Want to talk about Multiple Myeloma: Anyone else?

Oh dear, I’m so sorry this has been such an ordeal for you. Waiting is the worst especially when you’re feeling the pressure of time. But this is still manageable and treatment is just days away. There is no need to be desperate. You have a plan and it being put into motion. In a few days you have an appointment with the new doctor/clinic and I believe things will move quickly in your favor from that point on.
When you say Bio has no prescription, I don’t know what that means. Is this the new company who will provide the Revlimid?
What type of MM do you have? Is it light-chain MM?

I have the most common IGGKappa. The first time I was to get Revlimid but lots of side affects and had 2 PEs and a DVT before huge copay and deductible in drug plan. Change was made to Darzalex and was happy with that as went into remission and in maintenance but think they overlooked the rib that had shown up in a CT when first diagnosed and no follow up PET as my MRD numbers were so good. Perhaps should have asked for one but did not as thought I really had a lung issue. My mistake. I worry because weeks are going by that could be used to hopefully get back into remission. I was not sure where the prescription would go as my part D plan is with a Florida company and had the original Revlimid prescription from last May but no new one although may not always use the same one? Have no clue. I just wasted so many weeks and my myeloma numbers continue to rise. Hope something changes soon. The one bright spot is likely not to be addicted to opioids that they wanted me to use in rib, as they make me nauseous and I throw them up and was told dexamethasone causes insomnia but whenever I use it I sleep through the night. Just read about the settlement. Best book I read on that debacle was “Pharma” by Gerald Posner. Read before I knew I had myeloma and thought thank heavens I am pretty healthy and mostly vegan. Hmmmph! Caught in the drug insurance nightmare. There is now a generic available in Europe but will not be marketed here until 2026. Think might be a few companies here but obviously not really too available.

I am sure it will!!! Congratulations to you! So happy you were able to do it. Always best to be aggressive early as I am now learning! All the best!

Not your fault. You didn't know. It's what we pay our doctors for, medical advice, such as it is. There may be a reason for all this, above and beyond us we cannot see right now.

I have to agree with Lori, @wyom1998. You look radiant. I thought I'd check in and see how you are doing? Sending good vibes.

Good morning! I just wanted to wish you good luck with your appointment today! I hope this new clinic/doctor/team jumps on board with the latest treatment plan and gets you the help you need. Your second opinion at Mayo gave you hope for a new start in reaching remission and having the stem cell transplant. You are strong, so stay positive! You’ve got this! ☺️
Has your new prescription been filled yet?

No word. Nothing. Very worried. Wish I had some better news. Thanks for the encouragement! Sadly I am nauseous today so hopefully can get to the appointment!!!

Oh nausea is nasty. I can empathize…had months of that. If I may offer a suggestion, try not to miss the appointment because of it. It’s really important you see the new doctor!
So, take a gallon ziplock baggie with a folded paper towel inside. Works as an emergency ‘catch all’ if you get my drift! You can put that in a nice tote or inside your purse. Just in case! And for now, a cool washcloth to the back of your neck can help. 🙂
Speak with your doctor about the prescription that is needed and see if they can expedite things. I’d be hounding my insurance provider at this point. Do you know if they’ve been contacted about your new med?

No and I hate to keep asking. Called insurance who said through physicians and only had old paperwork. Nothing current. No one called me but says 4-5 days for insurance part which might be up tomorrow or Friday.,had Mayo do it but perhaps would gmjave gone faster here but thought if done one the 3rd would be faster. Maybe not as my health care provider is here. Guess will as if he can check into it or facilitate. Again perhaps in my blush to get faster I slowed it down.

Push to get faster…