Chronic Pain members - Welcome, please introduce yourself

It's an honor to find a group of people that have been, and are still going<br />
through, what we all face 24/7. I'm getting worse but a lot of this startup<br />
group have alot more problems than myself. Let's try to grow this group<br />
into one large enough to let our "FRIENDS" in Washington know that we are<br />
indeed human beings and could use some representatives in D.C. to open<br />
their minds and hearts to the millions that suffer daily with very little<br />
to look forward to. I want to write, a novel, book, articles to whoever we<br />
can reach. I just need some ideas. Do you suppose there is a pain monthly<br />
magazine. LOL briansr<br />

@jennmc I empathize with your having to cut down on the number of things you enjoy. I had to retire from the ministry when I was 55. I went from having an overfilled schedule to having no responsibilities aside from taking care of our new home.

I also have an scs, for small fiber peripheral polyneuropathy, with burning pain in my feet and ankles. Mine was implanted in 2017, and it was wonderful! For a year. Then the stimulator needed to be adjusted every few months for a year. Then it stopped working for me. I still have it on, and it's possible that it helps a little. I had a Dorsal root ganglion stimulator trial, and it did nothing. I'm thankful that I don't have foot drop. I just have to be careful, especially going up stairs, to lift my feet enough so I don't trip.

I've tried so many medications that I can't remember them all. Morphine sulfate contin is the only medication that's helped long term. I'm going to switch to buprenorphine soon because of the hassle of trying to get a therapeutic dose of mscontin.

Good for you, doing the laps in the pool. I've heard a lot of positive things said about water exercise. Unfortunately, it's not an option for me. Have you ever been in a pool exercise class? I'm generally a hermit by nature, but support groups have been helpful.

We will celebrate our 50th anniversary next June. We've always wanted to go on an inside passage Alaskan cruise, and we hope that Covid19 won't prevent that from happening next summer. Our daughter is a Coast Guard wife, with 2 girls, 2 and 4, and our son has a daughter in the 3rd grade. We don't get to see them often, as our son lives in Indianapolis and our daughter is in Alameda, CA. We live in central Oregon, so it's only a 12 hour drive to Alameda. At least we can do video chatting with them.

I suppose you've been to a PT, and have exercises you can do at home. My wife does a nightly stretching routine that she's found helpful. I count my yard work as my exercise routine. We live in the country on ten acres, with a lot of landscaping I've been developing for 15 years. Now I'm trying to make it lower maintenance. Fall is a busy time of the year, pruning, planting, transplanting, getting things ready for winter. The more I do in the fall, the less there is to do in the spring.

As usual, I've rambled on way too long, and I should have been asleep an hour ago.

It's good to meet you.

Blessings.
Jim

Hey. My name is Thomas and I have been dealing with residual Lymes body aches and pain for awhile. What I found to help immensely was a combo of supplements and vitamins. Omega 3 and 9, iron, magnesium, potassium, Turmeric and naproxen sodium. Bulksupplements.com has been a great place for Supplements. They have catagories now for specific needs. My wife and I use Lions Mane mushroom extracts. Look into Turkey Tail mushroom. Cancer.gov has some more info on it's healing properties. Hope this helps.

Hi Thomas! My friend who has Lymes see an alternative medicine lady who does detox on her. Also, my brother used a Rife machine for years.

As a person, who's medical specialty is infection control & prevention, I always start to cringe when I read that some alternative person does any kind of detoxing! One cannot detox a human body, the kidneys and liver are responsible for this, because if your body would be full of toxins, those organs are not working, and you might be ready to die.

Whatever this lady does, she does not detox the persons body!

"Alternative medicine," is like a game of darts while blindfolded. There are truly many beneficial and credible sources but, it is a convoluted and sometimes detrimental endeavor. I am working hard at bridging this gap and combining modern healthcare and effective alternative therapies. Any feedback, opinions or thoughts would be great

Effective by what definition? Placebo effect? If alternative methods are studied in well designed trials and proven to be effective, then they are not alternative.

Effective by what definition? Placebo effect? If alternative methods are studied in well designed trials and proven to be effective, then they are not alternative.