Anyone had a problem with neuropathy after receiving the vaccine?

@silvern12 Welcome to AZ! 🙂 That's a good idea to get the antibody test. I've been debating on whether or not to get the booster also.

I have not been vaccinated yet as I had a severe case of covid one year ago and I still have immunities from that. My hematologist told me that anything over 80 is considered positive and they don’t require the people in his office to be vaccinated if they can prove they’re positive for antibodies. I have mine checked every 2-3 wks and I just had them done last thurs. my #s are now 141 but I’m still positive so I’m holding off. I have neuropathy and many people have had bad nerve reactions so I’m leery of that.

@banksnc49 Hi Nancy - wow, thank you for sharing. I wasn't diagnosed with SFN until after my first two COVID vaccines and don't think they made anything worse but I was also working with my primary doctor at the time on what medication would help the symptoms I did have (that I now know were SFN symptoms). So, I really couldn't differentiate what was SFN symptoms, side effects from trying meds, COVID vaccine, etc. Just didn't have that full awareness at the time. I have a message in with my neurologist now to see what his recommendation is on the booster.

Had my booster shot three days ago. None of my COVID vacs affected my neuropathy that I've had for years.

I sure hope everything goes well for you. I find neuropathy to be something that is very hard to deal with. I’m having foot surgery at the end of this month and I’m praying it won’t make this neuropathy worse.

I agree. It is difficult. What I’m struggling with at this point is still all the unknown. My neurologist has me going thru a bunch of different tests to see if he can find an underlying cause. As of now it appears my small fiber and autonomic neuropathy are “idiopathic”. It seems to impact everyone differently and there’s really no way of knowing what to expect, how to prepare and what/how to treat. The worst symptom I experience at this point is chronic widespread pain, especially at night. I also have dizziness and sensations of motion but my doctor doesn’t think that’s related to the neuropathy so he’s doing different tests for that. Good luck on your foot surgery. I hope it goes well and does not exacerbate any symptoms.

Hello @mrsgeorgiou, I’m sorry for your dilemma. The sharp pains in my legs have diminished, but everything else continues to get worse. For me, however, since I have autoimmune disease caused PN, the neurologist believes I had an autoimmune reaction to the vaccine, causing my PN to spike after the shots.

I know others in this discussion have had their symptoms reduce over time, while others have not. I think it’s a risk that only you can resolve based upon your circumstances. Perhaps a medical provider can assist you in helping to decide. Best wishes.

Best of wishes for a positive outcome with your foot surgery, Nancy. Perhaps you can receive PT afterwards that might help keep your PN from worsening. Please let me know how your recovery goes.

For what it’s worth I had an antibody level in the 150s and got COVID. I was tracking my levels bc I only had 1 dose of moderna back in dec bc I experienced neuropathy issues 12 hours post vaccination. My current neurologist believes I had Gullian barre and recommends no further doses. Antibodies went to greater than 2500 post covid.

Was that 150 level prior to the vaccine or was that natural immunity from having covid? Mine is natural snd I have run this past 3 of my drs so far and they have supported me. I’m just very nervous about getting worse neuropathy from the vaccines. Plus, I’m immunosuppressive due to a kidney transplant so I would already have to get 3 shots just to get some kind of immunity with another booster coming soon.