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mandiPNE (@mandee)

Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Jun 18 4:08pm | Replies (448)

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@clashganny

I have nerve entrapment , severe burning pain in anus. I've seen 17 doctors and had nultiple procedures. Have you found anything to help the pain. I can't sit at all

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Replies to "I have nerve entrapment , severe burning pain in anus. I've seen 17 doctors and had..."

Welcome @clashganny, I'm not sure if @bkruppa is still following this discussion but hopefully the member will see your post and respond. I know you must be frustated having seen many doctors and having multiple procedures without any relief. There is a discussion started by @jenniferhunter that talks about all of the different conditions that can be helped by Myofascial Release Therapy (MFR). One of the condtions listed is pudendal nerve entrapment. Here is a link to her post in the discussion that has a Lumbo Sacral Decompression video with John Barnes — https://connect.mayoclinic.org/comment/247117/

Have you heard of or tried MFR therapy?

Have you been to a colorectal Dr. The gastroenterologist does not do that area. I am 11 years into gastro pain and 6 gastroenterologist said I had nothing wrong in my colon. Went to UCDavis and Stanford. They called it pelvic floor dysfunction. 2 years at a pelvic PT and dozens of nerve blocks. I was having dysfunction of constipation and diarrhea with pain. After 8 years of suffering my pill doctor said let’s do a Celiac test. Yes I have it. Also the genes. It explains my different medical problems for 72 years. You have to go gluten free, very hard, but helpful. My rectal pain stayed because I had a damaged intestinal system. Now it is my anal canal. I think an anal fissure from the hard feces. I finally realized I needed a colorectal doctor. The gastroenterologist does not study that area. I am laying down using Recti Care 5% lidocaine in my rectum and acetaminophen suppositories. I finally got through to a colorectal Dr. And hope he takes me. It can be a fissure or sphincter muscles dysfunction. Both can be worked on easily. I am tired of crying everyday with pain. I know your pain. Oh they worked on my pudendal nerve as well, I have interstitial cystitis as well. That nerve is very tricky, they could not get to it with a nerve block. I cannot take any meds for pain.

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