Living with Neuropathy - Welcome to the group

Totally agree. I find that the only way I can cope with Motor Neuropathy, which I have had for about eight years, is to change my mindset. I try and 'switch off' from it, get my mind busy with other things, and accept that sometimes, I beat the Tiger, and sometimes, the Tiger wins! I am also watching a dear and much loved relative battling with stage four cancer, and realise that I am grateful not to have to cope with the horrors that they suffer.

@fala, I almost burst out laughing when read your "signature lines"! I too answer to multiple names - Ed, John, Hey you and a few other ones I can't put in writing 😂

Thank you for a ray of sunshine in the cloudy world of neuropathy!

Perhaps call your insurance company and ask why the medicine is not on their formulary.

mbeeson5 , I am 82 I had BAD neuropathy with my LGMDr23, Gelsolin, Diabetes II, cancers everywhere. So I had a simple exome sequencing done by a small group of genetics labs. They all agreed on one thing. I have a gene that makes the body resist full use of turmeric. So I now take about 1/4 teaspoon in a cup of warm water every morning; and I have had only a couple spells of Neuropathy in two years. Just good old kitchen turmeric powder, first thing in the morning. oldkarl

Has anyone else ever had Horizant prices compared to that.
What could I ask for that would serve just as we!!?

I loved reading that turmeric just about banished your neuropathic pain, oldkarl!

I wrote elsewhere about how golden milk, the heated combination of turmeric, ginger, Ceylon cinnamon, and pepper helped lower my husband’s blood pressure. It also eased nerve pain in his neck and leg from too much driving. He now has it daily.

I cannot tolerate these ingredients, otherwise I’d drink it for my neuropathic pain and other conditions.

I know the piperine in the black pepper greatly potentiates the curcumin in the turmeric and adding a bit of healthy fat makes it more bioavailable, as it is fat soluble. Heating aids delivery as well.

Since curcumin and these other ingredients seem to act as powerful anti inflammatory and perhaps even blood thinning agents, I strongly suggest that folks check with their docs about interactions with other meds and supplements.

I have small fiber neuropathy, and I have been losing my hair for five years. It’s almost all gone now. All I can find out is that the hair loss is a result of deoxygenated blood. I have never found any treatment options. It’s very emotionally challenging.

Know what your are going through. I am also losing my hair. Just started.

I also started loosing my hair and it has gotten very very thin. I am very depressed over it.

I'm not familiar with small Fibre neuropathy, would you please explain it.