1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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alescz | @alescz | Feb 5, 2022

I have serious neuropathy. It begun about a week after vaccination and it is in both my hands and arms. It is getting worse now after 2 months. Neurologists think it is due to using stick for walking after I broke my leg (two weeks before vaccination). But I do not think so. Life with this neuropathy is so bad that I can not imagine if it does not dissapear. I can not type and do most of things (57 years old)

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1 reply
sueholdenf | @sueholdenf | Feb 5, 2022
In reply to @alescz "I have serious neuropathy. It begun about a week after vaccination and it is in both..." + (show)
@alescz

I have serious neuropathy. It begun about a week after vaccination and it is in both my hands and arms. It is getting worse now after 2 months. Neurologists think it is due to using stick for walking after I broke my leg (two weeks before vaccination). But I do not think so. Life with this neuropathy is so bad that I can not imagine if it does not dissapear. I can not type and do most of things (57 years old)

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I’m also concerned , after having the phyzer vaccine , my neuropathy went overboard , can’t say if it was the vaccine or not ., but I’m suspicious. Cs. I ask please do you drive a car with your arms and hands , and I if things get to bad , dos a neurologist have the power to say you can’t drive anymore .

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ninette | @ninette | Feb 6, 2022
In reply to @silvern12 "Why doesn’t the pharmaceutical companies address this I find drs will not" + (show)
@silvern12

Why doesn’t the pharmaceutical companies address this I find drs will not

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Because until recently they didn't know. The vaccines were mostly tested on healthy people, not on people with neurological issues. This is why everyone needs to report their side effects to VAERS.

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silvern12 | @silvern12 | Feb 6, 2022

I did and basically the problems started after the vaccine.

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silvern12 | @silvern12 | Feb 6, 2022
In reply to @sueholdenf "Hi, I’m sue, and new mayo this group. I was diagnosed with SFN in 2018. I..." + (show)
@sueholdenf

Hi, I’m sue, and new mayo this group. I was diagnosed with SFN in 2018. I am 62 years. My condition is idiopathic so they say . I am going to see another neurologist as all I have had done was a 2 nerve conduction test and I believe there is more that can be done to really confirm this diagnosis. I have managed My SFN myself without medication , which I did not want to take , yet I live with constant discomfort . My concern is this year I had two AstraZeneca vaccines without incident , but I had my booster shot , the phyzer vaccine Four weeks ago and three days later my symptoms became unbearable , the pain , tingling and even my balance are quite bad and my concern is that this may be permanent . Of course I can’t blame the phyzer vaccine , but I think it may be a possibility . Has anyone experienced this too. I would appreciate anyones imput please, Thanks

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Yes i had the pheizer booster and now i get tingling all over my body especially at night. I only had stiff feet before totally manageable. I reported it but no response

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1 reply
sueholdenf | @sueholdenf | Feb 7, 2022

Thankyou for responding , good luck with it sll

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sueholdenf | @sueholdenf | Feb 7, 2022
In reply to @silvern12 "Yes i had the pheizer booster and now i get tingling all over my body especially..." + (show)
@silvern12

Yes i had the pheizer booster and now i get tingling all over my body especially at night. I only had stiff feet before totally manageable. I reported it but no response

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I also have the tingling to my body , during the night , which is new yo me

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taml | @taml | Feb 7, 2022
In reply to @pacer3702 "The good news is that most patients on Neuro V Long-Haulers are reporting improvement about 9..." + (show)
@pacer3702

The good news is that most patients on Neuro V Long-Haulers are reporting improvement about 9 months after vaccination. But most don't seem to have recovered completely. I still have numbness, nerve pain, and tire easily.
What helps me the most is rest and only light exercise. Most of the adverse reactions seem to be immune-mediated. Rest helps to suppress an overreactive immune system. I had an autoimmune response to the vaccine.
I would definitely share your information with your neurologist. The neurologists are seeing many patients like us Even if yours is skeptical, she should document the association in time in your chart.

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Hi. I've been dealing with back, leg, neck , and rib crushing pain since Mar 2021. 1st 2shots that turned to severe burning pain of all after booster. GPs and tests MRIs etc over and over. Sent to spine surgeon who was not interesting someone with so many areas of pain. Learned then, seems no one recommended a neurologist. I had to actually ask them to recommend a neurologist. How was I supposed to know this. I never dealt with back pain before vaccines. Now wait till April 15 2022 for that.
I find a lot of tests showing Myelitis, guillian- Barr, severe shingles. My brother has exact same severe pain, but couldn't take it, they found herniated disk. So he had surgery. Pain is not better.
Was not tested for Myelitis etc before surgery. There are treatments that improve all of these effects. These don't always show on MRIs. Why don't neurologist test for treatable nerve pains before doing surgery. Seems like common sense? A lumbar puncture? Do they always test for these problems before spine injections? You don't always have a fever, or paralysis with these treatable problems Maybe Myelitis is so rare, because they don't test for it till paralysis? I don't understand at all....
Also. Sorry for being lengthy!
Also, I also saw somewhere the 9 months slight improvement mentioned. But because vaccine side effects are so hidden and shunned, I can't find it again.
Thanks for all input and viewpoints.

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cyp238ress | @cyp238ress | Feb 8, 2022

My whole family is vaccinated and we also get the annual flu shot, so I am decidedly NOT antii-vax. But how the hell is it that there are so many people on this site (and others) with horrible reactions to this vaccine and there is not a single mention of it in the media, by the CDC, NIH, etc.? Yesterday I had to go on reduced schedule and am only work from home, and I'm possibly on my way to permanent disability. There must be some way that we collectively can get some attention drawn to this issue. I do not want to take it lying down. I have e-mailed Fox News (which I don't watch btw), New York Times, etc. and no response. I e-mailed Dr. Anne Oaklander. I will continue e-mailing other experts (Dr. Paul Offit, Dr. Michael Osterholm) until just one person responds to me and explains how the hell so many people are being injured by this and there is not a single mention of it.

If you have ideas for getting proper attention drawn to this issue, please share it!

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3 replies
cyp238ress | @cyp238ress | Feb 8, 2022
In reply to @pacer3702 "Another theory is the adverse effects may be batch dependent. You can find the list at..." + (show)
@pacer3702

Another theory is the adverse effects may be batch dependent. You can find the list at howbadismybatch com. My first Pfizer batch is listed as number 5 for associated deaths and number 14 for overall adverse events.

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I looked and my second batch was 7th on the list. Unbelievable........

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