1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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anya40 | @anya40 | Dec 29, 2021
In reply to @lk61 "I have a question for those who have experienced either new onset neuropathy, or neuropathy flares..." + (show)
@lk61

I have a question for those who have experienced either new onset neuropathy, or neuropathy flares post vaccine. Or, if the question just generally applies to your neuropathy please comment. How much twitching, if any, do you experience with your neuropathy? Other than the burning and stinging in my feet, legs, hands and sometimes other random body areas, twitching and a slight feeling of weakness in my right leg has been a very predominant thing for me. I know that some neuropathy does cause twitching. And I do have nerve compression issues at S1 which my neurologist theorizes got very ramped up after the vaccine. I just wondered how much anyone else experiences this. Please refer back to my earlier posts if interested in my back story. I would also like to say thank you for the support of this group. The past year has been so very difficult and reading some of the stories and comments here has at least let me know that I am not alone and not crazy! I pray that each and every one of us has a marvelous 2022!

Jump to this post

I was thoroughly shocked recently when diagnosed with neuropathy. I thought only people with diabetes (which I don't have) suffered with neuropathy. However, I do have polymyalgia rheumatica, giant cell arteritis, and rheumatoid arteritis. When first diagnosed with this neuropathy I couldn't believe God would be so cruel as to let this happen to me since I'm dealing with so much already. I found a new rheumatologist who after many tests informed me that because my last rheumatologist kept me on Prednisone for such a long time, I now have osteoporosis as well. My first symptoms started with a hot crawly feeling in the soles of my feet at night. A few weeks later I started waking at night with burning on my legs from my knees to my ankles. Now, I've developed twitching in my face that wakes me from a sound sleep as well as severe headaches. I found a team of neurologists who treat people who suffer migraine headaches, diabetic and peripheral neuropathy as well as other disorders of the nervous system and am praying they can help me. I'd just like to say_ from all I've been reading I feel as though I'm at the very beginning of what will eventually become a horror story for me. I deal (on a daily basis) with pain from polymyalgia, back aches from osteoporosis, pain in all of my joints from arthritis, but he worst of it all is the almost unbearable anxiety that hovers over me constantly. I try to explain this all to my husband, but he just doesn't understand which leaves me alone in my world of aches, pains and anxiety.

REPLY
1 reply
silvern12 | @silvern12 | Dec 29, 2021

I get what your saying my husband also has no clue what I’m going through I really would like to know if from vaccine never had a problem just osteoarthritis not serious

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1 reply
silvern12 | @silvern12 | Dec 29, 2021
In reply to @pogo "Statins can cause neuropathy google stations & neuroathy" + (show)
@pogo

Statins can cause neuropathy google stations & neuroathy

Jump to this post

Since booster I am getting tingling all over body at night feels like electrical shocks impossible to get appt with neurologist and Mayo won’t accept new patients here

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Debbie | @dbeshears1 | Dec 30, 2021
In reply to @lk61 "I have a question for those who have experienced either new onset neuropathy, or neuropathy flares..." + (show)
@lk61

I have a question for those who have experienced either new onset neuropathy, or neuropathy flares post vaccine. Or, if the question just generally applies to your neuropathy please comment. How much twitching, if any, do you experience with your neuropathy? Other than the burning and stinging in my feet, legs, hands and sometimes other random body areas, twitching and a slight feeling of weakness in my right leg has been a very predominant thing for me. I know that some neuropathy does cause twitching. And I do have nerve compression issues at S1 which my neurologist theorizes got very ramped up after the vaccine. I just wondered how much anyone else experiences this. Please refer back to my earlier posts if interested in my back story. I would also like to say thank you for the support of this group. The past year has been so very difficult and reading some of the stories and comments here has at least let me know that I am not alone and not crazy! I pray that each and every one of us has a marvelous 2022!

Jump to this post

Hi - random twitching at times, but not noticeable to others. I try to think positive that it means some muscles or nerves are alive 😎. Good luck with your journey snd answers.

