1. < Neuropathy

Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

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lioness | @lioness | Feb 5, 2020
In reply to @rwinney "Muscles have weakened making it difficult to walk at a normal pace or more than 10..." + (show)
@rwinney

Muscles have weakened making it difficult to walk at a normal pace or more than 10 paces without resting. Use of muscle (in my case full body) sends me into flares which consist of burning, aching, throbbing, stabbing , spasms, twitching and pain. Somedays are worse than others of course but I have known and felt my body dying a slow death for over a year now. I use wheel chairs for distance, mats for cushion, alot of heat packing. Made adjustments to cabinets for things to be on low shelf bc I can't reach or lift arms without paying the price. I do stairs very slow with breaks or crawling and plan my trips within my home as to prevent too many up and down the stairs. Work smarter not harder! I say this with ease now... but, look back through my earlier posts and you may find some panic in my voice. Scary stuff. I feel my decline each year and am in fear of where it will end. We are all so very different so dont judge you by me, but it helps to hear what may be the truth for some.

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@rwinney So sorry you have so much pain.Believe this or not I have fibromyalgia what has helped me more then Lyrica is Boron the mineral I've been on it now for 3weeks and have less pain then I did before .As you probably know our body needs minerals as it can't make them so I use all kinds from Calicium to Boron Since I added this I've not had the pain I did before Have you.looked into this? Might help do some research on it

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 5, 2020
In reply to @lioness "@rwinney So sorry you have so much pain.Believe this or not I have fibromyalgia what has..." + (show)
@lioness

@rwinney So sorry you have so much pain.Believe this or not I have fibromyalgia what has helped me more then Lyrica is Boron the mineral I've been on it now for 3weeks and have less pain then I did before .As you probably know our body needs minerals as it can't make them so I use all kinds from Calicium to Boron Since I added this I've not had the pain I did before Have you.looked into this? Might help do some research on it

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Hey there - no, I have not even heard of Boron but am always up for some good research. Certainly glad to hear you're having good results. I'll check it out. Thank you!

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1 reply
lioness | @lioness | Feb 5, 2020
In reply to @rwinney "Hey there - no, I have not even heard of Boron but am always up for..." + (show)
@rwinney

Hey there - no, I have not even heard of Boron but am always up for some good research. Certainly glad to hear you're having good results. I'll check it out. Thank you!

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@rwinney Anything that helps.Have you tried putting your feet on a ice bag then massage themb fore bed for sleep

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 5, 2020
In reply to @lioness "@rwinney Anything that helps.Have you tried putting your feet on a ice bag then massage themb..." + (show)
@lioness

@rwinney Anything that helps.Have you tried putting your feet on a ice bag then massage themb fore bed for sleep

Jump to this post

My feet are no longer in the bad state they were last year. They get irritated in snug shoes or socks and occasionally have sharp pains. My legs are the main cause of not walking. Today feet vibrated all day. Ohhhh this crazy neuropathy life!

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2 replies
Jane | @darlingtondoll | Feb 5, 2020
In reply to @rwinney "My feet are no longer in the bad state they were last year. They get irritated..." + (show)
@rwinney

My feet are no longer in the bad state they were last year. They get irritated in snug shoes or socks and occasionally have sharp pains. My legs are the main cause of not walking. Today feet vibrated all day. Ohhhh this crazy neuropathy life!

Jump to this post

My legs can’t stand to have anything touching them. I have to wear short shorts in the house every day. Winter or summer, I wear shorts. The bed sheets and blankets irritate my legs and cause a burning pain. By midnight, I wake up and most of the covers are off of me. When I go out, a full skirt helps more than slacks. If I have to wear slacks, I endure the pain.

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3 replies
maryv449 | @maryv449 | Feb 5, 2020
In reply to @darlingtondoll "My legs can’t stand to have anything touching them. I have to wear short shorts in..." + (show)
@darlingtondoll

My legs can’t stand to have anything touching them. I have to wear short shorts in the house every day. Winter or summer, I wear shorts. The bed sheets and blankets irritate my legs and cause a burning pain. By midnight, I wake up and most of the covers are off of me. When I go out, a full skirt helps more than slacks. If I have to wear slacks, I endure the pain.

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Please give the cold laser light therapy device a try(Amazon from $105-160, I bought the one for $129) The chiropractor was doing this for me, but, my co pays were costing $50 a visit, 3 times a week, now I do them at home. I do 10 minutes on each foot ( I put the device inside my flip flop with the handle in first and the unit facing up. It really helps take the pain away and my feet are less sensitive. I know the pain you are experiencing because me and my 2 sisters in law had the same thing happening. I also used to use a cream (Amazon) called Neuropathy and that helped too before I found the laser. I did the research before I went to the chiropractor. And if you do not like the laser or you don't feel that it is worth the money, you can send it back. I hope that this will help you.

