Pudendal Nerve Entrapment/Neuropathy/Damage

@olivedog, I know it has to be a terrible feeling when you have pudendal nerve problems. I also hope there is an answer one day...soon. Here's some information I found that was last updated April 7, 2021.

" It typically requires permanent lifestyle changes and physical therapy. The treatment options include pharmacological therapy, CT guided blocks, ..." --- Pudendal Nerve Entrapment Syndrome: https://www.ncbi.nlm.nih.gov/books/NBK544272/

Hi,
Just wrote note...went poof. I use this article to take to every single place I have to go. I have never in my life been on pain pills in my life!!!! The pain is incidious. I blame the urogynecologist who gave me unguided kenelog injections to all 3 branches of the nerve transvaginally...right after that on July 5th. It started...pft got way too agressive also. The injections went through every single part the nerve is. It was only confined to the rectum where I just had repair surgery
In March, from a botched hemorrhoid banding. I needed rectopexy, cystocele, & rectocele repair. This was the 10th colorectal surgeon who finally listened. He advised me he could repair the rectum, but not the pain after defacation, which is the pudendal nerve. He said to start pft...was doing well, she got too aggressive, admitting to it. I was told to get triggerpoint injections, so I go, this is when the nerve was injected instead,. This doctor will not call...left me in the dust,. Recently in this pain went back to original urogynecologist who discovered scar tissue proving I was over dilated
In the hemorrhoid banding...he would do nothing but refer me out...&`this person, opted out of Medicare, charges
1000.00 cash for a consult!!!!! I left there so disappointed not to be helped again. My husband found a guy who does mri
Of the pelvis, radiologist out of UCLA...I have found a Cedar Sinai doc whose passion is pelvic floor pain...I'm not gonna give up., but to have even your own PCP, act awful, and these other urogynecologist fools.is insane. On alot of forums and most get worse after injections...kenelog..this is crazy stuff...no joke..Doctors need to be re educated, as this is not rare at all. Thank u for reading and the article...I know it well. God Bless you!!!

I have been diagnosed with pudendal nueralgia for 10 years. It is in the vaginal area which like you said no one likes to talk about. I also have fine fiber pheripheral nueropathy. . Pain Drs are now starting to advice I do spinal cord stimulation. I have been going to a pelvic floor therapist for 5 months which has not helped at all. Would like to hear what you have tried. At last found someone with a diagnosis of pudendal neuralgia.

I have had pudendal injections which have made me so much worse. Gastrointestinal cannot believe the pain a bowel movement causes me and want to keep giving laxatives. Have given up on gastroenterologist.

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I am in the midst of setting up appointment at UCLA with a protégé of Dr. Villablanca, a radiologist who does an MRN mri, of the path of the pudendal nerve. He then does know exactly where it is. I am conversing with Dr. Rapkin's nurse...and will be in the back of an uber soon. She will do a televisit first. I also have a new pain management group, who are real doctors, and care. It has been a very difficult road finding any doctor who even gets this. I have no clue why urogynecologists are even used??? Nuerologists, radiologists and anesthesiologists know more than them ??? I think hopefully soon this will change as more people come forward with their debilitating issues.

I have nerve entrapment , severe burning pain in anus. I've seen 17 doctors and had nultiple procedures. Have you found anything to help the pain. I can't sit at all

Welcome @clashganny, I'm not sure if @bkruppa is still following this discussion but hopefully the member will see your post and respond. I know you must be frustated having seen many doctors and having multiple procedures without any relief. There is a discussion started by @jenniferhunter that talks about all of the different conditions that can be helped by Myofascial Release Therapy (MFR). One of the condtions listed is pudendal nerve entrapment. Here is a link to her post in the discussion that has a Lumbo Sacral Decompression video with John Barnes -- https://connect.mayoclinic.org/comment/247117/

Have you heard of or tried MFR therapy?

Have you been to a colorectal Dr. The gastroenterologist does not do that area. I am 11 years into gastro pain and 6 gastroenterologist said I had nothing wrong in my colon. Went to UCDavis and Stanford. They called it pelvic floor dysfunction. 2 years at a pelvic PT and dozens of nerve blocks. I was having dysfunction of constipation and diarrhea with pain. After 8 years of suffering my pill doctor said let’s do a Celiac test. Yes I have it. Also the genes. It explains my different medical problems for 72 years. You have to go gluten free, very hard, but helpful. My rectal pain stayed because I had a damaged intestinal system. Now it is my anal canal. I think an anal fissure from the hard feces. I finally realized I needed a colorectal doctor. The gastroenterologist does not study that area. I am laying down using Recti Care 5% lidocaine in my rectum and acetaminophen suppositories. I finally got through to a colorectal Dr. And hope he takes me. It can be a fissure or sphincter muscles dysfunction. Both can be worked on easily. I am tired of crying everyday with pain. I know your pain. Oh they worked on my pudendal nerve as well, I have interstitial cystitis as well. That nerve is very tricky, they could not get to it with a nerve block. I cannot take any meds for pain.

Go to a colorectal Doctor. See my reply below. The pudendal nerve Is very difficult to locate since it splits and goes through a tunnel. I would not want surgery on that. There are other reasons for rectal pain. It has been a 11 year battle, but I hope I am seeing the right doctor now. Go to Mayo Clinic on the internet and look at rectal pain. The 6 gastroenterologist, the neurologist, the anesthesiologist were all wrong and I had to bear the pain because of their incompetence. Finally found out I have Celiac and problems caused over my 72 years of problems. Not one mentioned of Celiac. It is an autoimmune disease, that doctors are just being trained on. It even effects your brain. In fact in Redding there is not a doctor who knows what it is for 100 miles. I have osteoporosis, after 40 years of weight lifting. Arteriosclerosis that required a 4 inch shunt in my thigh that was blocked 90% and peripheral neuropathy. All from a lifetime of malnutrition caused by my damaged small intestine. I have a 40%more chance of Cardiac problems. My digestion is not right, but now the anal and rectal pain. A colorectal doctor works on that part and can fix a fissure or tightened sphincter. Good luck, use the internet. I wish I had it in1989 when I has interstitial cystitis. None of their torchers worked.