Living with Neuropathy - Welcome to the group

You could call your insurance company and ask them.

Wow, what a great website!
Thank you so much for sending that site to me. I have a multitude of
ailments, but I also have a pretty good sense of humor
, so I can laugh at myself instead of crying (about half the time)
. I am impressed with some of the exercises that I have also been doing
with my physical therapist. It just reassures me that they are very valuable
and that I need to keep doing them on a regular basis.
I think that site is going to be my new B_I_B_L_E!!
Thank you again, that was very nice of you to take the time.
yes, hoping this Doctor was worth waiting for.
Best wishes,
Laura
Gail
Fala
Hey you
I answer to multiple names....

I take Gabapentin and that seem to have helped over the years compared to onset. However, I find the source of my pain often comes from heat and cold extremes, even hot/cold water and can last for hours. Last weekend I had a wedding and madd sure I took my lukewarm shower hours before so I had some recovery time. I also think once at the wedding and reception, the business of it kept my mind preoccupied to where afterward I realized how well I had been. I know the pain is very real, but I’m working on mind exercises/meditation to help.

Totally agree. I find that the only way I can cope with Motor Neuropathy, which I have had for about eight years, is to change my mindset. I try and 'switch off' from it, get my mind busy with other things, and accept that sometimes, I beat the Tiger, and sometimes, the Tiger wins! I am also watching a dear and much loved relative battling with stage four cancer, and realise that I am grateful not to have to cope with the horrors that they suffer.

@fala, I almost burst out laughing when read your "signature lines"! I too answer to multiple names - Ed, John, Hey you and a few other ones I can't put in writing 😂

Thank you for a ray of sunshine in the cloudy world of neuropathy!

Perhaps call your insurance company and ask why the medicine is not on their formulary.

mbeeson5 , I am 82 I had BAD neuropathy with my LGMDr23, Gelsolin, Diabetes II, cancers everywhere. So I had a simple exome sequencing done by a small group of genetics labs. They all agreed on one thing. I have a gene that makes the body resist full use of turmeric. So I now take about 1/4 teaspoon in a cup of warm water every morning; and I have had only a couple spells of Neuropathy in two years. Just good old kitchen turmeric powder, first thing in the morning. oldkarl

Has anyone else ever had Horizant prices compared to that.
What could I ask for that would serve just as we!!?

I loved reading that turmeric just about banished your neuropathic pain, oldkarl!

I wrote elsewhere about how golden milk, the heated combination of turmeric, ginger, Ceylon cinnamon, and pepper helped lower my husband’s blood pressure. It also eased nerve pain in his neck and leg from too much driving. He now has it daily.

I cannot tolerate these ingredients, otherwise I’d drink it for my neuropathic pain and other conditions.

I know the piperine in the black pepper greatly potentiates the curcumin in the turmeric and adding a bit of healthy fat makes it more bioavailable, as it is fat soluble. Heating aids delivery as well.

Since curcumin and these other ingredients seem to act as powerful anti inflammatory and perhaps even blood thinning agents, I strongly suggest that folks check with their docs about interactions with other meds and supplements.

I have small fiber neuropathy, and I have been losing my hair for five years. It’s almost all gone now. All I can find out is that the hair loss is a result of deoxygenated blood. I have never found any treatment options. It’s very emotionally challenging.