Does anybody have experience with SANEXAS for neuropathy?

Posted by knucklehead4352 @knucklehead4352, Jan 6, 2021

Does anybody have experience with SANEXAS. It is touted as Electric Cell Signaling Treatment especially for peripheral neuropathy.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@duquer

My Journey to Sanexas
by Ralph Duquette

Hello there, and thanks for allowing me to share my story with you all. I am sorry that it is a little bit long, but I needed to let you know the long road I was on.

Every year since I was born, my birthday was a special day for me. As a child, and as I grew to be 60 years old, it was always my special day off!  
However, on my 61st birthday, what started out as my special day, turned into the realization that my 41 year career as a professional health care worker was over and my next career would be as a “professional patient.”  

My doctor diagnosed me (on my birthday) with severe AML leukemia and that there was a bed waiting for me 90 miles away in Boston, Massachusetts.  I was heading toward the most challenging journey of my life. Within a month later, following the first round of chemotherapy, I was found unconscious, coded, suffering severe neurological defects, and I was placed on a ventilator for three days. It would take another two months for me in a Rehabilitation Center for me to then come home with an expiration date of less than six months, which by the way was extended twice!

I finally arrived home, 3 months later in an ambulance and dumped in my bed.  I found myself wearing diapers, a feeding tube inserted in my stomach, taking 16 different medications, and needing 24/7 care.  My arms and legs were totally useless.  To be honest, I knew that I was heading towards the end of the line and I couldn’t wait to get there.  I had visiting nurses, therapists, clinicians, social workers checking up on me and the list went on and on. During the year 2013, I was rushed to the hospital eight times. I was encouraged to go to hospice several times, however, I figured if I was going to check out, I was going to check out at home!

Fast forward 2 1/2 years later and the doctors, who were sure the leukemia would come back, were all wondering why it didn’t!  

This was me then!
In October 2015, my daughter got married. 
Please see the video. https://youtu.be/WUL-q2t_tZQ

It had been 10 months since my daughter's wedding video went viral. During that time I continued to be in and out of hospitals and rehab facilities and tried all kinds of different medications with their usual side effects.  I finally got to see the top neurologist in my area in July 2016, and after having all kinds of lab tests, x-rays, and an EMG, I finally got a formal diagnosis called “severe axonal sensorimotor polyneuropathy.”  If you ever have had  Novocaine for dental work, imagine your whole body feeling that way permanently!  She also informed me that “there was no cure, just medication for the numerous symptoms but I would have to live the rest of my life with it.”  The neuropathy affected my balance, my ability to feel anything, and the whole experience left me with off and on tremors. I was falling at least twice a month.  I needed help entering and leaving a car.  My family purchased a wheelchair adaptable van that could carry my battery powered wheelchair because of the need to use a wheelchair in open spaces.

From that point forward, it was just me and my iPad. Every day while lying in my bed I would search the Internet for all of the information about my neuropathy. I found several clinics throughout the United States that offered life changing stem cell therapy or medications for my condition. I would spend hours each day talking to different clinics, hospitals, doctors offices throughout the country.  I sent countless copies of my medical records out to these places in hopes that someone could help me. I even went to see a doctor whose practice is in a dark windowless basement of a commercial building in New Hampshire, and he only takes cash!  Now that’s not fishy at all!  I tried different drugs, gabapentin, B12, celexa, Nortriptyline, Lyrica and also several over-the-counter neuropathy drugs.  Nothing worked, and the side effects were unbearable. I even tried acupuncture during the summer, the side effect?, I slept through them!

Since I am not able to hold a newspaper, I read the local paper on my iPad, and one day in January, 2021, I spotted a small ad from a brand new business in WIndham, Maine called Nulife Wellness, that appeared to be a letter written just for me and my condition. I hurriedly called the phone number and made an appointment with Sara Doyon, a family nurse practitioner, and received a half hour treatment from a machine that looked like a big TENS unit, but it is much more than that! A TENS machine is like a X-ray and RST SANEXAS neoGEN device is like getting a MRI. More powerful frequencies and over 20 different treatment programs designed for acute and chronic painful conditions.

