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I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013
Replies to "I was diagnosed with IPF 16 years ago. Since then I have only been taking acid..."
I have that horrible cough. Sometimes i feel like i am chocking and will throw up. For me its worse at night laying in bed. I am usinghydrocodone/chlorphen suspension at bedtinem and its helping. Its worth a try if your doctor agrees.
Hi @sophiasmom,
Let me be the first to welcome you to the pulmonary fibrosis group. I read in another message that you were diagnosed about 2 years ago. Can you tell us a bit more about yourself? What symptoms along with coughing do you find the most challenging? Are you on oxygen?
Hi Coĺeen, i have trouble with walking any distance,have trouble losing my breath. The tiredness really gets to me. I am not on oxygen yet. My levels drop into the high eighties when i make my bed or run a vaccum etc. If i rest they come right back up to 95 or 96. I' m 65 yrs old and live in Florida. I will be flying next week to N.H. and I'm a little nervous about oxygen level. I haven't flown since i was diagnosed.
Airplanes are pressurized to around 8000 ft. not sea level. Be sure your doctor knows you are flying. The air lines are really strict with people flying with oxygen equipment.
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I REALLY wish I had been told 16 years ago that I had IPF, instead of 5 months ago!! If it was 16 years after my discovery, I would only be 104, a rather ripe old age, right? 😉 I'm still symptoms free as to cough and winded. But I think about my condition during the day, altho there is as yet nothing to do about it.