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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@inspiration

I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013

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Replies to "I was diagnosed with IPF 16 years ago. Since then I have only been taking acid..."

Hi @inspiration, I moved your post to this ongoing discussion about pulmonary fibrosis where you can connect with other members, including @powderpuf @jvivian and @pd02. What makes you reluctant about Esbriet? Have you asked your doctor about other options?

My husband tolerated Esbriet very well, minimal side effects. Continued progression of IPF but it may have gone much quicker without Esbriet?

WOW !! IPF for 16 years. I am interested in knowing what are the acid reflux pills that you take. I take Perfinidone through a research program reluctantly but that is about the only med available.

Hello. I was diagnosed ipf 5 yrs ago. when Esbriet became available, in Mar 2015. started 270mg tabs 9 a day received immediate results and breathk tests show improvement from last yr and recently. I use 5 liters pulse O2 full time 24-7 Esbriet has worked well for me Also, I should say, that 16 yrs ago I was diagnosed idiopathic hypersensitive pneumoñitis at Mayo Clinic Scottsdale I believe the ipf evolved from this 10 yrs later and also associated with acid reflux.

Welcome to Connect, @oliver22.
Thank you for sharing your experience on Esbriet. A lot of people seem to agree that the concept of IPF evolved over the last 10 years. You briefly mentioned about acid reflux, would you be able share your experience on acid reflux medications with others too?

hi, i have been on Esbriet 18 months. very pleased with results i also use O2 24-7 some side effects but do-able,recently reduced to 6 caps aday 270mg.breathing test have improved! go for it

dear @inspiration
what is the relation between acid reflux pills which you used and IPF?
do you have gatsrIicproblems causing IPF?

@inpiration
Could you please tel me why you use acid reflex pills?
do you have GERD or Digestive problems?
and what the relation between PF and acid reflex pills?

My doctor and I were trying to figure out why I cough so often and violently with my IPF. The acid reflux avenue was a shot in the dark hoping "it" was the cause of my coughing. Nah, that was a bust. I didn't know that a person "could have acid reflux and not know it though. On to more trial and error on my coughing, hopefully we'll run across something that helps.

I use an over the counter drug to control the acid reflux. prescription drugs have a lot of side effects which i dont think it is worth the risk to take when the over the counter drugs work fine.