It had lots of electrodes that sent electrical impulses through the skin with the goal of regrowing nerves.  It was not at all painful, just a soothing electrical massage to my legs, however the cold and snow of winter delayed my continuation of treatments.

I restarted treatments by going twice a week through March and April.  During that time I experienced no results.  I was desperate and began to think that nothing could help me, and that it was time to permanently discontinue them. On the last Thursday of April, I went home thinking that this would be my last treatment.

I had made my decision that when I awoke the following morning I would call and cancel further treatments.  That night while asleep following a day treatment I was awakened by the extreme discomfort and heaviness of both my legs. My legs felt like I had run a 26 mile marathon. It was then that I realized why they felt that way.  I was experiencing nerve regrowth!  The treatment finally woke up my legs!  I was actually feeling pain for the first time in 8 years!  As much as they hurt real bad, I knew why! It was at that point that I realized I was on to something. In the morning I called Sara and told her the good news, and I continued my treatments with her right through the month of June.  

Due to the fact that I was showing signs of improvement, Sara called the company that manufactures the machine to let them know how well I was progressing.  The name of the company is RST-SENAXAS which is located in Las Vegas. In July, I decided to make a few appointments for further treatments with them during the middle of August. Since then, there have been several more improvements in my regaining mobility.  As I write this, it’s been five months since my last fall.

I have suffered with polyneuropathy for 9 years and (I've been) trying to be more independent.  I want to make it real clear that this machine is by far the best treatment I have undertaken that reduces the symptoms of absolute stiffness and increases sensations in my limbs.  It is not yet a cure, but a real treatment!  We have to keep in mind though, nerve regrowth is a process that does not occur overnight, it takes time! With me it took over 15 treatments before experiencing it. 

The road to Sanexas has taken me nine long years and I have this tiny feeling get it?, that my future is going to be a lot brighter!

PS: comments are always welcome🤗

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Wow – you have quite a bit of similarities with me. I am going to look this therapy up to see if it’s in my area of NC. Thanks so much for sharing!

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@dbeshears1

Wow – you have quite a bit of similarities with me. I am going to look this therapy up to see if it’s in my area of NC. Thanks so much for sharing!

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For more information about the Sanexas treatments, and to find the nearest Sanexas treatment center, You may call them at 702-315-2999 or 866-SANEXAS. (866-726-3927), and ask to talk to Debbie Hansen. Remember Everyone is different and treatment protocols may vary some due to their length of illness and damage to nerves. They are are there to help answer any your questions or concerns. Please let them know that I gave you this information so that your questions will be answered promptly. For the record, I have never been employed nor am I receiving any financial compensation from Sanexas. Wishing you all the very best for the upcoming holiday season.

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I participated in a Sanexas trial a year ago. It was run by the neurology group I go to. Twice a week for 12 weeks. First, two bad car accidents, brain injury, and multiple spine, shoulder, elbow, knee and abdominal surgeries, pain, numbness, tingling, etc. Fused L3-S1 and C3-C7. Arachnoid adhesions present at L4-5. Progressive muscle spasms, pain, hot/cold, numbness with nearly no sensation in feet. So, bad, and no known successful treatment for arachnoiditis. Just narcotics and hope we don't kill ourselves. Went into trial not expecting any results but spasms stopped completely three weeks into treatment. End of 12 weeks had about 80% improvement in symptoms, but the most measurable result was going from four 10/325 oxycodone/day to two 5/325. Ended trial early January last year. Results held until June, so almost 6 months. Gradual decline since to about 60% of where I was when I started treatment. I'm told there were similar results for 60-70% of participants. Way better than anyone thought. Four patients at a time in the room where treatments were received (feet and calf only) so we were all able to talk freely. Reported results were consistent with conversations. (Just FYI, there was one fellow who had a poisoning situation from being a geologist in the mining industry. One foot amputated, the other half amputated. After about 3 weeks all the burning in his lower extremities stopped. After 10 weeks no more pain meds.) For some people this works, though I still don't really understand why. Extensive conversation with Medicare about the fact it is only approved with them and FDA under a physical therapy treatment code. So, cash only where it can be found and not one single physical therapy outfit in Colorado has even heard of it! Even the spinal cord injury experts at Craig Hospital in Denver. It obviously works for some people. Finding it is the problem. Considering moving to Florida so if Mayo is doing it I am interested. Hope this helps someone out there!

