1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

mnblue50 | @mnblue50 | Oct 13, 2021
In reply to @kathrynt "Hi Kathleen: Did you get your second vaccine, and if so, did your neuropathy symptoms worsen..." + (show)
@kathrynt

Hi Kathleen: Did you get your second vaccine, and if so, did your neuropathy symptoms worsen even more?

I developed neuropathy in my feet three weeks after my second Pfizer Covid-19 vaccine which was on March 10. It has remained the same. I have seen a neurologist and had the muscle and nerve tests which were normal. I am reluctant to get a booster.

Thank you, Kathryn

Jump to this post

I developed horrible nerve pain in my legs and all down my right side the morning after I was injected with the Senior High Dose Flu Vaccine! I had never in my life experienced this kind of pain. It has been over a year now with constant pain from my butt down my leg to shin and ankle. Doctor says this is impossible. One neurosurgeon out of several says it is possible. Do I take covid vaccine after this reaction that has ruined my life? Advice please. You don't need to agree.

REPLY
deanna2 | @deanna2 | Oct 13, 2021

My neuropathy increased a few weeks BEFORE I had my Pfizer vaccinations. Thank goodness it happened before rather than after, or I would have assumed a cause and effect relationship rather than just a coincidence as it obviously was in my case.

REPLY
pollysparrow | @pollysparrow | Oct 13, 2021
In reply to @kathrynt "Hi Kathleen: Did you get your second vaccine, and if so, did your neuropathy symptoms worsen..." + (show)
@kathrynt

Hi Kathleen: Did you get your second vaccine, and if so, did your neuropathy symptoms worsen even more?

I developed neuropathy in my feet three weeks after my second Pfizer Covid-19 vaccine which was on March 10. It has remained the same. I have seen a neurologist and had the muscle and nerve tests which were normal. I am reluctant to get a booster.

Thank you, Kathryn

Jump to this post

DO NOT PLAN ON ONE EITHER i HAVE NEVER BEEN THE SAME PAIN IN HANDS FEET KNEES EVEN ELBOWS BARB

REPLY
littlenoise | @littlenoise | Oct 17, 2021

I *think* I may be getting better.

I'm taking a shitton of supplements and anti-histamines and Gabapentin (up to 300 mg 3 times daily).

I eliminated B vitamins after reading that an overload of those can cause neuropathy type feelings.

I quit wearing compression socks because they were actually making the tingling in my calves worse. I have loosened all of the laces on my shoes because it seems that my feet and legs swell throughout the day and that makes everything worse.

Everything I'm currently taking (I KNOW it sounds outrageous, but I don't know which combination is working, so I'm afraid to eliminate anything):

- Gabapentin 300 mg 3 x daily
- Fish Oil with Vit. D (always have taken) 1200 mg/50 mcg 1 x daily
- Magnesium 100 mg 2 x daily
- Bromelain 600 mg 2 x daily
- Alpha Lipoic 1200 mg 2 x daily
- Montelukast 10 mg 1 x daily (always have taken)
- Sulindac 200 mg 2 x daily (acquired for previous injury & doctor refills for arthritis problems)
- Famotidine 20 mg 3 x daily
- Ceterizine 10 mg 2 x daily (afternoon and evening)
- Fexofenadine 24 hr 180 mg 1 x daily (morning)
- Glucosamine/Chondroitin/Tumeric 1500/150/150 2 x daily
- Probiotic 1 x daily

I drink 1 protein drink (Ensure Original) every morning with my breakfast of pills.

I also try to drink at least 1 Body Armour daily because I suck at drinking water.

I've been to a GP, Podiatrist, Acupuncturist, Chiropractor, Massage Therapist, and Physical Therapist.

My feet are just barely tingly at this point. My fingers still zap on occasion. My lower back sometimes feels like hell, but it's intermittent. My joints still ache, but they always have, it's just up a couple of notches. I still have that one weird hot spot on my right outer thigh (that was my very first weird symptom).

Can you believe that I'm still having sneezing and slightly runny nose from allergies with all those anti-histamines (off label doses) I'm taking? Unbelievable!

Said I'd report in... I'll continue to keep you posted. I wish everyone the rebound I seem to be experiencing.

REPLY
2 replies
littlenoise | @littlenoise | Oct 17, 2021
In reply to @littlenoise "I *think* I may be getting better. I'm taking a shitton of supplements and anti-histamines and..." + (show)
@littlenoise

I *think* I may be getting better.

I'm taking a shitton of supplements and anti-histamines and Gabapentin (up to 300 mg 3 times daily).

I eliminated B vitamins after reading that an overload of those can cause neuropathy type feelings.

I quit wearing compression socks because they were actually making the tingling in my calves worse. I have loosened all of the laces on my shoes because it seems that my feet and legs swell throughout the day and that makes everything worse.

Everything I'm currently taking (I KNOW it sounds outrageous, but I don't know which combination is working, so I'm afraid to eliminate anything):

- Gabapentin 300 mg 3 x daily
- Fish Oil with Vit. D (always have taken) 1200 mg/50 mcg 1 x daily
- Magnesium 100 mg 2 x daily
- Bromelain 600 mg 2 x daily
- Alpha Lipoic 1200 mg 2 x daily
- Montelukast 10 mg 1 x daily (always have taken)
- Sulindac 200 mg 2 x daily (acquired for previous injury & doctor refills for arthritis problems)
- Famotidine 20 mg 3 x daily
- Ceterizine 10 mg 2 x daily (afternoon and evening)
- Fexofenadine 24 hr 180 mg 1 x daily (morning)
- Glucosamine/Chondroitin/Tumeric 1500/150/150 2 x daily
- Probiotic 1 x daily

I drink 1 protein drink (Ensure Original) every morning with my breakfast of pills.

