1. < Neuropathy
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Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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littlenoise | @littlenoise | Oct 17, 2021

I *think* I may be getting better.

I'm taking a shitton of supplements and anti-histamines and Gabapentin (up to 300 mg 3 times daily).

I eliminated B vitamins after reading that an overload of those can cause neuropathy type feelings.

I quit wearing compression socks because they were actually making the tingling in my calves worse. I have loosened all of the laces on my shoes because it seems that my feet and legs swell throughout the day and that makes everything worse.

Everything I'm currently taking (I KNOW it sounds outrageous, but I don't know which combination is working, so I'm afraid to eliminate anything):

- Gabapentin 300 mg 3 x daily
- Fish Oil with Vit. D (always have taken) 1200 mg/50 mcg 1 x daily
- Magnesium 100 mg 2 x daily
- Bromelain 600 mg 2 x daily
- Alpha Lipoic 1200 mg 2 x daily
- Montelukast 10 mg 1 x daily (always have taken)
- Sulindac 200 mg 2 x daily (acquired for previous injury & doctor refills for arthritis problems)
- Famotidine 20 mg 3 x daily
- Ceterizine 10 mg 2 x daily (afternoon and evening)
- Fexofenadine 24 hr 180 mg 1 x daily (morning)
- Glucosamine/Chondroitin/Tumeric 1500/150/150 2 x daily
- Probiotic 1 x daily

I drink 1 protein drink (Ensure Original) every morning with my breakfast of pills.

I also try to drink at least 1 Body Armour daily because I suck at drinking water.

I've been to a GP, Podiatrist, Acupuncturist, Chiropractor, Massage Therapist, and Physical Therapist.

My feet are just barely tingly at this point. My fingers still zap on occasion. My lower back sometimes feels like hell, but it's intermittent. My joints still ache, but they always have, it's just up a couple of notches. I still have that one weird hot spot on my right outer thigh (that was my very first weird symptom).

Can you believe that I'm still having sneezing and slightly runny nose from allergies with all those anti-histamines (off label doses) I'm taking? Unbelievable!

Said I'd report in... I'll continue to keep you posted. I wish everyone the rebound I seem to be experiencing.

REPLY
2 replies
Profile picture for littlenoise
littlenoise | @littlenoise | Oct 17, 2021
In reply to @littlenoise "I *think* I may be getting better. I'm taking a shitton of supplements and anti-histamines and..." + (show)
Profile picture for littlenoise @littlenoise

I *think* I may be getting better.

I'm taking a shitton of supplements and anti-histamines and Gabapentin (up to 300 mg 3 times daily).

I eliminated B vitamins after reading that an overload of those can cause neuropathy type feelings.

I quit wearing compression socks because they were actually making the tingling in my calves worse. I have loosened all of the laces on my shoes because it seems that my feet and legs swell throughout the day and that makes everything worse.

Everything I'm currently taking (I KNOW it sounds outrageous, but I don't know which combination is working, so I'm afraid to eliminate anything):

- Gabapentin 300 mg 3 x daily
- Fish Oil with Vit. D (always have taken) 1200 mg/50 mcg 1 x daily
- Magnesium 100 mg 2 x daily
- Bromelain 600 mg 2 x daily
- Alpha Lipoic 1200 mg 2 x daily
- Montelukast 10 mg 1 x daily (always have taken)
- Sulindac 200 mg 2 x daily (acquired for previous injury & doctor refills for arthritis problems)
- Famotidine 20 mg 3 x daily
- Ceterizine 10 mg 2 x daily (afternoon and evening)
- Fexofenadine 24 hr 180 mg 1 x daily (morning)
- Glucosamine/Chondroitin/Tumeric 1500/150/150 2 x daily
- Probiotic 1 x daily

I drink 1 protein drink (Ensure Original) every morning with my breakfast of pills.

I also try to drink at least 1 Body Armour daily because I suck at drinking water.

I've been to a GP, Podiatrist, Acupuncturist, Chiropractor, Massage Therapist, and Physical Therapist.

My feet are just barely tingly at this point. My fingers still zap on occasion. My lower back sometimes feels like hell, but it's intermittent. My joints still ache, but they always have, it's just up a couple of notches. I still have that one weird hot spot on my right outer thigh (that was my very first weird symptom).

Can you believe that I'm still having sneezing and slightly runny nose from allergies with all those anti-histamines (off label doses) I'm taking? Unbelievable!

Said I'd report in... I'll continue to keep you posted. I wish everyone the rebound I seem to be experiencing.

Jump to this post

Forgot to add...

Red Yeast Rice and CoQ10

REPLY
Profile picture for silvern12
silvern12 | @silvern12 | Oct 18, 2021

I am also worried about getting the booster. I did have stiffness in my feet and muscle aches before vaccine they are worse now but never associated the two until i started reading this site. My neurologist said to get it but i am holding off for the booster a little bit and being extremely careful

REPLY
Profile picture for amyd67
amyd67 | @amyd67 | Oct 18, 2021
In reply to @littlenoise "I *think* I may be getting better. I'm taking a shitton of supplements and anti-histamines and..." + (show)
Profile picture for littlenoise @littlenoise

I *think* I may be getting better.

I'm taking a shitton of supplements and anti-histamines and Gabapentin (up to 300 mg 3 times daily).

I eliminated B vitamins after reading that an overload of those can cause neuropathy type feelings.

I quit wearing compression socks because they were actually making the tingling in my calves worse. I have loosened all of the laces on my shoes because it seems that my feet and legs swell throughout the day and that makes everything worse.

