would suspect that they are pajamas. From the waist up I look normal. I have a cute top and I wear jewelry and makeup. My hair is always combed and curled. I need to feel as nice as I can for a woman of my age.

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@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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@darlingtondoll

I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years now. They are very cute, so if I have to answer the door, no one would suspect that they are pajamas. From the waist up I look normal. I have a cute top and I wear jewelry and makeup. My hair is always combed and curled. I need to feel as nice as I can for a woman of my age.

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Atta girl! You are a woman after my own heart. One thing that reeeerally bothers me is that my shoulders and arms don't have the strength to be held up in order to style my hair anymore. Sounds trivial, I know, but that was a big pleasure to me in life. I let it air dry now and wear baseball hats alot. I'm happy enough to just get by washing it through struggle. Makeup….ehhh, very little…enough to cover up age/sun spots! Not worth the pain. Sorry, gentlemen out there…us girls gotta vent! 😊

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@lioness

@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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I don’t remember. I got them on line. Maybe at Amazon???

DCBCA4A5-838F-4454-A71A-77D71797F40E

Liked by lioness

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@lioness

@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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The brand name is Toast and Jammies

Liked by lioness

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@lioness

@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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Amazon has some called Hotouch women’s pajama set. They look cute. I am ordering the lemon set.

Liked by lioness

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@darlingtondoll

I don’t remember. I got them on line. Maybe at Amazon???

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@darlingtondoll Thanks I,LL look on Amazon

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@lioness

@darlingtondoll Thanks I,LL look on Amazon

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I am sorry, I thought this was about neuropathy and have passed on tips not clothes. this is not what I am looking for to talk about.

Liked by rwinney, iceblue

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@maryv449

I am sorry, I thought this was about neuropathy and have passed on tips not clothes. this is not what I am looking for to talk about.

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Hello Mary
Your point is valid and well taken. Perhaps a great suggestion would be to utilize Connect"s "Private Message" option for off topic conversations. No harm, no foul.
Wishing you a pleasant evening.
Rachel

Liked by lioness, iceblue

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I’m not sure if this is neuropathy..I’ve had blood work done and my Ana is positive CRP is high and HLAB27 is high.. So they say lupus and ankle losing spondylitis.. But my feet hv started itching, burning and stinging hurting so bad..any suggestions??Is there anything I can do to easy the pain?

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@acid2come

I’m not sure if this is neuropathy..I’ve had blood work done and my Ana is positive CRP is high and HLAB27 is high.. So they say lupus and ankle losing spondylitis.. But my feet hv started itching, burning and stinging hurting so bad..any suggestions??Is there anything I can do to easy the pain?

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Hello @acid2come, You'll notice we moved your post to this discussion on Burning Feet Syndrome which members share many of your symptoms and may be able to share their experience along with what helps them. You may also be interested in reading through the following discussions that also may be associated with some of your symptoms.

Ankylosing spondylitis, losing feeling in my legs: https://connect.mayoclinic.org/discussion/diagnosed-with-ankylosing-spondylitis/

Undiagnosed and frustrated: RA? Lupus?: https://connect.mayoclinic.org/discussion/hi-im-new-to-the-forum-and-want-to-share-my-journey/

Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/
Based on symptoms of burning pain and redness in the hands and feet, and sometimes the arms, legs, where the flare-ups usually start as an itching sensation, which worsens to pain, — cited from https://www.nhs.uk/conditions/erythromelalgia/

Are you able to share what you have already tried to help with the itching and burning?

Liked by lioness

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@acid2come

I’m not sure if this is neuropathy..I’ve had blood work done and my Ana is positive CRP is high and HLAB27 is high.. So they say lupus and ankle losing spondylitis.. But my feet hv started itching, burning and stinging hurting so bad..any suggestions??Is there anything I can do to easy the pain?

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@acid2come Hi Have you seen a neurologist? I would suspect this is neuropathy .So many people on here have this Also you can talk with a rheumatologist . How,s your breathing? We care her so let us know . Take care

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@lioness

@acid2come Hi Have you seen a neurologist? I would suspect this is neuropathy .So many people on here have this Also you can talk with a rheumatologist . How,s your breathing? We care her so let us know . Take care

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Hello,, breathing is still very labored at times..it’s been one thing after another for me..
I’m trying now to get referred out to UT Southwestern.. I was told by a doctor that I’m a medical mystery (I don’t want that title)..but they don’t want to treat me for the autoimmune disorder because of my lungs or my lungs because of the autoimmune disorder..
I really wish someone could tell me what to do or where to go!! Not from one doctor to another.. This can’t just be happening to me..
If I go to Er they say go to your doctor..Then you call doctors office they say if this is a true emergency call 911.. In the meantime I’m in pain that’s uncontrollable and my breathing is very tiring…Now they told me I’m going to be red flagged because I see to many doctors..But I hvnt ask for pain medication.. I’ve just asked them to figure out what is going on and fix it..
If I cld go to Mayo will they address all of my medical problems or just focus on one??

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