Chronic Pain members - Welcome, please introduce yourself

Hello fellow Chronic Pain sufferers my name is Glen and I'm a 72 year old retired ready mix truck driver (35 yrs.) My lower back pain started with my first laminectomy L-4 in 1979, I had another one L-5 in 2006. They were both successful but as I've aged the pain has gotten much worse. I've been diagnosed with pinched nerves and been through the Morphine, Opioids, and other pain meds. I'm currently taking 6, .75 Nucynta daily. They got me off the Opioids and helped alot at first but have been on them for 3+yrs. and aren't doing anything for me now. The Pain Center that I've been going to recommended that I try a Nevro HF10 Spinal Stimulator. With the trial stimulator implanted I had ABSOLUTELY no pain for a week! They then surgically implanted the battery pack but so far they haven't been able to dial it in to lessen the pain. That was 6 months ago. I'm keeping the faith in this unit but my resolve is weakening daily. I'm hoping some one out there reading this has had the same problems with Nevro? Please reply to give me some hope. Thank you in advance!

Ooh, my... Almost the same issue. please be firm and try other advice before surgery. Trust me; the pain has a way to take us there. 🙏
I have resorted to decompression of the Asiatic or static nerve ON MY LEFT LEG and
Has been the worths decision in my life. Pain is excruciating. All in search due to my NEUROPATHY OF BOTH FT. And now hands. Since 2008/ 2016 and it has kept me and wife and kids friends on the hunt for treatment but
Not surgery, ok.

It is why I am with MAYO CLINIC NOW.
Blessings.
Enroll a few weeks ago.

Oooh!!
Seek decomposition with a Dr in the MASTERING OF IT.
Not yoga ok only at stretching but after you see a specialist.... Do it
I struggled with it as I only wanted PAIN SUPRECIVES AFFECTING 100 other parts of my 56 yr old Latino body. I say this seriously for it has been ingrained in my mind
To see my grandma. Blessed her 91 yrs.
Ps
Just the other day she told me to pay a DR. For she ran out of “_______” to tell me 🥰🥰

Byenow and am out to the RODEO
HI...JAA

This is Lisette Palmer from Oregon. I was diagnosed with Idiopathic small fiber Peripheral Neuropathy about 11 yrs ago. I have had elevated liver enzymes and pre-diabetic after menopause. I am always looking for best practices to help me deal with the pain and ways to minimize or eliminate the pain/discomfort.

@lisette43 Hello Lisette. I'm right there with you, living with chronic pain and symptoms. I found the best practices to help deal with chronic (not acute) pain are lifestyle changes. A solid comprehensive plan of exercise consisting of a daily stretch routine, physical therapy exercise and some form of cardio. Making sure to care for emotional health, work on behavioral health, in addition to eating a healthy diet and having good sleep hygiene. Positive distraction and mindfulness are extremely helpful for me. I use positive self-talk and diaphragmatic breathing quite often to work through difficult days. Also, I depend on moderation, as to not push/crash, and use of modification to succeed to the best of my abilities.

I don't know if you feel the same, but I grew tired of looking to doctors, medications and procedures for "fixes" that just were not there, temporary if anything.

After 11 years, how have you recently been managing your symptoms? What self-help tools have you tried?

Hi again.
Carlos here. Please help me retrieve your last to options for the
Pain of my neuropathy of ft and hands.

Being new to this mayo cluyoclunic network is showing my lack of knowledge to move around

Hello, @carlossierra1287 I am sorry but there is no reference link or connection to the post about neuropathy of your feet and hands. I need a little more direction. If you tell me what you wrote, then I can probably find my answer.
Give it a try.....and I will poke around a bit myself.
Chris

I am interested in your result. I am sure you are not happy. I was on a Zoom call last month by a Neurologist in N.Carolina who is a chief investigator. Perhaps you were on that call also. I have a St.Jude Medical Neuromodulator installed in 2016. It may help a bit but probably not worth the inconvenience of not being able to get an MRI. I do have a friend who has had great success with a neuromodulator from a different. company.

Hi Rachel, I have a St Jude/Abbott Neuromodulator installed but when the battery dies I think I will have it removed. I got 2 dogs 7 yrs ago to keep me walking and company since I live alone. I do have stretches prescribed by a PT. I volunteer for 3 organizations but recently felt overwhelmed so I cut back to only one until I start feeling emotionally comfortable again. I do rely on God and talk with Him often. I find I have more time to read my Bible and enjoy it. I would like to have more positive social interactions however church & support groups help to fill that need. I am blessed to have a neighbor that expects me to be accountable to her. I have two sons, daughter-in-laws, and granddaughters but they don't have time for me lately. I used to babysit alot and miss that. Thanks for asking and sharing.