1. < Gynecologic Cancers

Anyone living with metastatic endometrial Cancer? What treatments?

Posted by miriam57 @miriam57, Dec 14, 2021

Wondering if anyone out there is living with endometrial cancer and what treatments you have been through?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Mentor
Helen, Volunteer Mentor | @naturegirl5 | Dec 24, 2021
In reply to @miriam57 "We have things in common. I had my hysterectomy in May of 2020. It was Stage..." + (show)
@miriam57

We have things in common.
I had my hysterectomy in May of 2020. It was Stage 1A with a grade 2 tumor. They did three rounds of brachytherapy to reduce my chances from 20% to 5%.
In December of 2020, they did my first scan and there it was.
25 rounds?
How often and is it just the tumor or an area?
Does it hurt?
Thankyou for connecting.

Jump to this post

Hello, @miriam57 Yes, we do have things in common. My cancer was endometrial adenocarcinoma. It was diagnosed Stage 1a FIGO Grade 1 after the hysterectomy in 2019. Do you know what kind of endometrial cancer you were diagnosed with?

I was scared in 2019 before the hysterectomy and the relieved after since the GYN/ONC surgeon told me the results and that no further treatment was recommended at that time. But the fear lodged itself and every new twinge scared me. And now here I am with the recurrence.

How are you feeling?

The radiation is every day for 5 days a week with the exception of Christmas Eve and New Year's Eve. The PET/MR showed nothing. No tumors anywhere. So the cancer is considered microscopic with the only tell being the granular tissue that was found during my 6 month exam. So radiation is targeting the pelvic area including the lymph nodes and then 2 treatments of brachytherapy.

I don't have pain from the recurrent cancer or the radiation. I have pain from other causes like arthritis. And the exercise I do.

How was your brachytherapy? I'm told it's uncomfortable but not painful. Any advice on what to expect from brachytherapy?

REPLY
1 reply
miriam57 | @miriam57 | Dec 24, 2021
In reply to @naturegirl5 "Hello, @miriam57 Yes, we do have things in common. My cancer was endometrial adenocarcinoma. It was..." + (show)
@naturegirl5

Hello, @miriam57 Yes, we do have things in common. My cancer was endometrial adenocarcinoma. It was diagnosed Stage 1a FIGO Grade 1 after the hysterectomy in 2019. Do you know what kind of endometrial cancer you were diagnosed with?

I was scared in 2019 before the hysterectomy and the relieved after since the GYN/ONC surgeon told me the results and that no further treatment was recommended at that time. But the fear lodged itself and every new twinge scared me. And now here I am with the recurrence.

How are you feeling?

The radiation is every day for 5 days a week with the exception of Christmas Eve and New Year's Eve. The PET/MR showed nothing. No tumors anywhere. So the cancer is considered microscopic with the only tell being the granular tissue that was found during my 6 month exam. So radiation is targeting the pelvic area including the lymph nodes and then 2 treatments of brachytherapy.

I don't have pain from the recurrent cancer or the radiation. I have pain from other causes like arthritis. And the exercise I do.

How was your brachytherapy? I'm told it's uncomfortable but not painful. Any advice on what to expect from brachytherapy?

Jump to this post

Hi,
I had the same type of cancer. Stage 1, tumor grade 2.
The 3 rounds of brachytherapy were painless. It is fast. Takes them longer to set you up then the procedure. Although I was tires. However I am wondering if you are having fatigue from the 25 rounds. So it sounds like at your 6 month exam did they find a tumor?
Thinking of you, I also live my partner Mark, I can’t believe he stays with me. I have been dealing with this since we moved in together March of 2020. However he was my high school sweetheart. We stayed in touch and friends all these years.
I am wishing you a merry Christmas

REPLY
2 replies
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Dec 24, 2021
In reply to @miriam57 "Hi, I had the same type of cancer. Stage 1, tumor grade 2. The 3 rounds..." + (show)
@miriam57

Hi,
I had the same type of cancer. Stage 1, tumor grade 2.
The 3 rounds of brachytherapy were painless. It is fast. Takes them longer to set you up then the procedure. Although I was tires. However I am wondering if you are having fatigue from the 25 rounds. So it sounds like at your 6 month exam did they find a tumor?
Thinking of you, I also live my partner Mark, I can’t believe he stays with me. I have been dealing with this since we moved in together March of 2020. However he was my high school sweetheart. We stayed in touch and friends all these years.
I am wishing you a merry Christmas

Jump to this post

Thank you for your experience with brachytherapy. I realized today that I am a little fatigued from the external beam radiation. I rest when I need to but I keep up my exercise activity.

