I have questions about Pernicious Anemia + IBS + FODMAP

Posted by jkay2418 @jkay2418, Sep 16, 2021

I was diagnosed several years ago with pernicious anemia (PA) a condition that originates in the gut, and blocks the absorption of B12 from food sources. Lifelong supplements of B12 are required either through B12 shots or megadoses of sublingual B12 tablets. Additionally, another symptom of PA is the absence of hydrochloric acid in the stomach, making it harder to break down, digest, and eliminate food efficiently. This can result in lots of digestive discomfort. To top it off, recently diagnosed with IBS! Who hasn’t been?!? Anyway, my desire in starting this discussion has to do with diet. I’m wondering if anyone has found a FODMAP diet helpful with IBS or any other approaches? Help?!?!

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@jkay2418

Will definitely keep in touch on progress, but I’m not the one with the dietician appointment. That person is higher up on the thread: @gastrogirl

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Thanks for your reply, @jkay2418. I'd be interested in knowing how the Fodmap Zolan plan is working for you. I could not readily find any information about that.
Do you have any details you could share?

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Monash University has the largest database of foods and their FODMAP rating. I have been using it with great success. There is an app you can use. Just visit the Monash University site and search FODMAP. I’m not able to provide link in my reply. Mayo won’t allow me.

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@jkay2418

Monash University has the largest database of foods and their FODMAP rating. I have been using it with great success. There is an app you can use. Just visit the Monash University site and search FODMAP. I’m not able to provide link in my reply. Mayo won’t allow me.

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HI Jkay, I noticed that you wished to post a URL to a resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

- Your complete on-the-go guide to the FODMAP Diet (Monash University) https://www.monashfodmap.com/ibs-central/i-have-ibs/get-the-app/

How do you use the app?

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Hello @jkay2418, I can speak a bit to this. I have PA, IBS, Celiac disease, am vegetarian, and have an autoimmune connective tissue disease.
The PA is easy for me - oral B12 @ 1000 mcg/day does the trick. When it came to the celiac-vegetarian-ibs issue, I made good use of my health-insurance-provided dietitian's expertise.
I started with a low Fodmap-fodmap elimination diet and food diary.
It was a time-consuming pain, but worth the effort.
The Monash info is great. I bought their cookbook, but not the app.
I am a year in and can now carefully eat some of what was a big problem. I was able to escape the stressful job that precipitated the IBS so that helped a lot.
Can you get access to a dietitian to support you in the FODMAP elimination/reintroduction process?
Can your doctor refer you to one?
This help is what really helped me the most.
Keep reading and learning and cooking!
I wish you success and comfort with your food!

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@hopeful33250

Thanks for your reply, @jkay2418. I'd be interested in knowing how the Fodmap Zolan plan is working for you. I could not readily find any information about that.
Do you have any details you could share?

Jump to this post

Monash University has the largest database of foods and their FODMAP rating. I have been using it with great success. There is an app you can use. Just visit the Monash University site and search FODMAP. I’m not yet able to provide links since I am a new Mayo member!

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@colleenyoung

HI Jkay, I noticed that you wished to post a URL to a resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

- Your complete on-the-go guide to the FODMAP Diet (Monash University) https://www.monashfodmap.com/ibs-central/i-have-ibs/get-the-app/

How do you use the app?

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Thanks so much! I downloaded the app onto my iPhone and use it to track low and high FODMAP foods. It is very user friendly and really cuts down on any guesswork. I was astonished to see all the “healthy” food I was eating that are very high on FODMAP list. It made eliminating things very easy and it is a huge database. It also provides a range of acceptable foods so you can half, as example, 1/2 a banana but not a whole one and probably be fine. Obviously some trial & error involved. But great for grocery shopping, making meals, and eating out. Again, thanks for posting.

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@yellowdoggirl

Hello @jkay2418, I can speak a bit to this. I have PA, IBS, Celiac disease, am vegetarian, and have an autoimmune connective tissue disease.
The PA is easy for me - oral B12 @ 1000 mcg/day does the trick. When it came to the celiac-vegetarian-ibs issue, I made good use of my health-insurance-provided dietitian's expertise.
I started with a low Fodmap-fodmap elimination diet and food diary.
It was a time-consuming pain, but worth the effort.
The Monash info is great. I bought their cookbook, but not the app.
I am a year in and can now carefully eat some of what was a big problem. I was able to escape the stressful job that precipitated the IBS so that helped a lot.
Can you get access to a dietitian to support you in the FODMAP elimination/reintroduction process?
Can your doctor refer you to one?
This help is what really helped me the most.
Keep reading and learning and cooking!
I wish you success and comfort with your food!

Jump to this post

Thank you so much! I’m so glad you have found relief. Monash app is outstanding. I highly recommend. Makes shopping and eating out so much easier. Very user friendly. And yes, working with a local dietician. Big help! I wish you the best of luck. Will get their cookbook!!!

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