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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 17, 2022
In reply to @artscaping "Great suggestions @rwinney. May I add something for those of us that aren't good researchers (like..." + (show)
Profile picture for Chris, Alumni Mentor @artscaping

Great suggestions @rwinney. May I add something for those of us that aren't good researchers (like me). I have an insurance professional with whom I meet every year. She looks at the previous year and we talk about what medical issues I continue to have and what new ones are likely to present themselves. Then, she suggests and explains the opportunities with their specific benefits. I love it....an expert that fills in my mental gaps. This year is working out well and I am behaving.
Chris

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@artscaping I have an insurance professional/navigator too and completely forgot to mention. Thank you, for filling in my mental gap. I did a lot of my own navigating early on in my disability claim and loss of health insurance, and was quite overwhelmed. An insurance navigator takes off pressure. Great suggestion, Chris!

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Profile picture for faust73
faust73 | @faust73 | Feb 18, 2022

My name is Jo and I had back surgery with a fusion L4/L5 and have never been the same. It affected my life as I once knew it. I've always been very active physically working out for over 30 years. I also did a lot of volunteer work that I can't do and then we were hit with COVID. I'm bored at home and feel like I'm in jail. I have a husband but unfortunately does not have empathy and or sympathy especially when you still struggle. I do a lot more after 2 years but limited. I'm on medication which helps but would like to feel good enough that I just don't need anything. I am thankful for many things in my life and more fortunate than others but it still changed my life 90%..

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faust73 | @faust73 | Feb 18, 2022
In reply to @theai "i'm thea, a 67 year old woman who suffers from chronic pain. i have a lot..." + (show)
Profile picture for theai @theai

i'm thea, a 67 year old woman who suffers from chronic pain. i have a lot of arthritis in my kness, my shoulders and my back. i have lumbar and cervical radiculopathy. thats besides the herniated discs, etc. i also recently had a brain stem stroke which has caused pain in walking.

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I'm sorry my heart goes out to you.

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faust73 | @faust73 | Feb 18, 2022
In reply to @artscaping "Great suggestions @rwinney. May I add something for those of us that aren't good researchers (like..." + (show)
Profile picture for Chris, Alumni Mentor @artscaping

Great suggestions @rwinney. May I add something for those of us that aren't good researchers (like me). I have an insurance professional with whom I meet every year. She looks at the previous year and we talk about what medical issues I continue to have and what new ones are likely to present themselves. Then, she suggests and explains the opportunities with their specific benefits. I love it....an expert that fills in my mental gaps. This year is working out well and I am behaving.
Chris

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May I ask what kind of insurance professional you are using? And what specifically are the opportunities with specific benefits.

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irr4et | @irr4et | Feb 18, 2022

I am Irr4et and have a ? Can anyone tell me how to manage the very difficult symptoms of titrating off of Lyrica after being on it 10 years for Fibromyalgia? TU

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1 reply
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kenc | @kenc | Feb 19, 2022
In reply to @irr4et "I am Irr4et and have a ? Can anyone tell me how to manage the very..." + (show)
Profile picture for irr4et @irr4et

I am Irr4et and have a ? Can anyone tell me how to manage the very difficult symptoms of titrating off of Lyrica after being on it 10 years for Fibromyalgia? TU

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Perhaps consult w/ the prescribing doctor?

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Chris, Alumni Mentor | @artscaping | Feb 21, 2022
In reply to @faust73 "May I ask what kind of insurance professional you are using? And what specifically are the..." + (show)
Profile picture for faust73 @faust73

May I ask what kind of insurance professional you are using? And what specifically are the opportunities with specific benefits.

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The business mission is to help folks find the best insurance for their age, medical conditions, address (I had to wait a year to get registered as an MN resident and it saved me lots of money. I was paying CA prices and they are higher.).

There is no charge for their services......they are paid by the companies. My life partner has been with them for years. Last year I needed benefits for surgeries and chronic pain. This year, I will be focusing on my hearing issues of tinnitus and limited functioning and my aging eyes with macular degeneration and glaucoma. I also added dental insurance because my osteoporosis meds have some risk in terms of allergic reactions that involve the jaw.

Does that help answer your questions? What are you looking for in an insurance program?

May you be content and have peace.
Chris

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2 replies
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sallyw133 | @sallyw133 | Feb 22, 2022

Hi! Thanks I’m Sally and I’ve been suffering from chronic migraine for over 30 years, headaches along with other symptoms, nearly every day. Also, IBS, so abdominal pain.

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1 reply
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miho | @miho | Feb 28, 2022
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
Profile picture for Frank @frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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hi my name is miho I to suffer from dry eyes. do you know if you have sojgrens syndrome. I got great results with †ear duct plugs ,find a good dry eye dr. they are out there. you can try the plugs for 2 weeks to see if they help before you commit to the 6 month plugs. no pain at all having them put in. I have info of a great dry eye doctor in New Hampshire if you are interested .

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1 reply
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linamend | @linamend | Mar 1, 2022
In reply to @sallyw133 "Hi! Thanks I’m Sally and I’ve been suffering from chronic migraine for over 30 years, headaches..." + (show)
Profile picture for sallyw133 @sallyw133

Hi! Thanks I’m Sally and I’ve been suffering from chronic migraine for over 30 years, headaches along with other symptoms, nearly every day. Also, IBS, so abdominal pain.

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My sympathies to you. I've had chronic head pain 51 years. Sending you a hug.

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