Facial fasiculations and drooping eyelid

Posted by bumble81 @bumble81, Sep 11, 2019

Last April I started to notice my left upper eyelid was moving a lot more than what I think is normal. But I ignored it. Now the muscles below my left eye and down my cheek are firing off nonstop. It's very obvious to those around me. Also, my left eye has started to droop randomly off and on. I managed to get photos and videos this time.

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cduff19 | @cduff19 | Dec 20, 2021

In reply to @hopeful33250 "Hello @cduff19 . Here is a link that explains some of the causes and treatments, https://www.verywellhealth.com/benign-fasciculation-syndromes-2488771..." + (show)

Twitching of areas around my eyes.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 21, 2021

In reply to @cduff19 "Twitching of areas around my eyes." + (show)

Has your doctor offered any suggestions to help with twitching, @cduff19 and @franksgirl210?

cduff19 | @cduff19 | Dec 22, 2021

In reply to @hopeful33250 "Has your doctor offered any suggestions to help with twitching, @cduff19 and @franksgirl210?" + (show)

No, he did not. He ran a spinal tap. Said it’s fine. He said next step would be a muscle biopsy. But, I’m not thrilled about that. I hope he can give me something for these awful spasms.
Any suggestions?

Teresa, Volunteer Mentor | @hopeful33250 | Dec 22, 2021

@cduff19, I can understand your hesitancy to go through a muscle biopsy after all of the other tests you have been through. If it would be helpful to you, I would like to invite a member, @macygollob to discuss the process of a muscle biopsy. She recently had one and perhaps she can shed some light on the procedure.

Have you specifically asked your doctor for a med to control the twitching?

franksgirl210 | @franksgirl210 | Dec 23, 2021

In reply to @cduff19 "Yes, I was not feeling well and was run down. Left eye began to twitching. Made..." + (show)

I still have it, although it has gotten better since the onset. The one thing I have found that really seems to have calmed things down is the reduction in stress since I've changed jobs. Lorazepam also has helped me. I only take it if I'm really having a bad day. I have also been taking a vitamin complex for neurological support. I hope you can find something that helps calm things down for you.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 24, 2021

In reply to @franksgirl210 "I still have it, although it has gotten better since the onset. The one thing I..." + (show)

@franksgirl210

Some great suggestions for @cduff19 and any others who are dealing with fasciculation syndrome. It is great that you have had some improvment. Thanks again for sharing.