Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for retired123 @retired123

I went to the Neuropathy Commons website, clicked on find a doctor for NV but zero names came up. Did I miss a step? Thank you.

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@retired123 You didn't miss a step. Unfortunately Neuropathy Commons doesn't list any neurologists for Nevada. Not sure why unless they don't have any neurologists that have been associated with Neuropathy Commons. Here's a search listing for Nevada from U.S. News site -- https://health.usnews.com/doctors/neurologists/nevada

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I thought I had small “cell” neuropathy but it is small “fiber.” What is the difference in these two?

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Profile picture for jansendscards @jansendscards

I thought I had small “cell” neuropathy but it is small “fiber.” What is the difference in these two?

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I think they are the same thing. I've not heard the term small cell neuropathy but this may be what is meant but I'm not sure.

"What is another name for small fiber neuropathy? Small fiber sensory neuropathy (SFSN) is a disorder in which only the small sensory cutaneous nerves are affected." --- Small Fiber Sensory Neuropathy - Johns Hopkins Medicine: https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/peripheral_nerve/conditions/small_fiber_sensory_neuropathy.html

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Profile picture for John, Volunteer Mentor @johnbishop

I think they are the same thing. I've not heard the term small cell neuropathy but this may be what is meant but I'm not sure.

"What is another name for small fiber neuropathy? Small fiber sensory neuropathy (SFSN) is a disorder in which only the small sensory cutaneous nerves are affected." --- Small Fiber Sensory Neuropathy - Johns Hopkins Medicine: https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/peripheral_nerve/conditions/small_fiber_sensory_neuropathy.html

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Thank you

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Has anyone tried the HFX Spinal Cord stimulator? I have read that they have had good success with Neuropathy. I have SFN so I'm not sure if that would respond differently.

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Profile picture for jansendscards @jansendscards

I have small cell neuropathy. My neuropathy is opposite of most as I have extreme pain instead of numbness. My Drs don’t know what to do with my pain. My pain is sharp pain in my legs and arms. My pain is causing me not to be able to work.

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Hello. I have received some help from Tegratol and Lyrica.

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I have mild chronic femoral neuropathy from an anterior hip surgery… though it may be consider mild I have lost a lot in my life walking …..walking my dog… anyone else have this experience from anterior hip replacement?

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Profile picture for StephanieT @slturley

Has anyone tried the HFX Spinal Cord stimulator? I have read that they have had good success with Neuropathy. I have SFN so I'm not sure if that would respond differently.

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Hi StepanieT @slturley -- There are a couple of discussion on stimulators that you might find helpful.

-- Has anyone tried the HF10 Spinal Cord Stimulation Device?: https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
-- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/

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Profile picture for amart26 @amart26

I have mild chronic femoral neuropathy from an anterior hip surgery… though it may be consider mild I have lost a lot in my life walking …..walking my dog… anyone else have this experience from anterior hip replacement?

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Hello @amart26, Welcome to Connect. There are a couple of other discussions you might find also find helpful.

-- Left hip pain and groin 3 years after posterior total hip replacement: https://connect.mayoclinic.org/discussion/left-hip-pain-and-groin-3-years-after-posterior-total-hip-replacement/
-- Strengthening exercises after total hip replacement: https://connect.mayoclinic.org/discussion/strengthening-exercises-after-total-hip-replacement/

How long ago was your hip surgery?

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Profile picture for amart26 @amart26

I have mild chronic femoral neuropathy from an anterior hip surgery… though it may be consider mild I have lost a lot in my life walking …..walking my dog… anyone else have this experience from anterior hip replacement?

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I had R anterior hip replacement in 2015 and have been dealing with R quad weakness ever since. PT recently found excessive scar tissue at the site and has improved situation with manual protocols. Femoral nerve apparently was stretched during dislocation process. Scar tissue and adhesions made the situation worse.

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