COVID vaccines and neuropathy

I have a question for those who have experienced either new onset neuropathy, or neuropathy flares post vaccine. Or, if the question just generally applies to your neuropathy please comment. How much twitching, if any, do you experience with your neuropathy? Other than the burning and stinging in my feet, legs, hands and sometimes other random body areas, twitching and a slight feeling of weakness in my right leg has been a very predominant thing for me. I know that some neuropathy does cause twitching. And I do have nerve compression issues at S1 which my neurologist theorizes got very ramped up after the vaccine. I just wondered how much anyone else experiences this. Please refer back to my earlier posts if interested in my back story. I would also like to say thank you for the support of this group. The past year has been so very difficult and reading some of the stories and comments here has at least let me know that I am not alone and not crazy! I pray that each and every one of us has a marvelous 2022!

But now i am getting pins and needles like shocks when i get in bed at night which i never had before booster. I think the pharmaceutical companies need to take these reverse reactions more seriously.

I have sensory and motor peripheral neuropathy. My symptoms began 2 weeks after the first Pfizer vaccine. The motor neuropathy causes some muscle twitching, but that symptom has been improving over time. Has your neurologist tested you for autoimmune antibodies?

@pacer3702, no he has not. So you also experienced new onset neuropathy post vaccine?

Yes. There is an entire group of people on Facebook recovering from such neurological issues which appear to be vaccine-related. The group is called Neuro V Long-Haulers. Most are improving now about 9 months post-vaccine. My doctor discovered that my ANA autoantibodies increased again 8 months post-vaccine. The concern is if the vaccine precipitated an autoimmune disorder and the anti-COVID antibodies are attacking my healthy nerve tissue.]

The more people report these adverse side effects at VAERS, the more likely it is that the makers of these vaccines will look into it.

I am grateful to have found this group, as I have been suffering from neuropathy-like symptoms and other ailments for 9+ months after the vaccine. I am disheartened to see that so many of us are experiencing these adverse reactions and receiving little help from the medical community.

Prior to the vaccine, I was a healthy, active, 31-year-old with no prior medical conditions. I get the flu shot annually along with all other recommended vaccines and have never had an issue. I received the first dose of Moderna at the end of March 2021. A few days later, I developed an intense prickling/pins and needles feeling in my arm where I received the shot. Eventually, the pain and tingling moved into my leg and then up into my neck, face, and mouth. At this point, I consulted a doctor who recommended that I move forward with the second dose. He diagnosed me with paresthesias from the vaccine but said that it was not serious and should subside in a few weeks. He said he would report my reaction to VAERS, but did not actually do so until 9 months later when I followed up with him to ask for my case number.

I received the second dose as scheduled at the end of April 2021 and from there my symptoms exploded: burning, tingling, numbness, distorted temperature sensations on my skin, internal vibrating/buzzing, vision disturbances, sensitivity to light, and tinnitus. Around four months post-vaccine, I also developed muscle twitching/spasms all over my body (face, eyes, back, arms, legs, and in my core - almost like my organs themselves are twitching), along with ear pressure/popping. These symptoms have all persisted and migrate throughout my body.

My mother received one dose of Pfizer in April and has exactly the same paresthesia and muscle spasm symptoms (her muscle spasms also began around 4 months post-vaccine). Thankfully, we realized that the vaccine was not safe for her in time for her to refuse the second dose. Like me, she is healthy and active with no prior health concerns.

I have now seen two neurologists, an immunologist, and a rheumatologist who all concluded that these symptoms are a direct result of the vaccine. In addition, they each acknowledged that they have seen many patients like me and my mom; however, they do not know how to help us.

Over the time period of my vaccine injury, I have developed antibodies consistent with autoimmune diseases such as lupus and thyroid disease. Conditions that I did not have prior to the vaccine and do not run in my family. This vaccine has truly been life-altering for me. I am now facing a life-long illness after trusting that this vaccine was safe, had no long-term side effects, and would protect my community.

My mom and I would like to be part of a study for these types of adverse reactions. We are currently on a waitlist for a study with the NIH, but have not heard from them since the fall. Our local university research hospital declined to study our case. Could someone please direct me to current studies that we can join so that people with our reaction can receive support and eventually be screened before receiving these life-altering vaccines?

My heart truly goes out to all of you here. I hope we can find healing in this new year.

I am grateful to have found this group, as I have been suffering from neuropathy-like symptoms and other ailments for 9+ months after the vaccine. I am disheartened to see that so many of us are experiencing these adverse reactions and receiving little help from the medical community.

Prior to the vaccine, I was a healthy, active, 31-year-old with no prior medical conditions. I get the flu shot annually along with all other recommended vaccines and have never had an issue. I received the first dose of Moderna at the end of March 2021. A few days later, I developed an intense prickling/pins and needles feeling in my arm where I received the shot. Eventually, the pain and tingling moved into my leg and then up into my neck, face, and mouth. At this point, I consulted a doctor who recommended that I move forward with the second dose. He diagnosed me with paresthesias from the vaccine but said that it was not serious and should subside in a few weeks. He said he would report my reaction to VAERS, but did not actually do so until 9 months later when I followed up with him to ask for my case number.

I received the second dose as scheduled at the end of April 2021 and from there my symptoms exploded: burning, tingling, numbness, distorted temperature sensations on my skin, internal vibrating/buzzing, vision disturbances, sensitivity to light, and tinnitus. Around four months post-vaccine, I also developed muscle twitching/spasms all over my body (face, eyes, back, arms, legs, and in my core - almost like my organs themselves are twitching), along with ear pressure/popping. These symptoms have all persisted and migrate throughout my body.

My mother received one dose of Pfizer in April and has exactly the same paresthesia and muscle spasm symptoms (her muscle spasms also began around 4 months post-vaccine). Thankfully, we realized that the vaccine was not safe for her in time for her to refuse the second dose. Like me, she is healthy and active with no prior health concerns.

I have now seen two neurologists, an immunologist, and a rheumatologist who all concluded that these symptoms are a direct result of the vaccine. In addition, they each acknowledged that they have seen many patients like me and my mom; however, they do not know how to help us.

Over the time period of my vaccine injury, I have developed antibodies consistent with autoimmune diseases such as lupus and thyroid disease. Conditions that I did not have prior to the vaccine and do not run in my family. This vaccine has truly been life-altering for me. I am now facing a life-long illness after trusting that this vaccine was safe, had no long-term side effects, and would protect my community.

My mom and I would like to be part of a study for these types of adverse reactions. We are currently on a waitlist for a study with the NIH, but have not heard from them since the fall. Our local university research hospital declined to study our case. Could someone please direct me to current studies that we can join so that people with our reaction can receive support and eventually be screened before receiving these life-altering vaccines?

My heart truly goes out to all of you here. I hope we can find healing in this new year.