1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Carlos Sierra | @carlossierra1287 | Mar 8, 2022
In reply to @miho "I have lower back pain for many years .I get shots in my lower back every..." + (show)
@miho

I have lower back pain for many years .I get shots in my lower back every 4 months,once in awhile the shot in my lower back goes bad, sometimes medication is put to close or on the nerve itself causing the pain to get worse, from my understanding .the worst time it happened the extra pain lasted 2 weeks. do not know about the back causing prostate problems I hope this help George

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Please focus on one issue at a time. It helps. You know each specialist, will seek test from all corners. Be ready friend.

One thing at a time. No disrespect.

My wife is exhausted telling me the same yr after year. Finally listen after spending $100.... Yes I did.

Blessings.
Bye now

Ps
The prostate is a tiny organ us men of all ages, especially after 40, must
Know it's the shape, size and is doing gods intended function.
Man we are complex, godly creatures.
Impressive, to say the least.
Love your self.

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Carlos Sierra | @carlossierra1287 | Mar 8, 2022
In reply to @artscaping "The business mission is to help folks find the best insurance for their age, medical conditions,..." + (show)
@artscaping

The business mission is to help folks find the best insurance for their age, medical conditions, address (I had to wait a year to get registered as an MN resident and it saved me lots of money. I was paying CA prices and they are higher.).

There is no charge for their services......they are paid by the companies. My life partner has been with them for years. Last year I needed benefits for surgeries and chronic pain. This year, I will be focusing on my hearing issues of tinnitus and limited functioning and my aging eyes with macular degeneration and glaucoma. I also added dental insurance because my osteoporosis meds have some risk in terms of allergic reactions that involve the jaw.

Does that help answer your questions? What are you looking for in an insurance program?

May you be content and have peace.
Chris

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Hi again.
Carlos here. Please help me retrieve your last to options for the
Pain of my neuropathy of ft and hands.

Being new to this mayo cluyoclunic network is showing my lack of knowledge to move around

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1 reply
lisette43 | @lisette43 | Mar 8, 2022

This is Lisette Palmer from Oregon. I was diagnosed with Idiopathic small fiber Peripheral Neuropathy about 11 yrs ago. I have had elevated liver enzymes and pre-diabetic after menopause. I am always looking for best practices to help me deal with the pain and ways to minimize or eliminate the pain/discomfort.

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1 reply
lisette43 | @lisette43 | Mar 8, 2022
In reply to @glenjunderwood "Hello fellow Chronic Pain sufferers my name is Glen and I'm a 72 year old retired..." + (show)
@glenjunderwood

Hello fellow Chronic Pain sufferers my name is Glen and I'm a 72 year old retired ready mix truck driver (35 yrs.) My lower back pain started with my first laminectomy L-4 in 1979, I had another one L-5 in 2006. They were both successful but as I've aged the pain has gotten much worse. I've been diagnosed with pinched nerves and been through the Morphine, Opioids, and other pain meds. I'm currently taking 6, .75 Nucynta daily. They got me off the Opioids and helped alot at first but have been on them for 3+yrs. and aren't doing anything for me now. The Pain Center that I've been going to recommended that I try a Nevro HF10 Spinal Stimulator. With the trial stimulator implanted I had ABSOLUTELY no pain for a week! They then surgically implanted the battery pack but so far they haven't been able to dial it in to lessen the pain. That was 6 months ago. I'm keeping the faith in this unit but my resolve is weakening daily. I'm hoping some one out there reading this has had the same problems with Nevro? Please reply to give me some hope. Thank you in advance!

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I am interested in your result. I am sure you are not happy. I was on a Zoom call last month by a Neurologist in N.Carolina who is a chief investigator. Perhaps you were on that call also. I have a St.Jude Medical Neuromodulator installed in 2016. It may help a bit but probably not worth the inconvenience of not being able to get an MRI. I do have a friend who has had great success with a neuromodulator from a different. company.

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1 reply
miho | @miho | Mar 8, 2022
In reply to @carlossierra1287 "Ooh, my... Almost the same issue. please be firm and try other advice before surgery. Trust..." + (show)
@carlossierra1287

Ooh, my... Almost the same issue. please be firm and try other advice before surgery. Trust me; the pain has a way to take us there. 🙏
I have resorted to decompression of the Asiatic or static nerve ON MY LEFT LEG and
Has been the worths decision in my life. Pain is excruciating. All in search due to my NEUROPATHY OF BOTH FT. And now hands. Since 2008/ 2016 and it has kept me and wife and kids friends on the hunt for treatment but
Not surgery, ok.

It is why I am with MAYO CLINIC NOW.
Blessings.
Enroll a few weeks ago.

