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Grover's Disease: What works to help find relief?
I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?
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How did it go with using the extract form? 2 grocery stores were out of cilantro today so I was thinking it might be easier to go that route.
The extract works very well.
For some reason, despite watching this site daily, I don’t think I saw this pos
@nodgabnoj to ensure you don’t miss a post, you have the option to follow a group and/or discussion and get emails for every new post, I explain how in this blog post:
- Am I missing out? Where did all the emails go? https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/am-i-missing-out-where-did-all-the-emails-go/
I appreciate your attentiveness to the Grover’s disease discussions in the Skin Health group and your support for fellow members.
I don’t think I saw this post. How are you presently doing? I hope you are well and not suffering. I still do the liquid twice a day with only one minor break out. Given my good fortune now, I know it’s never really over.
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1 ReactionThanks.
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1 ReactionI had been back on fresh and frozen cilantro for about 3 months after realizing it was starting up again. It stalled the severity I believe.
The outbreak stayed very mild. This week only injesting cilantro every other day, using up the fresh and frozen supplies and plan to knock it off altogether next week. Still a sprinkling of papuales under the breast area and on lower front and back torso, yet the itching and pain sensations are neglible, only a few papuales have any sensation.
We never really know, is this outbreak mild because of the cilantro? Or is it mild because after years of dealing with GD and each outbreak getting milder, going from a pain and misery index of extreme to subsequent outbreaks less miserable is this common with others too.
Yet I will point out, until I did the first cilantro cleanses I had little relief and the cilantro gave me 2 1/2 years of inactivity.
It's unfortunate some can't locate cilantro regularly. Be sure to ask your grocery manager to order fresh cilantro on a regular basis. Smaller grocery chains have more flexiblity. Also a reminder the frozen worked just as well for me and others, so when you see it buy extra to freeze.
My dermatologist prescribed a course of tretinoin 0.1% lotion applied daily for 6 weeks. Anyone else tried it?
I don't have the time to research when I last wrote but, short story, had Grover's in early 2019 and after almost going insane I began the cilantro smoothies and got relief within a few months and it was totally gone within 8 months but continued smoothies intermittently. Then in 2020 I developed GCA, went on heavy duty high doses of prednisone, suffered every possible side effect (also lost my husband that year) and developed Grover's again this past September 2021. This time it came back as never before. Entire torso, all sides and I learned pressure and heat aggravate it. Because I was immobile due to muscle myopathy I was often in a leather recliner and my back became intensely involved. (I have since put a cotton sheet over it.) Alone in house, I had no way of applying anything. I I tried long handled things.) I went through every cream you have all mentioned, and my MD daughter finally said to take a valium at night to help sleep. That only worked a few times. Then she said to try a Benedryl with it. Worked a little better. The cilantro is doing nothing for me this time. Of course the triamcinolone never worked either. The prednisone caused me to develop avascular necrosis in both hips (bone death) so first hip replacement is February 28, less than a week away. I believe stress from my husband's death brought on the GCA and then the prednisone reduced my immunity to zero, which, coupled with the stress, triggered the Grover's. The only thing I have not done is the UVA treatment and don't intend to. My diet and supplements are extremely healthy. The prednisone gave me a severe case of Cushing Syndrome so the Grovers is even in my groin, where I have folds that never existed before after beginning to finally reduce weight. The hip pain is nothing compared to the itch/burning/pain of Grovers. I continue to get new ones and feel I am destined to continue until all health issues are resolved and I am off prednisone (another 7 months if lucky). I wear nothing but cotton and rarely anything with a waist because of the pressure. Same for undergarments. I only dress to see a doctor. I haven't given up on the cilantro. This time I truly believe it will not go away and I will go insane (just kidding) but I am seriously close to it. How can one little tiny pimply type thing cause so much pain and itch? Some of them are not even red. In additions, I have leiomyomas which also itch. I have a genetic mutation for HLRCC but so far have not had the cancer. And that is me now. I often think of my old friends on here and wonder how they are doing. Unable to sit for long periods of time I have not been on my computer. I send my well wishes to all of you and ask for your good thoughts next Monday when I have my hip replacement. I am hoping the pain meds the following week will numb the itching.
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2 ReactionsI am so very sorry to hear about all the suffering and trauma that you are, and have experienced . No one should have to endure that kind of pain. I wish There were something I could do or say to ease your situation. Life doesn’t seem to know about fairness. I sincerely hope your situation improves. I could say “stay strong”, but you obviously are.
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