Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Rachel, Volunteer Mentor | @rwinney | Mar 15, 2022

In reply to @hockeyguy13 "Yes I have. Life was so good before all this." + (show)

@hockeyguy13 Life is good, you've just hit a speed bump and are not the only one. Life will get better, if you believe it will. Don't defeat yourself!

Your brain believes what you tell it...start telling it POSITIVE things.

Best of luck Thursday. Will you keep me updated on how it goes?

sophia53 | @sophia53 | Mar 15, 2022

I have in my head, neck and back. They seem to be new but I didn’t have any or very much feeling or any senses since I got Covid 4/4/2020. Last month I had my 6th accupuncture mainly for my daily headaches and loss of taste/smell but he added an electrical pulse? I have about 1/3 of all of my senses back and started to notice this tingling/ vibration feeling. I go for accupuncture tomorrow & a neurologist & psychologist appointment next month & will ask all about it and update you if they have any feedback. I did just start imitrex & propanol for daily headaches & migraines. Not sure their side effects on so many meds I can’t keep up 🥴

irr4et | @irr4et | Mar 16, 2022

After 21 Yrs of fibromyalgia, Occipital Neuralgia and some nerve damage from Microneurosurgery neck surgery, I have both internal vibrations and head/neck fasciculations (tiny wiggles in muscles caused by excessive motor neuron firing). I’m on Lyrica tic. Baclophen and Clonazapam at bedtime. Dr says avoid stimulating foods, additives, dyes, gluten, GMO food, too many starchy carbs, high sugar fruits.

Rachel, Volunteer Mentor | @rwinney | Mar 17, 2022

In reply to @irr4et "After 21 Yrs of fibromyalgia, Occipital Neuralgia and some nerve damage from Microneurosurgery neck surgery, I..." + (show)

@irr4et Hi again! I'm sorry you have struggled with fibromyalgia for so long. I responded to your post about RFA's and I'd also like to jump in here and thank you for joining the conversation about internal vibrations. They affect many and are annoying as heck. Again, CSS helps to explain the unexplainable sometimes as it's an umbrella over many symptoms patients have to live with and learn how to manage as best as possible. Thank you for mentioning diet and avoiding triggering foods, so very true! What other tips have you found helpful over the years of managing fibro?

irr4et | @irr4et | Mar 17, 2022

TU for ur kindness. I’ve pretty much been ignored by ppl who I thought were our forever friends. I found I couldn’t live in a cold winter so I spend those cold mos in mid Fl. I also stay away from emotional conflicts - they raise Cortisol and adrenaline this more and more pain. I read and write, do Bible study, pray and meditate. Stretching before bed and upon rising is very helpful. Epsoms salts baths help a lot too.

martinaston | @martinaston | Mar 17, 2022

When you refer to "CSS", are you talking about Churg-Strauss syndrome (CSS) as a possible cause of these internal vibrations? MAYO CLINIC describes that condition here: https://www.mayoclinic.org/diseases-conditions/churg-strauss-syndrome/symptoms-causes/syc-20353760 Perhaps you were referring to a different "CSS" condition instead? By the way, there are two internal vibrations/internal tremors groups on facebook, but one of them is for the during-sleep-only type of vibrations and the other is for internal tremors, more generally (24/7 vibrations). It is amazing how so many people got these vibrations from post-covid long-hauling. Mine started with a different cause, but there really has been an uptick this past year, it would appear. My vibrations only happen during sleep. Thank you in advance for your answers, experiences and input!

Rachel, Volunteer Mentor | @rwinney | Mar 17, 2022

In reply to @martinaston "When you refer to "CSS", are you talking about Churg-Strauss syndrome (CSS) as a possible cause..." + (show)

@martinaston Hello there! Thank you for joining the conversation about vibrations/tremors. CSS is Central Sensitization Syndrome, a nervous system disorder where the brain amplifies signals from the body via the spinal cord. CSS can also play role in chronic fatigue syndrome. Basically, CSS an umbrella to many syndromes like fibromyalgia, neuropathy, POTS, migraine, etc....

Perhaps this video by Mayo Clinic's Dr. Sletten will be of help to you:

I looked back at some of your posts to learn a bit about what brings you to Connect. I honestly have to say that you sir, are a prime candidate for CSS. Your detailed account of your health journey very much resembled mine. Confusion after confusion, with doctors coming up empty on solid findings. Will you please let me know your thoughts after watching the video?

Rachel, Volunteer Mentor | @rwinney | Mar 18, 2022

In reply to @irr4et "TU for ur kindness. I’ve pretty much been ignored by ppl who I thought were our..." + (show)

@irr4et You have a good perspective on self-regulating and symptom management. Thanks for sharing what works for you. I learned a stretch routine while attending Mayo Pain Rehab that works every joint from jaw to toe. It's wonderful.

Ahhh...cold months in Florida, what a treat!