REPLY
twobrooklyn | @twobrooklyn | Dec 30, 2021
In reply to @silvern12 "I get what your saying my husband also has no clue what I’m going through I..." + (show)
@silvern12

I get what your saying my husband also has no clue what I’m going through I really would like to know if from vaccine never had a problem just osteoarthritis not serious

Jump to this post

Vaccine almost 100% sure it was caused by the shot. Try and do everything right and get PN,

REPLY
twobrooklyn | @twobrooklyn | Dec 30, 2021
In reply to @pogo "Statins can cause neuropathy google stations & neuroathy" + (show)
@pogo

Statins can cause neuropathy google stations & neuroathy

Jump to this post

Yes but it takes years!

REPLY
twobrooklyn | @twobrooklyn | Dec 30, 2021
In reply to @anya40 "I was thoroughly shocked recently when diagnosed with neuropathy. I thought only people with diabetes (which..." + (show)
@anya40

I was thoroughly shocked recently when diagnosed with neuropathy. I thought only people with diabetes (which I don't have) suffered with neuropathy. However, I do have polymyalgia rheumatica, giant cell arteritis, and rheumatoid arteritis. When first diagnosed with this neuropathy I couldn't believe God would be so cruel as to let this happen to me since I'm dealing with so much already. I found a new rheumatologist who after many tests informed me that because my last rheumatologist kept me on Prednisone for such a long time, I now have osteoporosis as well. My first symptoms started with a hot crawly feeling in the soles of my feet at night. A few weeks later I started waking at night with burning on my legs from my knees to my ankles. Now, I've developed twitching in my face that wakes me from a sound sleep as well as severe headaches. I found a team of neurologists who treat people who suffer migraine headaches, diabetic and peripheral neuropathy as well as other disorders of the nervous system and am praying they can help me. I'd just like to say_ from all I've been reading I feel as though I'm at the very beginning of what will eventually become a horror story for me. I deal (on a daily basis) with pain from polymyalgia, back aches from osteoporosis, pain in all of my joints from arthritis, but he worst of it all is the almost unbearable anxiety that hovers over me constantly. I try to explain this all to my husband, but he just doesn't understand which leaves me alone in my world of aches, pains and anxiety.

Jump to this post

Dear God it sounds so horrible. Yes the anxiety from what comes next is very unsettling to say the least. Prayers for sure,

REPLY
pogo | @pogo | Dec 30, 2021

My doctor told me to dump the statin and take vitamin B3 ( niacin) it does same thing.

REPLY
amyd67 | @amyd67 | Dec 30, 2021
In reply to @lk61 "I have a question for those who have experienced either new onset neuropathy, or neuropathy flares..." + (show)
@lk61

I have a question for those who have experienced either new onset neuropathy, or neuropathy flares post vaccine. Or, if the question just generally applies to your neuropathy please comment. How much twitching, if any, do you experience with your neuropathy? Other than the burning and stinging in my feet, legs, hands and sometimes other random body areas, twitching and a slight feeling of weakness in my right leg has been a very predominant thing for me. I know that some neuropathy does cause twitching. And I do have nerve compression issues at S1 which my neurologist theorizes got very ramped up after the vaccine. I just wondered how much anyone else experiences this. Please refer back to my earlier posts if interested in my back story. I would also like to say thank you for the support of this group. The past year has been so very difficult and reading some of the stories and comments here has at least let me know that I am not alone and not crazy! I pray that each and every one of us has a marvelous 2022!

Jump to this post

I don’t get twitching, but a tingly feeling in left ear, like constant feeling of hair in there, and left nostril which causes me to sneeze all of the time as well.

REPLY
silvern12 | @silvern12 | Dec 31, 2021

But now i am getting pins and needles like shocks when i get in bed at night which i never had before booster. I think the pharmaceutical companies need to take these reverse reactions more seriously.

REPLY
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