Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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andrews65 | @andrews65 | Mar 24, 2022

Yes , had them for 2 yrs. Sometimes they’re so strong. In my head also, sometimes it’s so intense. I don’t know what to do.

Rachel, Volunteer Mentor | @rwinney | Mar 25, 2022

In reply to @hockeyguy13 "Yes I have. Life was so good before all this." + (show)

Hey, @hockeyguy13, I was thinking about you today and wondering how you're doing? Any positive changes?

Rachel, Volunteer Mentor | @rwinney | Mar 25, 2022

In reply to @andrews65 "Yes , had them for 2 yrs. Sometimes they’re so strong. In my head also, sometimes..." + (show)

@andrews65 Hi there. It must be frustrating to feel such intenseness. Do you use any techniques to calm your mind and body during the episodes?

hockeyguy13 | @hockeyguy13 | Mar 25, 2022

In reply to @rwinney "Hey, @hockeyguy13, I was thinking about you today and wondering how you're doing? Any positive changes?" + (show)

No, things almost seem worse.

loveofdogs | @loveofdogs | Mar 25, 2022

In reply to @sheeva888 "Has anyone with internal tremors been diagnosed with or researched Stiff Person Syndrome? I get internal..." + (show)

Hi! I have internal tremors too. How long have u had them? Did the dr give u anything to stop them?

sheeva888 | @sheeva888 | Mar 25, 2022

In reply to @loveofdogs "Hi! I have internal tremors too. How long have u had them? Did the dr give..." + (show)

I take Diazepam, Gabapentin, medical marijuana and IVIg every 5 weeks (3 days each time). Were you diagnosed with Stiff Person Syndrome?

Rachel, Volunteer Mentor | @rwinney | Mar 27, 2022

In reply to @hockeyguy13 "No, things almost seem worse." + (show)

@hockeyguy13 In what ways are you trying to help yourself during this rough patch? Do you speak with a counselor?

hockeyguy13 | @hockeyguy13 | Mar 27, 2022

In reply to @rwinney "@hockeyguy13 In what ways are you trying to help yourself during this rough patch? Do you..." + (show)

I’ve just try to keep busy, but it’s hard. Feels like I’m stuck in the same day. Not seeing a counselor right now.

loveofdogs | @loveofdogs | Mar 27, 2022

In reply to @sheeva888 "I take Diazepam, Gabapentin, medical marijuana and IVIg every 5 weeks (3 days each time). Were..." + (show)

Hi Sheba,
My gastroenterologist said it was anxiety! I think anytime these drs don’t know they say it’s anxiety. What is Stiff Person Syndrome?

sheeva888 | @sheeva888 | Mar 27, 2022

In reply to @loveofdogs "Hi Sheba, My gastroenterologist said it was anxiety! I think anytime these drs don’t know they..." + (show)

It is a very rare neuroautoimune syndrome that causes muscle spasms. It is very disabling but is different in each patient. I know that internal tremors are very common with SPS. There is a lot of anxiety that comes along with a diagnosis of SPS, so perhaps your doctor is not completely off.