Burning feet and legs

Posted by jimmy 370 @jimmy370, Dec 9, 2020

Anyone have burning feet and legs, and back here in Albany NY been to 8-10 specialists! And no one can give me a answer what is causing it! Thanks jim

Interested in more discussions like this? Go to the Neuropathy Support Group.

@kayeellen

My pain is in the lower lumbar of my back and that is where the LUMBAR FUSION was done about 3 1/2 years ago.. The pain / burning sensation radiates up my back. Dr told me that this radiating pain could be coming from the wear on the SI area (noticed on the MRI and CT scan ) and that is why he, Dr, recommended the SI STEROID INJECTION. which did NOT help at all. I also have the leg weakness. At Dr suggestion I did try physical therapy, I tried P/T but that did NOT work. I walk with pain all of the time. A friend suggested for the pain - Tylenol Arthritis 8 HR. - I got some yesterday and I'm going to try this as the TRAMADOL just took the EDGE off for the pain. I am most definitely going to check-out the Myofascial Release Therapy. to see what that is all about.

Jump to this post

Just a note about the 8 the time release Tylenol. My doctor told me to only take 3, yes, 3 of those a day. So instead of taking 2 at a time, I take 1 when I get up, 1 later in the morning or about noon if needed, the 3rd one I may or may not take in the evening. Helps but nothing is perfect!

REPLY
@jetsetter

Just a note about the 8 the time release Tylenol. My doctor told me to only take 3, yes, 3 of those a day. So instead of taking 2 at a time, I take 1 when I get up, 1 later in the morning or about noon if needed, the 3rd one I may or may not take in the evening. Helps but nothing is perfect!

Jump to this post

@jetsetter I did read the directions on the arthritis 8 hr and I did see the 2 every 8 hours. So, I did start off with just one every 8 hours. So far it seems to be working with the pain. This foot numbness and leg weakness is absolutely awful. I guess that goes along with getting OLDER. Thanks so very much for your information.

REPLY
@kayeellen

My pain is in the lower lumbar of my back and that is where the LUMBAR FUSION was done about 3 1/2 years ago.. The pain / burning sensation radiates up my back. Dr told me that this radiating pain could be coming from the wear on the SI area (noticed on the MRI and CT scan ) and that is why he, Dr, recommended the SI STEROID INJECTION. which did NOT help at all. I also have the leg weakness. At Dr suggestion I did try physical therapy, I tried P/T but that did NOT work. I walk with pain all of the time. A friend suggested for the pain - Tylenol Arthritis 8 HR. - I got some yesterday and I'm going to try this as the TRAMADOL just took the EDGE off for the pain. I am most definitely going to check-out the Myofascial Release Therapy. to see what that is all about.

Jump to this post

I have had three lumbar decompression surgeries in the last six years with the last two years ago which included L2-5 fusion. Have aching, burning and cramping in lower back and down legs. Have had all the meds and injections with no improvement. Presently having Manual PT and Sanexas cell signaling treatments. Will be starting protocol 525 soon if no results from present treatments.

REPLY
@bwin11

I have had three lumbar decompression surgeries in the last six years with the last two years ago which included L2-5 fusion. Have aching, burning and cramping in lower back and down legs. Have had all the meds and injections with no improvement. Presently having Manual PT and Sanexas cell signaling treatments. Will be starting protocol 525 soon if no results from present treatments.

Jump to this post

What is PROTOCOL 525 ?

REPLY
@kayeellen

What is PROTOCOL 525 ?

Jump to this post

Hi @kayeellen, There is a discussion on the Protocol 525 that you might find helpful - Have you tried the new Protocol 525 product for neuropathy relief?: https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/

They also have a website and a Facebook group for support - https://theprotocol525.com/

REPLY

Do the specialists include a Neurologist?
Has a nerve conduction test been done?
Have any suggested or rejected neuropathy as a diagnosis?

REPLY
@bwin11

I have had three lumbar decompression surgeries in the last six years with the last two years ago which included L2-5 fusion. Have aching, burning and cramping in lower back and down legs. Have had all the meds and injections with no improvement. Presently having Manual PT and Sanexas cell signaling treatments. Will be starting protocol 525 soon if no results from present treatments.

Jump to this post

@kayeellen Hi. I hope you get some relief with these different treatments. Please keep the group posted as it's very helpful to know what has or has not worked for others. Thanks.

REPLY
@amandajro

@lexilulu it is pretty normal to be scared about what you read sometimes. It is good to hear your circulation test was fine. What is he recommending next?

Jump to this post

All he prescribed was medication. One at a time. Tried four different ones & I couldn’t tolerate the side effects, so he referred me to the Pain Clinic. So I don’t per say even have a dr other than my regular family physician. I’ve considered getting a spine implant to block the pain signal from going to my brain & hoping I could go off of the Gabapentin. My memory is getting really bad, & I’ve been told it’s the Gabapentin brain! What I’m going to do first though, as a spinal plant will be my last resort, is to get a clear diagnosis that I have SFN by getting a Skin Punch Biopsy where they study the cells to determine. I want to know for SURE this is what I have & then deal w/ it best I can, accept it & move forward.

REPLY
@lexilulu

All he prescribed was medication. One at a time. Tried four different ones & I couldn’t tolerate the side effects, so he referred me to the Pain Clinic. So I don’t per say even have a dr other than my regular family physician. I’ve considered getting a spine implant to block the pain signal from going to my brain & hoping I could go off of the Gabapentin. My memory is getting really bad, & I’ve been told it’s the Gabapentin brain! What I’m going to do first though, as a spinal plant will be my last resort, is to get a clear diagnosis that I have SFN by getting a Skin Punch Biopsy where they study the cells to determine. I want to know for SURE this is what I have & then deal w/ it best I can, accept it & move forward.

Jump to this post

BTW, when symptoms started I was referred to Spine Clinic. They performed peripheral neuropathy tests & I was fine. So they referred me to a Podiatrist & he said it was my back… sensory nerves. So he referred me to Pain Clinic. They gave me an epidural, which did nothing for my feet, but helped my back. Have L-4/L-5 impingements & a bulged disk. Also a pinched nerve in my pelvic region. We then discussed the Spine Implant. I was getting a pre-authorization from insurance & reading testimonials on the implants. At that time, there were a lot of negative comments & people wanted them out. Since then I talked to a couple who both have them & they are now smaller & MRI friendly where before you wouldn’t be able to ever get an MRI if needed. The thing is neuropathy is not curable, ok. But small fiber neuropathy is not only curable, but it’s fatal. This is why I want an absolute diagnosis. The burning will go from head to toe! Just need to know truth, and deal w/ it.

REPLY
Please sign in or register to post a reply.