Facial fasiculations and drooping eyelid

Hi. I started with Botox because the first neurologist never gave the diagnosis but said options were invasive surgery or Botox. I found Botox to be only a band aid approach and tried physiotherapy because I thought the pinched nerve could be moved . Once off Botox and physiotherapy not working, my twitches were awful and very distracting,with my eye shutting frequently. I was referred to a new neurologist who immediately diagnosed me with HFS, explained what it was and the surgery. So I went with the surgery because it can actually fix the problem. Now, 5 weeks post surgery I notice a huge improvement although if I am tired or after reading a lot twitches occur and I have nausea off and on . January 2 I see my neurosurgeon to learn how long it takes to fully recover.

Thank you for input! Good luck on Jan 2nd. Keep me posted. Happy New Year!

Thanks. In my research of HFS the cause seems to be a few things so that was why an MRI ruled out MS or a tumour . My surgeon said it could be caused from a previous neck injury as well. I found researching it helps as it is à fairly new disorder

I have headaches since back surgery in 2006. The HFS just started last year.

I have had fasciculations for the last three years. It started with my left eye and went to my right eye. During this last year, it has now been occurring in various parts of my body. I have seen 4 neurologists. I have had 4 emg and nct. They have all been normal with just a few fasciculations. I have also had mri of most parts of my body and tons of blood work. All tests have come back normal. I know my body is not right. Yet, no one can tell me what this is. I am feeling hopeless as this is an everyday battle. Any help as this has really impacted my life negatively.

Check out benign fasciculation syndrome....bfs...I have had it fir 5 years. Started the same way

What do you do for it?

Hello @cduff19
.
Here is a link that explains some of the causes and treatments,
https://www.verywellhealth.com/benign-fasciculation-syndromes-2488771

What is your most difficult symptom now?

Hi. Has your neurologist mentioned benign fasciculation syndrome? I have twitching in my lower eyelid and random places throughout my body. Mine started the same day as a nasty viral illness. Do you remember being ill before this started for you?

Yes, I was not feeling well and was run down. Left eye began to twitching. Made me real nervous. And so this all began. Is there anything you do get rid of it?