1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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elizabethburgess | @elizabethburgess | Oct 30, 2021
In reply to @nerak8 "Mine was so much worse after my second Pfizer shot. It took 3 months to get..." + (show)
@nerak8

Mine was so much worse after my second Pfizer shot. It took 3 months to get back to my normal level of pain. I was dreading getting the booster but decided to do the J &J about a week ago. So far so good.

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Well i am hoping for that! The 2nd shot kicked it all in to high gear so anything less would be good. Good luck!

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raebaby | @raebaby | Oct 31, 2021

I just turned 80. I'm on chemo for breast cancer. I got both Moderna shots and around 2 months ago I got the booster .I got a flu shot at the same time. I had no reaction to any of them. I have neuropathy that makes my feet pretty numb and they are actually getting better.

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soberrunt | @soberrunt | Nov 4, 2021
In reply to @liz6 "I got my Pfizer vaccine 5 weeks ago and 1 week after I started having burning..." + (show)
@liz6

I got my Pfizer vaccine 5 weeks ago and 1 week after I started having burning and tingling/numbness in my feet. I have a neuropathy from chemotherapy but haven’t felt it for 3 years. I’m still having significant discomfort and it seems to be getting worse. I regret getting this vaccine now that this has happened because it makes walking and sleeping difficult

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I haven't had Chemo but after my second Pfizer shot, I've been having that tingling feeling mostly in my fingers and in my back. It's scary and it hurts! I am regretting getting the shots and am not planning on getting the booster.

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tonyinaus | @tonyinaus | Nov 5, 2021

I have CIDP and I’ve just now had my booster shot with no unusual side effects that two Tylenol could not fix.

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mrsgeorgiou | @mrsgeorgiou | Nov 7, 2021
In reply to @athenalee "Unfortunately, I think the jury is still out. I mentioned previously that my neuropathy symptoms increased..." + (show)
@athenalee

Unfortunately, I think the jury is still out. I mentioned previously that my neuropathy symptoms increased after the first Pfizer shot, but I decided to go ahead not knowing if it was truly the vaccine or just the normal development of symptoms for my body. Plus, I am fully in support of getting the vaccine to help our world get out of this pandemic. I had my second shot on Thursday. Normal minor flu like response, however, my neuropathy, plus joint and muscle pain, has increased again. I hope that some researchers are going to investigate these occurrences, as this second hike in symptoms is even worse than the first. Clearly not everyone is having this sort of reaction, but it seems there are enough of us that it warrants attention.

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Hi. Has it gotten any better for you? Thanks

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mrsgeorgiou | @mrsgeorgiou | Nov 7, 2021

Hi.. hope everyone here is continuing to heal. I had my first dose Pfizer 7 weeks ago and developed neuropathy (along w other side effects…random chills for weeks, loss of appetite, foggy, nausea) about 30min after and still haven’t been the same since. I’m due for my 2nd shot and really scared. Getting mixed reviews from doctors. But I’m other trapped in Australia from the USA entire lockdown and so desperate to get out and back to my family. I don’t want to make a stupid decision based on that. Has anyone experienced neuropathy for the first time from vax? If so did you have second? Thank you 🙏🏼

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3 replies
mrsgeorgiou | @mrsgeorgiou | Nov 7, 2021
In reply to @silvern12 "I am scheduled to get the booster this week and am hesitant because i have just..." + (show)
@silvern12

I am scheduled to get the booster this week and am hesitant because i have just been diagnosed with peripheral neuropathy idiopathic I also have been having severe headaches for over a month. Can’t find the reason brain ok says might be neck or tmj. Any advice very nervous about getting shot but will be flying to Arizona to move and thought I should get it before traveling.

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Hi! I’m in a similar boat now and trying to get back to the states from Australia. Did u go ahead w shot ? Thanks

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1 reply
mrsgeorgiou | @mrsgeorgiou | Nov 7, 2021
In reply to @tamster "I developed peripheral nerve issues after my first Moderna shot. My doctor refuses to believe that..." + (show)
@tamster

I developed peripheral nerve issues after my first Moderna shot. My doctor refuses to believe that the shot is to blame. He is testing me for auto immune issues. I was feeling all alone too! Not getting the second shot, at least for now.

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Same exact boat. Did you ever get second?

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1 reply
silvern12 | @silvern12 | Nov 7, 2021
In reply to @mrsgeorgiou "Hi! I’m in a similar boat now and trying to get back to the states from..." + (show)
@mrsgeorgiou

Hi! I’m in a similar boat now and trying to get back to the states from Australia. Did u go ahead w shot ? Thanks

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I got both shots but still holding off on booster. I went for antibody test and said they were high. We are in the midst of a move to Arizona from Long Island this week Once we are settled in I might consider the shot. Very nervous though about getting Most drs say better to get my allergist said can hold off and go for another antibody test to see if needed.

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1 reply
lk61 | @lk61 | Nov 8, 2021
In reply to @mrsgeorgiou "Hi.. hope everyone here is continuing to heal. I had my first dose Pfizer 7 weeks..." + (show)
@mrsgeorgiou

Hi.. hope everyone here is continuing to heal. I had my first dose Pfizer 7 weeks ago and developed neuropathy (along w other side effects…random chills for weeks, loss of appetite, foggy, nausea) about 30min after and still haven’t been the same since. I’m due for my 2nd shot and really scared. Getting mixed reviews from doctors. But I’m other trapped in Australia from the USA entire lockdown and so desperate to get out and back to my family. I don’t want to make a stupid decision based on that. Has anyone experienced neuropathy for the first time from vax? If so did you have second? Thank you 🙏🏼

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@mrsgeorgiou I had new onset neuropathy along with other odd symptoms after my I
1st Pfizer 11 months ago. I did get the 2nd shot without a noticeable increase in symptoms. However after almost a year, I still have the symptoms with only a slight improvement. I’m now struggling with the notion of getting a booster. As you said, I’ve never been the same. At the same time, I remain convinced the vaccines are a good thing for the overwhelming majority of folks. It’s a very odd position to be in. Blessings to you as you decide what’s best for you.

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