I also try to drink at least 1 Body Armour daily because I suck at drinking water.

I've been to a GP, Podiatrist, Acupuncturist, Chiropractor, Massage Therapist, and Physical Therapist.

My feet are just barely tingly at this point. My fingers still zap on occasion. My lower back sometimes feels like hell, but it's intermittent. My joints still ache, but they always have, it's just up a couple of notches. I still have that one weird hot spot on my right outer thigh (that was my very first weird symptom).

Can you believe that I'm still having sneezing and slightly runny nose from allergies with all those anti-histamines (off label doses) I'm taking? Unbelievable!

Said I'd report in... I'll continue to keep you posted. I wish everyone the rebound I seem to be experiencing.

Jump to this post

Forgot to add...

Red Yeast Rice and CoQ10

REPLY
silvern12 | @silvern12 | Oct 18, 2021

I am also worried about getting the booster. I did have stiffness in my feet and muscle aches before vaccine they are worse now but never associated the two until i started reading this site. My neurologist said to get it but i am holding off for the booster a little bit and being extremely careful

REPLY
amyd67 | @amyd67 | Oct 18, 2021
In reply to @littlenoise "I *think* I may be getting better. I'm taking a shitton of supplements and anti-histamines and..." + (show)
@littlenoise

I *think* I may be getting better.

I'm taking a shitton of supplements and anti-histamines and Gabapentin (up to 300 mg 3 times daily).

I eliminated B vitamins after reading that an overload of those can cause neuropathy type feelings.

I quit wearing compression socks because they were actually making the tingling in my calves worse. I have loosened all of the laces on my shoes because it seems that my feet and legs swell throughout the day and that makes everything worse.

Everything I'm currently taking (I KNOW it sounds outrageous, but I don't know which combination is working, so I'm afraid to eliminate anything):

- Gabapentin 300 mg 3 x daily
- Fish Oil with Vit. D (always have taken) 1200 mg/50 mcg 1 x daily
- Magnesium 100 mg 2 x daily
- Bromelain 600 mg 2 x daily
- Alpha Lipoic 1200 mg 2 x daily
- Montelukast 10 mg 1 x daily (always have taken)
- Sulindac 200 mg 2 x daily (acquired for previous injury & doctor refills for arthritis problems)
- Famotidine 20 mg 3 x daily
- Ceterizine 10 mg 2 x daily (afternoon and evening)
- Fexofenadine 24 hr 180 mg 1 x daily (morning)
- Glucosamine/Chondroitin/Tumeric 1500/150/150 2 x daily
- Probiotic 1 x daily

I drink 1 protein drink (Ensure Original) every morning with my breakfast of pills.

I also try to drink at least 1 Body Armour daily because I suck at drinking water.

I've been to a GP, Podiatrist, Acupuncturist, Chiropractor, Massage Therapist, and Physical Therapist.

My feet are just barely tingly at this point. My fingers still zap on occasion. My lower back sometimes feels like hell, but it's intermittent. My joints still ache, but they always have, it's just up a couple of notches. I still have that one weird hot spot on my right outer thigh (that was my very first weird symptom).

Can you believe that I'm still having sneezing and slightly runny nose from allergies with all those anti-histamines (off label doses) I'm taking? Unbelievable!

Said I'd report in... I'll continue to keep you posted. I wish everyone the rebound I seem to be experiencing.

Jump to this post

I’m wondering if symptoms will improve as antibodies from vaccines wear off over time? How long has it been since your shot? I’m coming up on 6 months and feel like my symptoms may be improving as antibodies slowly regulate? I’m not taking anything except occasional CBD lotion on my feet at night, when the burning seems to be worse.

REPLY
1 reply
littlenoise | @littlenoise | Oct 18, 2021

I'm 8 months out.

That's my hope too. If they're saying we need a 3rd dose due to waning, hopefully it'll just wane itself out of my body.

REPLY
janstar61 | @janstar61 | Oct 18, 2021
In reply to @dag10 "Thank you Chloe. This week I have removed sugar, processed foods and foods containing gluten. All..." + (show)
@dag10

Thank you Chloe. This week I have removed sugar, processed foods and foods containing gluten. All organic as much as possible. He is taking vitamins/ supplements: Vitamin D3 125 mg by Nature’s Bounty, Vitamin B Complex( Vit B-12 lab work was in normal range.) in addition to multi-vitamin, Magnesium 200 mg, Essential Omega 3 by Andrew Lessman 2 gel capsules for a total of 1000 mg. and Vit C 1000 mg chewable by Nature Made. We walk everyday, but our 1.5 hour walking is being shortened due to shorter daylight. I’m greatful he sleeps well. (He only took the Gabapentin 300 mg tablet once, he prefers to nit take medication.) I’m so happy to hear your son has improved. I have full faith in Jesus, our Lord and Healer, and I claim Andrew’s total healing. Amen 🙏

Jump to this post

I have gone on every dies known to man. Nothing affects my neuropathy

REPLY
jcc352 | @jcc352 | Oct 18, 2021
In reply to @dag10 "You are experiencing the similar symptoms as my 34 year old son. He is 4 months..." + (show)
@dag10

You are experiencing the similar symptoms as my 34 year old son. He is 4 months post 2nd Pfizer injection and had had no changes in the tingling of both hands and feet to knees. Are you better? If so, what treatment worked? God bless you

Jump to this post

Thank you for the kind words. I was lucky that my symptoms have lessened over time. I still get some slight numbness and mild tingling but at this point it's very tolerable. Time was my treatment. I hope that your son has relief soon. Take care.

REPLY
View MoreView Less
Please sign in or register to post a reply.