Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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kennapie | @kennapie | Mar 13, 2022

I have these and have been diagnosed with cramp Fasciculation syndrome. It feels like my body buzzes and I don’t consider myself an anxious person. I have had this syndrome for over 15 years. I too take gabapentin along with Cymbalta and muscle relaxers. Nothing seems to help long term. I have had 2nerve conduction studies and EMGs which were normal. There is a wonderful Facebook group that deals with Cramp Fasciculation Syndrome and Benign Fasciculation syndrome. God bless

Rachel, Volunteer Mentor | @rwinney | Mar 13, 2022

In reply to @hockeyguy13 "I’ve seen many physicians and therapists, but nobody can help me with my physical problems." + (show)

@hockeyguy13 Hey there. I hear you loud and clear, and understand the frustration when no-one can help you with physical problems. I was in that boat for quite a while too. Do you mind sharing a little more about yourself? What does your typical day and routine look like?

hockeyguy13 | @hockeyguy13 | Mar 13, 2022

I was healthy my whole life and cooked meals weekly along with going to the gym. I don’’t have much of a routine during the day as I can’t sit or lie still. I also feel like I never feel relaxed breathing at rest now. I force myself to go to gym which is not fun anymore.

Rachel, Volunteer Mentor | @rwinney | Mar 14, 2022

In reply to @hockeyguy13 "I was healthy my whole life and cooked meals weekly along with going to the gym...." + (show)

@hockeyguy13 Would you say moving, being physically active, and having your brain focused on a task is helpful to preventing vibrations or feeling them less?

hockeyguy13 | @hockeyguy13 | Mar 14, 2022

Nothing really helps and it’s harder to breath now too.

Rachel, Volunteer Mentor | @rwinney | Mar 14, 2022

In reply to @hockeyguy13 "Nothing really helps and it’s harder to breath now too." + (show)

@hockeyguy13 Wow, I'm happy to hear that you are still able to get to the gym!

Do you mind sharing what physicians and specialists have you seen so far? Are you working with your general practioner? Have you met with a neurologist yet? What tests have been performed to help rule out causes? These details are important so that others here on Connect may be able to help you from their experiences.

hockeyguy13 | @hockeyguy13 | Mar 14, 2022

In reply to @rwinney "@hockeyguy13 Wow, I'm happy to hear that you are still able to get to the gym!..." + (show)

I have seen many physicians and specialists through Health Partners. I have had many blood tests and neurologist checked for Parkinson’s which he didn’t really check for anything else at Stillwater Clinic and at Mayo Eau Claire. They just pin it as anxiety. I see another neurologist Thursday at Neuroscience St. Paul. I know I have extensive nerve damage in brain and body even though no tests detect anything. I had an MRI and those don’t show everything either.

Rachel, Volunteer Mentor | @rwinney | Mar 14, 2022

In reply to @hockeyguy13 "I have seen many physicians and specialists through Health Partners. I have had many blood tests..." + (show)

@hockeyguy13 I'm glad you are getting a second neurological opinion this Thursday. Hopefully anything left to be ruled out, will be through more testing like EMG/Nerve Conduction study or skin biopsy. Do you keep a journal of your symptoms and time lines? I always found that to be beneficial when visiting doctors.

Although anxiety can cause neurological misfires, I understand you feel strongly that anxiety is not the sole underlying cause of your nerve misfires.. You say you know you have extensive nerve damage in your brain and body. Have you been upfront with all of your doctors regarding this matter and your fears?

hockeyguy13 | @hockeyguy13 | Mar 14, 2022

Yes I have. Life was so good before all this.

nikki315 | @nikki315 | Mar 14, 2022

Yes I had Covid in Nov and have had many different symptoms since my full random body vibrations and twitches started in jan amd are still not going away can’t get the neurologist to do test and Reg doctors can’t give me any answers idk what to do next but none of this was ever normal for me before Covid