REPLY
Jane | @darlingtondoll | Feb 5, 2020
In reply to @rwinney "Muscles have weakened making it difficult to walk at a normal pace or more than 10..." + (show)
@rwinney

Muscles have weakened making it difficult to walk at a normal pace or more than 10 paces without resting. Use of muscle (in my case full body) sends me into flares which consist of burning, aching, throbbing, stabbing , spasms, twitching and pain. Somedays are worse than others of course but I have known and felt my body dying a slow death for over a year now. I use wheel chairs for distance, mats for cushion, alot of heat packing. Made adjustments to cabinets for things to be on low shelf bc I can't reach or lift arms without paying the price. I do stairs very slow with breaks or crawling and plan my trips within my home as to prevent too many up and down the stairs. Work smarter not harder! I say this with ease now... but, look back through my earlier posts and you may find some panic in my voice. Scary stuff. I feel my decline each year and am in fear of where it will end. We are all so very different so dont judge you by me, but it helps to hear what may be the truth for some.

Jump to this post

How long ago did your SFN start?

REPLY
1 reply
Mentor
Jim, Volunteer Mentor | @jimhd | Feb 5, 2020
In reply to @darlingtondoll "My legs can’t stand to have anything touching them. I have to wear short shorts in..." + (show)
@darlingtondoll

My legs can’t stand to have anything touching them. I have to wear short shorts in the house every day. Winter or summer, I wear shorts. The bed sheets and blankets irritate my legs and cause a burning pain. By midnight, I wake up and most of the covers are off of me. When I go out, a full skirt helps more than slacks. If I have to wear slacks, I endure the pain.

Jump to this post

@darlingtondoll

I have a blanket lifter that holds the bedding off my feet for the same reason. I've had to start taking my socks off when I sit in my recliner because it flares up my burning feet. It began with the balls of my feet, then moved to my toes, and most recently it's up to including my ankles. I'm sorry you're feeling that pain in your legs. It's hard to imagine what that feels like.

Sometimes when I put lidocaine cream on my feet they hurt enough less so I can go to sleep. I found Uber Numb on Amazon for a tenth of the one my neurologist prescribed. Medicare removed it from their list of covered meds, so I wouldn't be able to afford the brand name product.

I wonder if there's a numbing spray. I remember using it in the hospital - I think it was called Hurricane. It really did the job.

It sounds like you're finding ways to make it through the pain. We become creative and have to think outside the box to get relief.

Jim

REPLY
1 reply
Jane | @darlingtondoll | Feb 6, 2020
In reply to @jimhd "@darlingtondoll I have a blanket lifter that holds the bedding off my feet for the same..." + (show)
@jimhd

@darlingtondoll

I have a blanket lifter that holds the bedding off my feet for the same reason. I've had to start taking my socks off when I sit in my recliner because it flares up my burning feet. It began with the balls of my feet, then moved to my toes, and most recently it's up to including my ankles. I'm sorry you're feeling that pain in your legs. It's hard to imagine what that feels like.

Sometimes when I put lidocaine cream on my feet they hurt enough less so I can go to sleep. I found Uber Numb on Amazon for a tenth of the one my neurologist prescribed. Medicare removed it from their list of covered meds, so I wouldn't be able to afford the brand name product.

I wonder if there's a numbing spray. I remember using it in the hospital - I think it was called Hurricane. It really did the job.

It sounds like you're finding ways to make it through the pain. We become creative and have to think outside the box to get relief.

Jim

Jump to this post

I use Penetrex at night. I’m waiting for my shipment of Tiger Balm that was mentioned on this site a couple of weeks ago.

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020
In reply to @darlingtondoll "My legs can’t stand to have anything touching them. I have to wear short shorts in..." + (show)
@darlingtondoll

My legs can’t stand to have anything touching them. I have to wear short shorts in the house every day. Winter or summer, I wear shorts. The bed sheets and blankets irritate my legs and cause a burning pain. By midnight, I wake up and most of the covers are off of me. When I go out, a full skirt helps more than slacks. If I have to wear slacks, I endure the pain.

Jump to this post

Ahhh yes, I too have gone through this. Is yours because of sunburn feelings or just overall irritation? I'm sorry you have to endure it. One of the many examples the disease is so bizarre and unpredictable. My odd feelings and sensations have settled a bit since last year but now jeans are off the table. I wear mostly athletic pants for loosness and comfort. I went through the shorts period too but luckily that has subsided and hopefully it will for you as welI. I have changed out my shoes, socks and clothing to adjust to my needs.More reasons why I refer to SFN as being layered.

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