Burning feet and legs

Posted by jimmy 370 @jimmy370, Dec 9, 2020

Anyone have burning feet and legs, and back here in Albany NY been to 8-10 specialists! And no one can give me a answer what is causing it! Thanks jim

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Here in Albany Ny as well Who do you see? ANy luck I was just diagnosed and I am terrified. Not sure what to expect. Not getting any answers lots of questions.

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@julkun

My pain doctor wants to implant a spinal cord stimulator too for my PN. Did you first have a temporary one before the actual implant?

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I agree I was just recently diagnosed and the doctor I was referred to SUCKS. Im lost not sure what to do next. No treatment suggested, nothing...not sure what to do next. I may need to go to NYC I was just told I have a "severe case of PN nothing else. ..no further info...trying to get my hands on the test ...Im terrified...

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@kayeellen

Yes, I most certainly have burning with my feet and leg weakness. So awful.

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Me too how long was it from first symptoms ? Mine was rather quick burning feet to leg pain weakness in 2 months .

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I am 65 and was diagnosed with SFN in June 2018 by Mayo Rochester. Initially I had burning sensation with some pain at the bottom of my feet. I had to take early retirement from UNICEF. It may be funny for some members to know that while I remained uncomfortable walking, I was able to jog daily for a minimum of 8 kilometers despite progressive deterioration. I continued with jogging for 4 years without missing a single day. However my neuropathy gotten so bad over the last few months that I had to discontinue my daily jogging routine. The situation now is that I cannot even go from my bed to the bathroom. I have tried all kind of remedies including changes in diet with extended intermittent fasting but with no positive outcome. I have been experiencing severe numbness with a lot of other weired sensation. My feet feel squeezed and slippery with burning pain and numbness sensation as if there is a rubber strap/band attached to my feet with 4 strong men are pulling it in different directions and I am walking on a heap of hot wax mixed with red chillies. I am wondering whether members have experienced such sensation and what remedy have they applied to get some relief.

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@nukhan

I am 65 and was diagnosed with SFN in June 2018 by Mayo Rochester. Initially I had burning sensation with some pain at the bottom of my feet. I had to take early retirement from UNICEF. It may be funny for some members to know that while I remained uncomfortable walking, I was able to jog daily for a minimum of 8 kilometers despite progressive deterioration. I continued with jogging for 4 years without missing a single day. However my neuropathy gotten so bad over the last few months that I had to discontinue my daily jogging routine. The situation now is that I cannot even go from my bed to the bathroom. I have tried all kind of remedies including changes in diet with extended intermittent fasting but with no positive outcome. I have been experiencing severe numbness with a lot of other weired sensation. My feet feel squeezed and slippery with burning pain and numbness sensation as if there is a rubber strap/band attached to my feet with 4 strong men are pulling it in different directions and I am walking on a heap of hot wax mixed with red chillies. I am wondering whether members have experienced such sensation and what remedy have they applied to get some relief.

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Hi @nukhan, You will notice that we moved your post to an existing discussion on the same topic so that you can meet other members like @gbny1224, @julkun, @virgormt, @sam31 and others with similar symptoms. If you click the link below it will take you to the start of the discussion so that you can read through the posts:

-- Burning feet and legs:
https://connect.mayoclinic.org/discussion/burning-feet-and-legs/

I'm wondering if you have seen any of the complementary and alternative treatments on the Foundation for Peripheral Neuropathy's website here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

You mentioned having tried a lot of things, have you done any research into alternative treatments?

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@johnbishop

Hi @nukhan, You will notice that we moved your post to an existing discussion on the same topic so that you can meet other members like @gbny1224, @julkun, @virgormt, @sam31 and others with similar symptoms. If you click the link below it will take you to the start of the discussion so that you can read through the posts:

-- Burning feet and legs:
https://connect.mayoclinic.org/discussion/burning-feet-and-legs/

I'm wondering if you have seen any of the complementary and alternative treatments on the Foundation for Peripheral Neuropathy's website here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

You mentioned having tried a lot of things, have you done any research into alternative treatments?

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In reply to @johnbishop thank you John for your prompt feedback and continued support. Yes, I am member of Foundation for Peripheral Neuropathy and have thus far tried acupuncture, red light therapy, Vitamin B12 shots, homeopathic and medicines plus supplements contained in Protocol 525.

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If I may recommend someone on the east coast, the NY Hospital for Special Surgery's team of doctors that work with you is something else: https://www.hss.edu/neurology.asp They were the first one's for me that diagnosed CRPS.

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Does anyone have suggestions for burning feet? My soles are very sensitive and are quite red by the end of the day. My first few steps when I awaken hurt. We are planning on a much-needed vacation that will involve a lot of walking. I don't want to disappoint my husband. I purchased two pairs of shoes, but they will not work. I tried wearing each around the house and dread telling my husband they won't work. I have purchased a number of different socks hoping that would help. Is there such a thing as a "cooling" insert? Any suggestions will be appreciated. Thank you! @joybringer1

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@joybringer1

Does anyone have suggestions for burning feet? My soles are very sensitive and are quite red by the end of the day. My first few steps when I awaken hurt. We are planning on a much-needed vacation that will involve a lot of walking. I don't want to disappoint my husband. I purchased two pairs of shoes, but they will not work. I tried wearing each around the house and dread telling my husband they won't work. I have purchased a number of different socks hoping that would help. Is there such a thing as a "cooling" insert? Any suggestions will be appreciated. Thank you! @joybringer1

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I have problems with my feet. I purchased scholls inserts from amazon and that have helped.

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@joybringer1

Does anyone have suggestions for burning feet? My soles are very sensitive and are quite red by the end of the day. My first few steps when I awaken hurt. We are planning on a much-needed vacation that will involve a lot of walking. I don't want to disappoint my husband. I purchased two pairs of shoes, but they will not work. I tried wearing each around the house and dread telling my husband they won't work. I have purchased a number of different socks hoping that would help. Is there such a thing as a "cooling" insert? Any suggestions will be appreciated. Thank you! @joybringer1

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Hello. I thought I'd comment, although I don't have a suggestion for burning feet. Your post caught my attention, however, because of how much more I have come to consult with my podiatrist since being diagnosed with peripheral neuropathy, or PN. I have had PN symptoms for a number of years, and, so far, those symptoms have involved largely my feet and, to a lesser degree, my legs (general weakness). But no burning. And no pain. In fact, the oddest thing was if it hadn't been for an EMG test last fall, I might still not realize that the nerves in my feet are no longer sending proper signals to my brain. The result: a wobbly gait (aka big-time balance problems). That's enough about my situation. Once again, I felt urged to comment to mention what a big help my podiatrist has become in my battle with PN – and to ask if you've got a podiatrist you like and trust. That might be the best route to relief from your burning feet.
__Ray (@ray666)

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