Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@denverduffer22

Does anyone know if statins can cause neuropathy?

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Hi @denverduffer22, Welcome to Connect. There is quite a lot of information available pointing to statins causing or making peripheral neuropathy worse. Here are some of the sites I've found.

The implications of statin induced peripheral neuropathy
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3103035/
Statin Neuropathy Masquerading as Diabetic Autoimmune Polyneuropathy
http://care.diabetesjournals.org/content/28/8/2082.1
Medication Induced Neuropathy
https://link.springer.com/article/10.1007/s11910-003-0043-8

You may also be interested in reading through a few other discussions on the topic:
-- Connection of statins, rosvastatin, with neuropathy of feet?: https://connect.mayoclinic.org/discussion/connection-of-statins-rosvastatin-with-neuropathy-of-feet/
-- Statins and peripheral neuropathy: https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/

Have you been diagnosed with neuropathy?

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@johnbishop

Hi @macirish, Welcome to Connect. It sounds like you've looked into all the alternatives so that you could keep swimming for exercise. I'm wondering if you have seen this article that mentions chlorine drying out the skin -- Why Do I Get Dry Skin After Swimming?
No amount of lotion seems to cure dry, itchy skin after swimming, especially in the winter months. What can you do?: https://www.triathlete.com/gear/swim/why-do-i-get-dry-skin-after-swimming/

Have you tried showing after you swim and using moisturizing, liquid body soap to remove the chlorine?

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To John and Neuropathy friends-
The Washington Post has an excellent article, dated 04/30/2022, about new research on chronic pain. Under the heading “Health”, next heading”Perspectives”, article title “Chronic Pain is terrible, A new way of understanding it may help”. Reporter is Haiden Warraich.
I’m able to share articles as a subscriber, but I can’t figure out how to do it to our support page. Hopefully people can see it at their Library. Thanks for all you do to keep information flowing.

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@centre

To John and Neuropathy friends-
The Washington Post has an excellent article, dated 04/30/2022, about new research on chronic pain. Under the heading “Health”, next heading”Perspectives”, article title “Chronic Pain is terrible, A new way of understanding it may help”. Reporter is Haiden Warraich.
I’m able to share articles as a subscriber, but I can’t figure out how to do it to our support page. Hopefully people can see it at their Library. Thanks for all you do to keep information flowing.

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Here's the link to the article you mentioned -- https://www.washingtonpost.com/health/2022/04/30/chronic-pain-relief/

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@johnbishop

Did your doctor suggest any treatments for the pain? There are some complementary and integrative treatments listed on the Foundation for Peripheral Neuropathy site you might find helpful here - https://www.foundationforpn.org/treatments/

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Yes, Amitriptyline and pcm... it didn't really help much

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I was diagnosed with periferal neuropathy in February 2022. Prescribed gabapentin gave me brain fog and didn't seem to help the pins and needles pain and numbness. I have not seen a neurologist yet. Can anyone give me advice as to wether I should see a neurologist. My gp doctor said it wouldn't do me any good and that a neurologist couldn't help me. What should I do?

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@ajnos

I was diagnosed with periferal neuropathy in February 2022. Prescribed gabapentin gave me brain fog and didn't seem to help the pins and needles pain and numbness. I have not seen a neurologist yet. Can anyone give me advice as to wether I should see a neurologist. My gp doctor said it wouldn't do me any good and that a neurologist couldn't help me. What should I do?

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@ajnos Hello. I’m sorry to hear of your diagnosis. May I ask how your doctor diagnosed you? Was it based on symptoms, bloodwork, biopsy? I would see a neurologist. In many cases, neuropathy is the result of an underlying cause. Did your doctor diagnose an underlying cause? Diabetes is a common one although there are many! If there is an underlying cause, treating that may help the neuropathy. I had the same experience that you described with gabapentin. There are a few other medications that can be tried. Cymbalta, Amitriptyline, Lyrica. I had a very bad experience with Lyrica but everyone is different. I think a neurologist can help you dig deeper and determine next steps.

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@boltz7555

@ajnos Hello. I’m sorry to hear of your diagnosis. May I ask how your doctor diagnosed you? Was it based on symptoms, bloodwork, biopsy? I would see a neurologist. In many cases, neuropathy is the result of an underlying cause. Did your doctor diagnose an underlying cause? Diabetes is a common one although there are many! If there is an underlying cause, treating that may help the neuropathy. I had the same experience that you described with gabapentin. There are a few other medications that can be tried. Cymbalta, Amitriptyline, Lyrica. I had a very bad experience with Lyrica but everyone is different. I think a neurologist can help you dig deeper and determine next steps.

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Hi Boltz - I had a nerve test done after my GP doctor has already diagnosed it as Itiopathic Periferal Neuropathy, and the nerve test came out positive for IPN. I also had a A1C Blood test which came out 4.6 negative for diabeties. So I don't know how I contracted it. When I went back to my GP doctor to get a referral for a Neuroligist, he blatently said there is no sense in going to a Neuroligist as they couldn't help me. So now I am looking for another GP that is more understanding and in tune with my condition. I agree I need to find a Neurologist but have some hoops go through to get there as I find out that all neurologists need the referral.
I find that walking and exercise is the best antidote for my condition. So far that is working okay...of course I worry about what is next...
Thanks for responding.
Airiel

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Does anyone know anything about an electrical treatment for peripheral neuropathy , as vigorously advertised on TV, called “Sanexas” ? When I googled it, Mayo Clinic popped up……is it real?

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@sjspri

Does anyone know anything about an electrical treatment for peripheral neuropathy , as vigorously advertised on TV, called “Sanexas” ? When I googled it, Mayo Clinic popped up……is it real?

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Welcome @sjspri, Yes, Sanexas is a real treatment. There is another discussion that you may want to read through and learn what others have shared.

Does anybody have experience with SANEXAS for neuropathy?: https://connect.mayoclinic.org/discussion/sanexas/

Have you been diagnosed with neuropathy?

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My name is Rachel and I live in Saratoga Ca.I have written before but now like to update my life, pain management ,care of a 98 year old husband and my age of 93 with some of my health issues.I had a fusion and laminectomy on my spine about 15 years ago .About ten years after my surgery noticed difficulty stand-in up after sitting for a restaurant meal.I was dx with neuropathy plus osteoporosis and osteoarthritis.Took medication for my osteoporosis for years with pills later injections till I developed side effects.A year ago had surgery on a bulging disc on my back which was successful.I have had many epidurals for pain with no results,Now on Gabapentin 900mg daily which is helping with my neuropathy.I find a pillow under my legs seem to help at night I also take CBD drops on a low dosage at night.I am so glad I ended up seeing a neurologist .After blood work he suggested lowering the high dose of Gabapentin that was suggested by my dr after this last back surgery. My dose now seems to be right and I am less tired and have better balance.I am tx for arthritis pain in both knees.With cortisone shots for several years till my last injection that cause severe knee pain for two weeks.Now I have been told no more cortisone shots but getting another injection.Taking B12 daily also suggested by my neurologist .I will be starting a class ofTranscedental Meditation .You tub has an introduction give by Bob Roth and I suggest it is good for all of us.I know it will help me with daily stress issues.I hope it will help others too.

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