I have questions about Pernicious Anemia + IBS + FODMAP

Thanks for your reply, @jkay2418. I'd be interested in knowing how the Fodmap Zolan plan is working for you. I could not readily find any information about that.
Do you have any details you could share?

Monash University has the largest database of foods and their FODMAP rating. I have been using it with great success. There is an app you can use. Just visit the Monash University site and search FODMAP. I’m not able to provide link in my reply. Mayo won’t allow me.

HI Jkay, I noticed that you wished to post a URL to a resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

- Your complete on-the-go guide to the FODMAP Diet (Monash University) https://www.monashfodmap.com/ibs-central/i-have-ibs/get-the-app/

How do you use the app?

Hello @jkay2418, I can speak a bit to this. I have PA, IBS, Celiac disease, am vegetarian, and have an autoimmune connective tissue disease.
The PA is easy for me - oral B12 @ 1000 mcg/day does the trick. When it came to the celiac-vegetarian-ibs issue, I made good use of my health-insurance-provided dietitian's expertise.
I started with a low Fodmap-fodmap elimination diet and food diary.
It was a time-consuming pain, but worth the effort.
The Monash info is great. I bought their cookbook, but not the app.
I am a year in and can now carefully eat some of what was a big problem. I was able to escape the stressful job that precipitated the IBS so that helped a lot.
Can you get access to a dietitian to support you in the FODMAP elimination/reintroduction process?
Can your doctor refer you to one?
This help is what really helped me the most.
Keep reading and learning and cooking!
I wish you success and comfort with your food!

Monash University has the largest database of foods and their FODMAP rating. I have been using it with great success. There is an app you can use. Just visit the Monash University site and search FODMAP. I’m not yet able to provide links since I am a new Mayo member!

Thanks so much! I downloaded the app onto my iPhone and use it to track low and high FODMAP foods. It is very user friendly and really cuts down on any guesswork. I was astonished to see all the “healthy” food I was eating that are very high on FODMAP list. It made eliminating things very easy and it is a huge database. It also provides a range of acceptable foods so you can half, as example, 1/2 a banana but not a whole one and probably be fine. Obviously some trial & error involved. But great for grocery shopping, making meals, and eating out. Again, thanks for posting.

Thank you so much! I’m so glad you have found relief. Monash app is outstanding. I highly recommend. Makes shopping and eating out so much easier. Very user friendly. And yes, working with a local dietician. Big help! I wish you the best of luck. Will get their cookbook!!!

Hello
My journey has been a long road. To start I had my gallbladder out January 17, 2022. I also had a emergency ercp 4 days later. Afterwards I was still not well although at my pre op consult my surgeon said I had typical gallbladder symptoms and other symptoms no like gallbladder as well. I had a endoscope last June I was not prepared nor did I understand. I got results on my portal that said linear endocrine cell hyperplasia with possibly of autoimmune gastritis. That is all. Doctor just wrote it was nothing to be concerned about UT did require follow up. I tried calling as follow up was over two months away. They wouldn't let me talk to him even though I explained why. So on to two more gastros not much help although the antibody bloodwork this gi never mentioned I literally got done only a month ago. My intrinsic factor was negative but my pariental cell was high and said out of range. My heart sank. I didn't not want this. I should also mention I had my gastrin level done
It was elevated. It was 152. I know normal should be under 100 so I don't know how concerning that is. This nurse practioner at this gi office said she was concerned about autoimmune gastritis. I asked her if she thought I had pernicious anemia and she said she believed I did. But we disagreed on some issues and parted ways. I am scheduled to see another gi March 4. He is part of my new primary facility so I have hopes I will get somewhere with him of course I'm going to ask for another endoscopy and get some definite answers and a plan. I have other issues which developed shortly after gallbladder surgery. I have other issues but I save that for the relevant support groups. I'd just love to talk to and get feedback from members with this issue and those who are have more information than I do. Sadly most of my information on this has been from the internet. I have had health anxiety for years and the thing that scares me is what I have read about all this having a risk for gastric cancer. I mean, I just turned 55 and have a autistic son to take care of. I'm sorry this was so long. I should also add since all my stomach problems started about 20 months ago I have gone from 272 to now 229. I don't think my weight has been this low in well over 20 years. I was lucky in the last 25 years to lose 10 pounds so this worries me. I have such a hard time eating. I was sticking around 240. But since Nov it's just dropped now to 229 and even my husband said my skin is sagging. Not exactly the way I wanted to lose it. Thank you for listening.

Hi Eileen, I know this post is over a year old. But just wanted to know if your diagnosis was confirmed. I'm not a physician but rather a poster of advanced stage AIG so I know a thing or two. Let me know if you've any lingering questions.

Hello,
I was just diagnosed with AAG in March. I had an ERCP in May of 2017 with complications (pancreatitis and a perforation that kept me in the hospital for 17 days. One month later I had my gallbladder removed. I have not felt well since then. At first I would feel okay for a few months at a time. This shortened year by year and now I am fatigued everyday, with achey eyes and malaise. Doctors have told me I don’t have PA. My B12 has been 2000 since 2018. My hemoglobin was low a few months ago and now back to normal although my monocytes and lymphocytes are low and my Alkaline Phosphatase S is high on recent labs. I’m at Mayo now waiting as a checker to get in with the menopause clinic and Fibromyalgia clinic for my fatigue symptoms. Also just got referred to Hemotology. I had an endoscopy the day I arrived and a trigger point injection yesterday. I don’t think these will help with my fatigue. Doctor doesn’t think my high B12 is paradoxical because my homocysteine is normal. I really hope I get in with these departments while I’m here! Sorry this was so long.