Mark is your high school sweetheart and now you are back together. He came back into your life and here you both are 19 months later. Do you think Mark realizes how special it is that you are back in his life? And this is why he stays?

REPLY
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Dec 30, 2021
In reply to @miriam57 "Hi, I had the same type of cancer. Stage 1, tumor grade 2. The 3 rounds..." + (show)
@miriam57

Hi,
I had the same type of cancer. Stage 1, tumor grade 2.
The 3 rounds of brachytherapy were painless. It is fast. Takes them longer to set you up then the procedure. Although I was tires. However I am wondering if you are having fatigue from the 25 rounds. So it sounds like at your 6 month exam did they find a tumor?
Thinking of you, I also live my partner Mark, I can’t believe he stays with me. I have been dealing with this since we moved in together March of 2020. However he was my high school sweetheart. We stayed in touch and friends all these years.
I am wishing you a merry Christmas

Jump to this post

Hello @miriam57. I've been thinking about you. How are you feeling?

REPLY
1 reply
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Dec 30, 2021
In reply to @rainna "I am living with metastatic endometrial cancer and, after metastasis was discovered I had carboplatin/paclitaxol/herceptin. Then..." + (show)
@rainna

I am living with metastatic endometrial cancer and, after metastasis was discovered I had carboplatin/paclitaxol/herceptin. Then just herceptin. Then doxil. Now deciding what to start on. All the options sound so scarey. How about anyone else?

Jump to this post

Hello @rainna Are you receiving other treatments or still trying to decide on options? How are you doing today?

REPLY
ejohn | @ejohn | Jan 5, 2022
In reply to @naturegirl5 "Hello @miriam57. I've been thinking about you. How are you feeling?" + (show)
@naturegirl5

Hello @miriam57. I've been thinking about you. How are you feeling?

Jump to this post

Hello @miriam57 and @naturegirl5 I haven't been on this is awhile and see you are both being warriors again. I sent you all good positive and healing energy. You both sound really positive and here for you. Eileen

REPLY
4 replies
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Jan 6, 2022
In reply to @ejohn "Hello @miriam57 and @naturegirl5 I haven't been on this is awhile and see you are both..." + (show)
@ejohn

Hello @miriam57 and @naturegirl5 I haven't been on this is awhile and see you are both being warriors again. I sent you all good positive and healing energy. You both sound really positive and here for you. Eileen

Jump to this post

Hello, Eileen. Thank you for checking back in and doe the nice comments. How are you doing?

REPLY
miriam57 | @miriam57 | Jan 8, 2022
In reply to @ejohn "Hello @miriam57 and @naturegirl5 I haven't been on this is awhile and see you are both..." + (show)
@ejohn

Hello @miriam57 and @naturegirl5 I haven't been on this is awhile and see you are both being warriors again. I sent you all good positive and healing energy. You both sound really positive and here for you. Eileen

Jump to this post

Thankyou,
How are you doing?

REPLY
miriam57 | @miriam57 | Jan 8, 2022
In reply to @rainna "I am living with metastatic endometrial cancer and, after metastasis was discovered I had carboplatin/paclitaxol/herceptin. Then..." + (show)
@rainna

I am living with metastatic endometrial cancer and, after metastasis was discovered I had carboplatin/paclitaxol/herceptin. Then just herceptin. Then doxil. Now deciding what to start on. All the options sound so scarey. How about anyone else?

Jump to this post

I meet in a week to see the combo they are recommending next.

REPLY
3 replies
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Jan 8, 2022
In reply to @miriam57 "I meet in a week to see the combo they are recommending next." + (show)
@miriam57

I meet in a week to see the combo they are recommending next.

Jump to this post

Hi @miriam57 I've been thinking about you and wondering how you are doing. Will you come back and tell me what's recommended? What day is your appointment so I can keep you in my thoughts and prayers?

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