Everything I'm currently taking (I KNOW it sounds outrageous, but I don't know which combination is working, so I'm afraid to eliminate anything):

- Gabapentin 300 mg 3 x daily
- Fish Oil with Vit. D (always have taken) 1200 mg/50 mcg 1 x daily
- Magnesium 100 mg 2 x daily
- Bromelain 600 mg 2 x daily
- Alpha Lipoic 1200 mg 2 x daily
- Montelukast 10 mg 1 x daily (always have taken)
- Sulindac 200 mg 2 x daily (acquired for previous injury & doctor refills for arthritis problems)
- Famotidine 20 mg 3 x daily
- Ceterizine 10 mg 2 x daily (afternoon and evening)
- Fexofenadine 24 hr 180 mg 1 x daily (morning)
- Glucosamine/Chondroitin/Tumeric 1500/150/150 2 x daily
- Probiotic 1 x daily

I drink 1 protein drink (Ensure Original) every morning with my breakfast of pills.

I also try to drink at least 1 Body Armour daily because I suck at drinking water.

I've been to a GP, Podiatrist, Acupuncturist, Chiropractor, Massage Therapist, and Physical Therapist.

My feet are just barely tingly at this point. My fingers still zap on occasion. My lower back sometimes feels like hell, but it's intermittent. My joints still ache, but they always have, it's just up a couple of notches. I still have that one weird hot spot on my right outer thigh (that was my very first weird symptom).

Can you believe that I'm still having sneezing and slightly runny nose from allergies with all those anti-histamines (off label doses) I'm taking? Unbelievable!

Said I'd report in... I'll continue to keep you posted. I wish everyone the rebound I seem to be experiencing.

Jump to this post

I’m wondering if symptoms will improve as antibodies from vaccines wear off over time? How long has it been since your shot? I’m coming up on 6 months and feel like my symptoms may be improving as antibodies slowly regulate? I’m not taking anything except occasional CBD lotion on my feet at night, when the burning seems to be worse.

REPLY
1 reply
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littlenoise | @littlenoise | Oct 18, 2021

I'm 8 months out.

That's my hope too. If they're saying we need a 3rd dose due to waning, hopefully it'll just wane itself out of my body.

REPLY
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janstar61 | @janstar61 | Oct 18, 2021
In reply to @dag10 "Thank you Chloe. This week I have removed sugar, processed foods and foods containing gluten. All..." + (show)
Profile picture for dag10 @dag10

Thank you Chloe. This week I have removed sugar, processed foods and foods containing gluten. All organic as much as possible. He is taking vitamins/ supplements: Vitamin D3 125 mg by Nature’s Bounty, Vitamin B Complex( Vit B-12 lab work was in normal range.) in addition to multi-vitamin, Magnesium 200 mg, Essential Omega 3 by Andrew Lessman 2 gel capsules for a total of 1000 mg. and Vit C 1000 mg chewable by Nature Made. We walk everyday, but our 1.5 hour walking is being shortened due to shorter daylight. I’m greatful he sleeps well. (He only took the Gabapentin 300 mg tablet once, he prefers to nit take medication.) I’m so happy to hear your son has improved. I have full faith in Jesus, our Lord and Healer, and I claim Andrew’s total healing. Amen 🙏

Jump to this post

I have gone on every dies known to man. Nothing affects my neuropathy

REPLY
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jcc352 | @jcc352 | Oct 18, 2021
In reply to @dag10 "You are experiencing the similar symptoms as my 34 year old son. He is 4 months..." + (show)
Profile picture for dag10 @dag10

You are experiencing the similar symptoms as my 34 year old son. He is 4 months post 2nd Pfizer injection and had had no changes in the tingling of both hands and feet to knees. Are you better? If so, what treatment worked? God bless you

Jump to this post

Thank you for the kind words. I was lucky that my symptoms have lessened over time. I still get some slight numbness and mild tingling but at this point it's very tolerable. Time was my treatment. I hope that your son has relief soon. Take care.

REPLY
Profile picture for kathrynt
kathrynt | @kathrynt | Oct 24, 2021
In reply to @amyd67 "I’m wondering if symptoms will improve as antibodies from vaccines wear off over time? How long..." + (show)
Profile picture for amyd67 @amyd67

I’m wondering if symptoms will improve as antibodies from vaccines wear off over time? How long has it been since your shot? I’m coming up on 6 months and feel like my symptoms may be improving as antibodies slowly regulate? I’m not taking anything except occasional CBD lotion on my feet at night, when the burning seems to be worse.

Jump to this post

I received two doses of Pfizer vaccine and it was three weeks after my second dose that I suddenly developed neuropathy in both feet, worse in the left. I decided to get a booster from Johnson and Johnson yesterday. I had aches and a headache about eight hours after the booster and feel okay today. I will keep you all posted.

REPLY
Profile picture for Dave Hayward
Dave Hayward | @davehayward1 | Oct 25, 2021

I have CIDP. My issues started about 4-5 years ago and, to date, consist of numbness, coldness and mild burning sensation in my feet. I was inoculated on 2/20 and 3/20. In my case, I don't believe the progress of my issues has been affected by either the COVID vaccine or by the flu vaccines. It is my understanding that "live" vaccines, such that which is administered for rabies, may be problematic.

REPLY
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this1is1tuff | @this1is1tuff | Oct 25, 2021

I started getting horrible pain in my low back/rear/leg almost 2 week after the 2nd Moderna shot - I'm going on 7 months and I'm not better. My GP referred me to PM doc to look at MRI - then I've seen neurosurgeon, orthosurgeon - I've had 2 epidurals - MRI isn't showing anything nor xrays. I've had bouts of low back/leg issues on both sides in the last 5 or 6 years - very brief bouts and NOTHING like this. This has just been horrid. Can't walk without a cane - pain can be just unbearable. Maybe it wasn't the vax but my gut says it was.

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