Oooh!!
Seek decomposition with a Dr in the MASTERING OF IT.
Not yoga ok only at stretching but after you see a specialist.... Do it
I struggled with it as I only wanted PAIN SUPRECIVES AFFECTING 100 other parts of my 56 yr old Latino body. I say this seriously for it has been ingrained in my mind
To see my grandma. Blessed her 91 yrs.
Ps
Just the other day she told me to pay a DR. For she ran out of “_______” to tell me 🥰🥰

Byenow and am out to the RODEO
HI...JAA

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I had MIS on my lower back with a doctor who is trained in this type of surgery. which Mayo Clinic did you go to? I am thinking of going to one of them thanks George

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Carlos Sierra | @carlossierra1287 | Mar 8, 2022

Hi George.
I have not visited any mayo, Just yet, that is.

My neuropathy is showing it's UGLYs face George.
Resorting to leads Among mayo patients etc.

But in of it, living in the USA is a blessing.

Am open to keep chatting

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Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 8, 2022
In reply to @lisette43 "This is Lisette Palmer from Oregon. I was diagnosed with Idiopathic small fiber Peripheral Neuropathy about..." + (show)
@lisette43

This is Lisette Palmer from Oregon. I was diagnosed with Idiopathic small fiber Peripheral Neuropathy about 11 yrs ago. I have had elevated liver enzymes and pre-diabetic after menopause. I am always looking for best practices to help me deal with the pain and ways to minimize or eliminate the pain/discomfort.

Jump to this post

@lisette43 Hello Lisette. I'm right there with you, living with chronic pain and symptoms. I found the best practices to help deal with chronic (not acute) pain are lifestyle changes. A solid comprehensive plan of exercise consisting of a daily stretch routine, physical therapy exercise and some form of cardio. Making sure to care for emotional health, work on behavioral health, in addition to eating a healthy diet and having good sleep hygiene. Positive distraction and mindfulness are extremely helpful for me. I use positive self-talk and diaphragmatic breathing quite often to work through difficult days. Also, I depend on moderation, as to not push/crash, and use of modification to succeed to the best of my abilities.

I don't know if you feel the same, but I grew tired of looking to doctors, medications and procedures for "fixes" that just were not there, temporary if anything.

After 11 years, how have you recently been managing your symptoms? What self-help tools have you tried?

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1 reply
lisette43 | @lisette43 | Mar 8, 2022
In reply to @rwinney "@lisette43 Hello Lisette. I'm right there with you, living with chronic pain and symptoms. I found..." + (show)
@rwinney

@lisette43 Hello Lisette. I'm right there with you, living with chronic pain and symptoms. I found the best practices to help deal with chronic (not acute) pain are lifestyle changes. A solid comprehensive plan of exercise consisting of a daily stretch routine, physical therapy exercise and some form of cardio. Making sure to care for emotional health, work on behavioral health, in addition to eating a healthy diet and having good sleep hygiene. Positive distraction and mindfulness are extremely helpful for me. I use positive self-talk and diaphragmatic breathing quite often to work through difficult days. Also, I depend on moderation, as to not push/crash, and use of modification to succeed to the best of my abilities.

I don't know if you feel the same, but I grew tired of looking to doctors, medications and procedures for "fixes" that just were not there, temporary if anything.

After 11 years, how have you recently been managing your symptoms? What self-help tools have you tried?

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Hi Rachel, I have a St Jude/Abbott Neuromodulator installed but when the battery dies I think I will have it removed. I got 2 dogs 7 yrs ago to keep me walking and company since I live alone. I do have stretches prescribed by a PT. I volunteer for 3 organizations but recently felt overwhelmed so I cut back to only one until I start feeling emotionally comfortable again. I do rely on God and talk with Him often. I find I have more time to read my Bible and enjoy it. I would like to have more positive social interactions however church & support groups help to fill that need. I am blessed to have a neighbor that expects me to be accountable to her. I have two sons, daughter-in-laws, and granddaughters but they don't have time for me lately. I used to babysit alot and miss that. Thanks for asking and sharing.

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Mar 8, 2022
In reply to @carlossierra1287 "Hi again. Carlos here. Please help me retrieve your last to options for the Pain of..." + (show)
@carlossierra1287

Hi again.
Carlos here. Please help me retrieve your last to options for the
Pain of my neuropathy of ft and hands.

Being new to this mayo cluyoclunic network is showing my lack of knowledge to move around

Jump to this post

Hello, @carlossierra1287 I am sorry but there is no reference link or connection to the post about neuropathy of your feet and hands. I need a little more direction. If you tell me what you wrote, then I can probably find my answer.
Give it a try.....and I will poke around a bit myself.
Chris

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1 reply
Carlos Sierra | @carlossierra1287 | Mar 8, 2022
In reply to @artscaping "Hello, @carlossierra1287 I am sorry but there is no reference link or connection to the post..." + (show)
@artscaping

Hello, @carlossierra1287 I am sorry but there is no reference link or connection to the post about neuropathy of your feet and hands. I need a little more direction. If you tell me what you wrote, then I can probably find my answer.
Give it a try.....and I will poke around a bit myself.
Chris

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Thank you for your response. .I will

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