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Tried 19 treatments did not experience any improvement.

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@twobrooklyn

Tried 19 treatments did not experience any improvement.

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I am curious as to the time duration for your 19 treatments. Were those done in over weeks, or over a span of how many months. The reason I ask is it took me over 15 treatments over five months before I started seeing improvement

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@wideawakechas

Hi Chris, hope you had a good Thanksgiving. My pain is freezing cold feet which then goes to pain along with the cold. Your treatment is interesting. Where would one go for this and could it be used in small areas such as feet? Thanks for your interest. there are so many variations to this neuropathy its so hard to find the one thing that helps. I pray that everyone finds some degree of less pain with their problem. God bless you. Chas

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Hi Chaz, I haven’t tried Sanaxes as I hear it is not available in Colorado. But I have freezing cold feet from Neuropathy and what has really helped me has been wool felt shoe insoles from Amazon, Cozy Winters foot of the bed heating pad which is long and stays warm most of the night on a low setting and #1 Rock Dove Nomad slippers which are my go to when I’m indoors. I also use hot hands toe warmers in my shoes went outdoors along with the wool felt insoles. Maybe these will help you. Wishing you warm feet! Bcool

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@bigron

I participated in a Sanexas trial a year ago. It was run by the neurology group I go to. Twice a week for 12 weeks. First, two bad car accidents, brain injury, and multiple spine, shoulder, elbow, knee and abdominal surgeries, pain, numbness, tingling, etc. Fused L3-S1 and C3-C7. Arachnoid adhesions present at L4-5. Progressive muscle spasms, pain, hot/cold, numbness with nearly no sensation in feet. So, bad, and no known successful treatment for arachnoiditis. Just narcotics and hope we don't kill ourselves. Went into trial not expecting any results but spasms stopped completely three weeks into treatment. End of 12 weeks had about 80% improvement in symptoms, but the most measurable result was going from four 10/325 oxycodone/day to two 5/325. Ended trial early January last year. Results held until June, so almost 6 months. Gradual decline since to about 60% of where I was when I started treatment. I'm told there were similar results for 60-70% of participants. Way better than anyone thought. Four patients at a time in the room where treatments were received (feet and calf only) so we were all able to talk freely. Reported results were consistent with conversations. (Just FYI, there was one fellow who had a poisoning situation from being a geologist in the mining industry. One foot amputated, the other half amputated. After about 3 weeks all the burning in his lower extremities stopped. After 10 weeks no more pain meds.) For some people this works, though I still don't really understand why. Extensive conversation with Medicare about the fact it is only approved with them and FDA under a physical therapy treatment code. So, cash only where it can be found and not one single physical therapy outfit in Colorado has even heard of it! Even the spinal cord injury experts at Craig Hospital in Denver. It obviously works for some people. Finding it is the problem. Considering moving to Florida so if Mayo is doing it I am interested. Hope this helps someone out there!

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I just saw online that they are doing SANEXAS Treatments at Colorado Springs Neuro Associates. I’m going to check about Medicare coverage. Maybe it’s possible here in Colorado! Bcool

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@bcool123

I just saw online that they are doing SANEXAS Treatments at Colorado Springs Neuro Associates. I’m going to check about Medicare coverage. Maybe it’s possible here in Colorado! Bcool

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Got medicare coverage in VA.

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@duquer

For more information about the Sanexas treatments, and to find the nearest Sanexas treatment center, You may call them at 702-315-2999 or 866-SANEXAS. (866-726-3927), and ask to talk to Debbie Hansen. Remember Everyone is different and treatment protocols may vary some due to their length of illness and damage to nerves. They are are there to help answer any your questions or concerns. Please let them know that I gave you this information so that your questions will be answered promptly. For the record, I have never been employed nor am I receiving any financial compensation from Sanexas. Wishing you all the very best for the upcoming holiday season.

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I did 19 treatments with the Sanexas machine FDA approved did nothing for the nerve pain usually used for muscular type pain.

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