COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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cantab | @cantab | Dec 8, 2021

I’ve had 3 Moderna injections and have had no change in my PN…

twobrooklyn | @twobrooklyn | Dec 8, 2021

In reply to @mawmaw3 "I’m sorry you’ve developed this! Have you tried anything that helps?" + (show)

I exercise daily do deep tissue massage take vitamins and eat healthy. Currently on Pregabalin 150 mg twice daily plus Duloxetine 30 mg once daily. So far not going to badly. I will see a top neurologist in about two to three weeks.

twobrooklyn | @twobrooklyn | Dec 8, 2021

In reply to @cantab "I’ve had 3 Moderna injections and have had no change in my PN…" + (show)

Everyone is different!’

twobrooklyn | @twobrooklyn | Dec 8, 2021

Pfizer vaccine. The doctors here think it might be related to my PN.

twobrooklyn | @twobrooklyn | Dec 8, 2021

In reply to @mawmaw3 "I’m sorry you’ve developed this! Have you tried anything that helps?" + (show)

Yes on meds plus lots of exercise and vitamins. Plus a very clean diet.

emily75 | @emily75 | Dec 9, 2021

I was afraid of getting the Pfizer because I have neuropathy due to chemo. I then got the J and J. I had a variety of side effects. Have any of you had an increase in neuropathy symptoms from the Moderna vaccine?

ninette | @ninette | Dec 10, 2021

In reply to @emily75 "I was afraid of getting the Pfizer because I have neuropathy due to chemo. I then..." + (show)

Yes, after both the vaccines and the booster. Mainly in the legs. Lasting between 4 weeks and... the pain after the booster is still there, had it November 16th. Hopefully it goes away again soon. I wonder if they can update the vaccine so that it doesn't trigger immune systems so badly neuropathy wise.

amybeau | @amybeau | Dec 10, 2021

In reply to @ninette "Yes, after both the vaccines and the booster. Mainly in the legs. Lasting between 4 weeks..." + (show)

If you and your neurologist or doctor report it to both Vaers and the vaccine company you will be contacted. This is the only way they will be able to collect data and hopefully make changes. I didn’t have great luck on the phone with Pfizer but my doctor reported and they did send her paperwork to fill out. After reporting to Vaers, the CDC contacted me. I had horrible neurological side effects from my first dose of Pfizer. Slow recovery. I am 80 percent better 7 months out.

ninette | @ninette | Dec 10, 2021

I live in Belgium, but did report it online at VAERS and also locally here. The more people do this, the more likely it is that they might tweak the vaccines a bit. Apparently the glycol (the liquid that carries the 'messengers' for the immune system) is to blame in upsetting the immune system of some people. Or probably of quite a lot of people, as many experience this after Pfizer or Moderna.

mawmaw3 | @mawmaw3 | Dec 10, 2021

I am having a horrible time with an increase in neuropathy symptoms since having Pfizer vaccines. Symptoms were only in my feet and well controlled with duloxetine. Sharp stabbing pains, pins and needles, numbness in both feet, legs, arms, hands, face and trunk. Was walking fine. Now must use a walker to prevent falls. It’s been 5 months and symptoms are worsening!