Buttock/tailbone pain, sitting or lying down - symptom of PMR?

@suzorand, I've had two occurrences of PMR. The first lasted 3 and half years in which time I was able to taper off of prednisone. It stayed in remission for a little over 6 years and came out of remission mid 2016 when I went back on prednisone (20 mg) and I was able to taper off in about a year and half. My PMR has been in remission since late 2018 so I'm hoping it never comes back. Also, I've made a lot of lifestyle changes which I'm thinking will help keep it in remission - eating healthier, more exercise and losing some weight. There is hope! Keep learning as much as you can and take it a day at a time. Here's some information that might be helpful.

Diet and Lifestyle Changes That Can Aid in the Treatment of Polymyalgia Rheumatica: https://arthritissj.com/diet-and-lifestyle-changes-that-can-aid-in-the-treatment-of-polymyalgia-rheumatica/

Thanks John, I really appreciate your input and it is such a comfort to have this website to learn from and relate to others who are in the same situation.

Yes it’s one of the worst symptoms for me and I make myself get up and move as someone said. It’s the only relief. Also agree with soft car seat cushion as long trips are painful.

I am curious about what you mention as "spasms". I am going through butt pain, which I completely understand (like sitting on bleachers for hours and can't stand the pain) but this time I'm having muscle spasms in the butt. Is that typical of PMR pain? I'm trying to decide if I"m dealing with PMR pain or pain from my really screwed up spine. If I hadn't just been diagnosed with PMR in Sept. this would be a no-brainer! I'm supposed to taper tomorrow and I'm thinking maybe that shouldn't be happening. I asked my doctor and his answer was that was a really good question! I don't need compliments - I need answers!

Yes ... I've had both butt pain and iron deficient anemia this past year along with PMR ... think there is a connection. Right now I'm in pretty good shape, no PMR pains since September, no elevated labs, just boarder line anemia. My Subaru has pretty good seats but a 20 minute drive used to feel like 20 hours till I learned to push my butt back in the seat and sit bolt upright ... just the opposite of what you might think. Meanwhile one of those wooden bead seat things might help.

Sorry if this sounds like bull (ony), but excersize and attitude has a lot to do with overcoming PMR ... IMHO. When my rheumatologist found my labs were back to normal he convinced me that my pains were age and arthritis and that getting off Prednisone one mg monthly was right. Walking, yoga, lots of exercise, overcoming anxiety are my friends. Inactivity, watching the news too much, and thinking about illness are my enemies.

I had tailbone pain with my PMR. I also had elevated anemia levels and above average LDL

I see that more of us are reporting that since I first posted it. Go back and read the thread for updates.

Two years and counting and drs still can't tell me whats causing my tailbone to hurt upon sitting or lying on my back. Pillows of all kinds have not helped. The last diagnosis I got was that since I loss weight I may have lost cushion around the bone (ha) Xrays and MRIs have been inconclusive. Still hurting!

@pacarolyn, You will notice that we merged your post into the existing discussion you started so that members following your story see your update. Have you seen these similar discussions?

-- Pain in the butt - Bilateral Hamstring conjoint tendinosis: https://connect.mayoclinic.org/discussion/pain-in-the-butt-bilateral-hamstring-conjoint-tendinosis/
-- Pain in the butt - Can't sit down: https://connect.mayoclinic.org/discussion/pain-in-the-butt-cant-sit-down/

Sadly I had back/hip pain also. I’ve now been diagnosed with AS and PMR. Now L/S hip is degenerated. Got to love that Predisone. It’s all a trade off. Pain or bad joints/bones