Does anybody have experience with SANEXAS for neuropathy?

Posted by knucklehead4352 @knucklehead4352, Jan 6, 2021

Does anybody have experience with SANEXAS. It is touted as Electric Cell Signaling Treatment especially for peripheral neuropathy.

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Feb 10, 2022

In reply to @susan1542 "Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement..." + (show)

Welcome @susan1542, It's really great news to hear that the Sanexas treatments are helping you after treatment number 6. It's also good to hear that Medicare is paying for it. Can you come back and give us another update after a few months to let us know how you are doing with the treatments?

duquer | @duquer | Feb 10, 2022

In reply to @duquer "I am really glad that you were able to find Sanexas and that You have found..." + (show)

I shared your comment with Sanexas, and this was their reply

That’s terrific. Do you think this patient would allow us to share their testimonial? I would need to get permission in order to comply with HIPAA guidelines. Let me know and if so how I can follow up directly with him/her.
Thanks

They would need to contact you directly

twobrooklyn | @twobrooklyn | Feb 10, 2022

I did 19 treatments, did nothing for me.?

wwenerowicz | @wwenerowicz | Feb 10, 2022

In reply to @duquer "I shared your comment with Sanexas, and this was their reply That’s terrific. Do you think..." + (show)

You do not need HIPPA clearance for this to happen. This is a common excuse for being lazy or not actually knowing what HIPPA is actually about

bwin11 | @bwin11 | Feb 11, 2022

In reply to @susan1542 "Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement..." + (show)

Will you share what your symptoms are/were>

bigron | @bigron | Feb 11, 2022

In reply to @susan1542 "I’m getting Sanexas treatments in Colorado Springs and Medicare is paying for it." + (show)

That's great. Where are you going?

greenacres | @greenacres | Feb 12, 2022

In reply to @bwin11 "Will you share what your symptoms are/were>" + (show)

@susan1542 Thank you for sharing your positive results. It would be very helpful to know what your symptoms are or were and what type of neuropathy you had (pain, numbness, etc.)

daschicago | @daschicago | Feb 22, 2022

In reply to @amandajro "Hello @knucklehead4352 and welcome to Mayo Clinic Connect. I understand you are interested in hearing from..." + (show)

I too have severe, chronic pn in both legs from knees down, esp the feet.
So much so that I cannot walk any longer.
I’m desperate to learn if this is a legitimate treatment modality, as there are lots of folks that prey on this pt population with $ scams because we are so desperate.
So please, anyone, is there any objective outcome data on this treatment? Any pt reviews after having the treatments?

John, Volunteer Mentor | @johnbishop | Feb 23, 2022

In reply to @daschicago "I too have severe, chronic pn in both legs from knees down, esp the feet. So..." + (show)

Hello @daschicago, Welcome to Connect. @duquer shared his experience with SANEXAS earlier in this discussion here https://connect.mayoclinic.org/comment/645606/. You might find my reply to his post interesting if not helpful.

You are wise to do your own research. There are many less than honest treatment providers when it comes to neuropathy pain and suffering. The Foundation for Peripheral Neuropathy has some complementary and integrative treatments for PN on their site here - https://www.foundationforpn.org/treatments/

Are you able to share any treatments you have tried or ones that helped a little?

cathyl2700 | @cathyl2700 | Apr 9, 2022

Yes, I have had 48 treatments with a 90% success rate. I have my left hand with neuropathy from a stroke (no pain but no feeling and lots of tingling. I found a professional in a neighboring town that did SANEXAS PROTOCOL. They tested me and medicare payed for it. They inject a vitamin solution under the skin and connect the machine to the pads. After 24 sessions I got back about 50 % of the feeling. Then I signed up for a second 24 sessions and now I have 90% of my feeling back. If I didn't have to move out of state I would of continued.