Want to talk about Multiple Myeloma: Anyone else?

You are wonderful! I called my insurance again and hoping to get something soon!!! Glad you encouraged me to try again!!!

Oh that’s awesome!! We have to be our own advocates and it’s ok to be pushy! It’s your health at stake. I call it being respectfully assertive. You can be pushy but be nice too!! 😂 My mom said, “You get more flies with honey than vinegar.” And that has stuck with me for many decades. But I find it helps get people on your side with a little more compassion and understanding! I hope all goes well at your appointment. Will you me know how it goes?

Well turns out not so good. I may have screwed things up again! I had the process started over again when might have gotten in old authorization. The latter days, a new one weeks!

Ok, don’t panic this is fixable. How about if you call the insurance company again and tell them what you just told me. They can go back and check your previous authorization and use that instead, cancelling the new request.
Honestly, don’t be so hard on yourself. You didn’t screw anything up. You are under a lot of pressure, stress and are facing the clock on treatment. So it’s understandable you’re feeling panicky. I think this little glitch will be a matter of trying to remain calm and explain this to your insurance liaison person. This will work out.
Or, with the visit to your new doctor, maybe they’ll be able to get your prescription pushed through. Did you have that appointment this morning?

That is what I am trying now. Waiting to be called into appointment but running late, I guess

Use this waiting time to decompress. 😊 Deep, cleansing breaths and exhale. You’ve got this. Do you have notes of what you want to discuss? If not, use your phone memo pad to jot things down. 😊

No it did not go well. Hoping for some more information before I make a decision. May still be able to salvage this but not sure. Thanks for all your support!!!

@tml I'm sorry to hear you feel your appointment did not go well. Would you explain a little more about that experience?

I have been following your posts about the Revlimid and getting things set up for another battle. In my Revlimid experience, each month my oncologist has to okay that there is a need for another round, and that gets transmitted to McKesson Pharmacy in Texas, where they fill the script. Then I speak to them, and make the arrangements for delivery [confirm address, answer survey questions, etc.] It is a highly regulated medication. In fact, today we expect to see our favorite FedEx guy this afternoon as he delivers my next round, that starts tomorrow.

Keeping on top of your treatments and how to get in to a RMD stage again can be very taxing. What will you do today to take a bit of a break mentally and emotionally, to relax and gather your energy?
Ginger

I had a script from a year ago that I did not realize was active so had to be cancelled and restarted through Mayo. That slowed everything up but hope getting through Mayo still. Went to another local doctor which I thought I would transfer to but now the next day think not a good move and prefer my original doctor. The medical and insurance bureaucracy is formidable. I wished I had understood it better as seem everything is a minefield.

Hardly saw the doctor just the PA who took all the information and he came in just to deliver his treatment plan. Not thrilled. Appointment was for 1 and saw him finally at 4. Granted doctors can be busy but 3 hours for his 15 minutes. Hmmm.