1. < Neuropathy

Does anybody have experience with SANEXAS for neuropathy?

Posted by knucklehead4352 @knucklehead4352, Jan 6, 2021

Does anybody have experience with SANEXAS. It is touted as Electric Cell Signaling Treatment especially for peripheral neuropathy.

Interested in more discussions like this? Go to the Neuropathy Support Group.

duquer | @duquer | Feb 10, 2022
In reply to @susan1542 "Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement..." + (show)
@susan1542

Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement after treatment 6. Ive now had 10 treatments and am blown away. I still have a ways to go but Wow my feet feel So much better already. I’m liking walking just for the sake of walking. I previously spent a lot of money on red light therapy in addition to what was a fancy tens unit with No results. I went into this treatment with no expectations but felt I had nothing to lose. I’m just amazed at the relief already. Thank you so much for sharing your story, Ralph!

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I am really glad that you were able to find Sanexas and that You have found a treatment that works well for you. It was very kind of you to share this with me I hope that you will continue to let me know how well you’re progressing. Wishing you the very best, Ralph

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 10, 2022
In reply to @susan1542 "Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement..." + (show)
@susan1542

Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement after treatment 6. Ive now had 10 treatments and am blown away. I still have a ways to go but Wow my feet feel So much better already. I’m liking walking just for the sake of walking. I previously spent a lot of money on red light therapy in addition to what was a fancy tens unit with No results. I went into this treatment with no expectations but felt I had nothing to lose. I’m just amazed at the relief already. Thank you so much for sharing your story, Ralph!

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Welcome @susan1542, It's really great news to hear that the Sanexas treatments are helping you after treatment number 6. It's also good to hear that Medicare is paying for it. Can you come back and give us another update after a few months to let us know how you are doing with the treatments?

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duquer | @duquer | Feb 10, 2022
In reply to @duquer "I am really glad that you were able to find Sanexas and that You have found..." + (show)
@duquer

I am really glad that you were able to find Sanexas and that You have found a treatment that works well for you. It was very kind of you to share this with me I hope that you will continue to let me know how well you’re progressing. Wishing you the very best, Ralph

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I shared your comment with Sanexas, and this was their reply

That’s terrific. Do you think this patient would allow us to share their testimonial? I would need to get permission in order to comply with HIPAA guidelines. Let me know and if so how I can follow up directly with him/her.
Thanks

They would need to contact you directly

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1 reply
twobrooklyn | @twobrooklyn | Feb 10, 2022

I did 19 treatments, did nothing for me.?

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wwenerowicz | @wwenerowicz | Feb 10, 2022
In reply to @duquer "I shared your comment with Sanexas, and this was their reply That’s terrific. Do you think..." + (show)
@duquer

I shared your comment with Sanexas, and this was their reply

That’s terrific. Do you think this patient would allow us to share their testimonial? I would need to get permission in order to comply with HIPAA guidelines. Let me know and if so how I can follow up directly with him/her.
Thanks

They would need to contact you directly

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You do not need HIPPA clearance for this to happen. This is a common excuse for being lazy or not actually knowing what HIPPA is actually about

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1 reply
bwin11 | @bwin11 | Feb 11, 2022
In reply to @susan1542 "Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement..." + (show)
@susan1542

Ralph, I read your story and am now having Sanexas treatments. I started noticing an improvement after treatment 6. Ive now had 10 treatments and am blown away. I still have a ways to go but Wow my feet feel So much better already. I’m liking walking just for the sake of walking. I previously spent a lot of money on red light therapy in addition to what was a fancy tens unit with No results. I went into this treatment with no expectations but felt I had nothing to lose. I’m just amazed at the relief already. Thank you so much for sharing your story, Ralph!

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Will you share what your symptoms are/were>

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1 reply
bigron | @bigron | Feb 11, 2022
In reply to @susan1542 "I’m getting Sanexas treatments in Colorado Springs and Medicare is paying for it." + (show)
@susan1542

I’m getting Sanexas treatments in Colorado Springs and Medicare is paying for it.

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That's great. Where are you going?

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greenacres | @greenacres | Feb 12, 2022
In reply to @bwin11 "Will you share what your symptoms are/were>" + (show)
@bwin11

Will you share what your symptoms are/were>

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@susan1542 Thank you for sharing your positive results. It would be very helpful to know what your symptoms are or were and what type of neuropathy you had (pain, numbness, etc.)

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daschicago | @daschicago | Feb 22, 2022
In reply to @amandajro "Hello @knucklehead4352 and welcome to Mayo Clinic Connect. I understand you are interested in hearing from..." + (show)
@amandajro

Hello @knucklehead4352 and welcome to Mayo Clinic Connect. I understand you are interested in hearing from members with experience with SANEXAS. I did a quick search on the site and found the following comments that you might find helpful by @erikas @dont

https://connect.mayoclinic.org/discussion/shingrix/?pg=17#comment-432255
https://connect.mayoclinic.org/discussion/just-diagnosed-2/?pg=10#comment-431976

Do you have PN and where did you come across information on SANEXAS, if I may ask?

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I too have severe, chronic pn in both legs from knees down, esp the feet.
So much so that I cannot walk any longer.
I’m desperate to learn if this is a legitimate treatment modality, as there are lots of folks that prey on this pt population with $ scams because we are so desperate.
So please, anyone, is there any objective outcome data on this treatment? Any pt reviews after having the treatments?

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Feb 23, 2022
In reply to @daschicago "I too have severe, chronic pn in both legs from knees down, esp the feet. So..." + (show)
@daschicago

I too have severe, chronic pn in both legs from knees down, esp the feet.
So much so that I cannot walk any longer.
I’m desperate to learn if this is a legitimate treatment modality, as there are lots of folks that prey on this pt population with $ scams because we are so desperate.
So please, anyone, is there any objective outcome data on this treatment? Any pt reviews after having the treatments?

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Hello @daschicago, Welcome to Connect. @duquer shared his experience with SANEXAS earlier in this discussion here https://connect.mayoclinic.org/comment/645606/. You might find my reply to his post interesting if not helpful.

You are wise to do your own research. There are many less than honest treatment providers when it comes to neuropathy pain and suffering. The Foundation for Peripheral Neuropathy has some complementary and integrative treatments for PN on their site here - https://www.foundationforpn.org/treatments/

Are you able to share any treatments you have tried or ones that helped a little?

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